puppylove

I used eat them constantly when I was a little kid. Now I can barely stomach bland foods.

What kind of coping techniques did they teach?

Potsyturvy- I get shortness of breath with it too. Is that a common thing with GERD?

Warm showers- I feel worse. Sometimes a bath is okay. If I have the chills it always helps. Cold showers help with nausea and blood pooling a little- but they are not too pleasant.

For me sometimes days and sometimes hours. Just depends.

I showed this to my Dad and he loved it!

I had been feeling so great for almost eight days in a row- not one symptom! I haven't changed a thing and today I'm back to feeling absolutely awful. I know POTS is a rollercoaster of good and bad but there has to be some reason, right? It's just so hard to believe that I could be symptom free for days and all the sudden get all my symptoms full force for no reason. Does anyone know of anything, or do you just accept not knowing?

That is so funny!!!! XD And true.

Dizzyblonde- Thanks for the link. It does look like that a little- I bet it is. I guess I will just take vitamin D pills.

Maybe. Right now though I'm only on Phenergan.

It has been so warm and sunny for this time of year where I live so I have been sitting outside in the sun to get more vitamin D. Normally I get tan really easily but this time everytime I go out in the sun I get this disgusting skin rash. It's a little blotchy but it's not a heat rash/ blood pooling because it's like a bunch of tiny red dots. It itches a little but mainly just looks gross. It gets worse when I'm in the sun but I still have it for days after I'm inside. Does anyone else get this? It never happened last year so I'm thinking it relates to POTS some how.

Gradual onset and good days bad days.

I'm not in college so I rely more on my family. But I can relate to feeling guilty. Everyone sacrifices a lot for me and I feel bad that I'm making life difficult for them. But I need them. You sound like you have really good friends. That's tough to know how much you should lean on them. You shouldn't feel selfish because you need them. Maybe you could talk with you're really good friends and ask them? I don't really have a good answer- sorry . But just wanted to let you know you're not alone.

I had been walking slowly for short distances for a while because that's all I could handle. One day a few months ago I was feeling unusually great so I decided to go for the two mile trail I used to walk before POTS got really bad. Big mistake. I felt awful by the end and was a wreck for next couple days. I think the way to do it is slowly and build up whatever kind of exercise you are doing. If not, it might just be too much of a shock and really increase you're heart rate. Maybe for running you could could increase you're speed/ distance a little more each day.

Hi Potluck. It's a good thing to me. The more info the better!

Someone probably votes on a bunch of old polls that they never did. When one person votes it goes to the top.

Welcome to the forum!

Do not give up hope!!!! I felt like you do in the beginning and I completely lost hope. But after a long search I finally found a couple of good doctors. Even though it's kind of trial and error there are many different routes to go. Exercise, medications, salt/ fluid loading, compression, herbal supplements are just a few. For me a combination of all of those. I'm glad you found this site because it has also been great for support too. ((((hugs)))))

Have you already checked to see if there is a POTS specialist near you? I got absolutely no where with regular cardiologists because I don't think a lot of them even understand it. I didn't get any real help until I went to a doctor whose practice was completely all about POTS and he is a POTS specialist.

Wow that is awesome! Really good tips and very motivational! The spoiled brat thing is so true... Lol

Talking with my grandma on FaceTime and cuddling with my dogs too. I also like to look at my fish aquarium- very relaxing.

I have noticed some sore bumps- not really knots though. I have really sensitive skin so I thought it was just the shampoo I have been using. Maybe POTS though... I've had weirder symptoms

It's so nice to know there are people going through exactly what you're going through. Of course I'm not happy you guys feel bad too, but no matter what weird symptom I experience at least one person has felt it also- even when I feel like no one else would get symptoms this bizarre. Thanks guys!

If you type it in on google images some pictures come up too... :/