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  1. Today
  2. WinterSown

    Lexapro making things much worse

    It is a known side effect, you can check online. I'm off it for at least five more days. Swallowed a smart pill this morning and can't do anything that causes soft stools.
  3. My pharmacist has split pills for me when they did not have the right dose available. Surprised they would not offer to do that.
  4. dizzytizzy

    Anyone not doing extra salt?

    @bombsh3ll: I've tried the salt in the water trick before and I just couldn't stomach it. Much easy for me to add pink salt to my food versus try to chug down saltwater. Gives me the heebie jeebies just thinking about it 🤢 That's exactly how I feel. Like I lose the water each night and then the whole thing has to start over again each morning. I've noticed that throughout the day I get more and more bloated (i.e. pants tighter), but after peeing overnight a bunch of times, the bloating disappears by morning.
  5. dizzytizzy

    Anyone not doing extra salt?

    @StayAtHomeMom: Yes! My salt was always on the low end of normal when measured and I was worried that it would spike too high once the EP put me on the high salt diet, but it has stayed in range, sometimes higher and sometimes lower in the range. He did tell me that I needed to eat a high potassium diet along with it as I think it helps to maintain the appropriate balance.
  6. Most beta blockers can be split and your pill is scored, but it is always best to confirm with the pharmacist where you got the pill from. You should also let your dr know they gave you the wrong dosage.
  7. My EP has me chopping in half carvedilol. No problems.
  8. First, I need to say I haven't been officially diagnosed with Dysautonomia. My cardiologist has mentioned it to me. Also, I use a BIPAP machine since I have sleep apnea and have AFIB but those are all controlled. I also had my gallbladder taken out about two weeks ago. Tonight before I went to bed, I started having chills and feeling cold. I didn't think much of it. I woke up at 4:35am with major night sweats, heart palpitations and heart racing 100-110bpm. Also my stomach didn't feel good. I took my temp and it was 96.1F, which is low for me. I was about to go to the E.R. but then slowly my symptoms subsided the more I stayed awake. My temp is now 97F, and HR back to normal 70bpm. I'm trying to think what caused this, because I was doing fine for awhile with no night sweats. Late in the evening I had ate a sandwich with some Pepperjack cheese slices. I'm wondering if that could trigger such a response? Can dysautonomia cause body temperature to drop and cause chills? I'm at a loss here what to do.
  9. If a tablet is scored it means you can split it in half, that is why the score is there.
  10. Pistol

    Lexapro making things much worse

    @WinterSown - I did not experience diarrhea. Did you check with your doc about that? If it is from the Lexapro you may have to stop it? I often check with the pharmacist about side effects, they can tell you if this is something that goes away or even is from the drug.
  11. jklass44

    Does anybody feel the need to sleep all day?

    Yes I feel this way a lot. Fatigue and weakness are some of my worst symptoms. If I do take the day off work, I alternate between napping, sitting and light walks around the house. It's a vicious cycle and can be quite difficult to find a good balance that works well for your body. If I sleep too much it makes my symptoms worse, but if I don't sleep enough it also makes my symptoms worse...
  12. Honestly, at this point... I think I'm going to drive myself nuts constantly testing... so I'm going to give it a rest. It's been maddening diagnostics and I don't have the energy for this. I have a neurologist appointment tomorrow. We'll see how that goes. Wish me luck! The neurologist doesn't think it's my nerves that's causing the pain or tingling/numbness (and at this point, I'm pretty sure it's the blood pooling, or connected to thus). I am however curious to see if the results are going to be abnormal again... On the bright side, my symptoms have improved in the last couple of hours (maybe the pedialyte did help, or maybe it's just that it's not as hot). The blood pooling is still really intense though.
  13. I do have days like that. Because of my 1yo son I have to power through it for the most part and take as much time resting as he'll let me have. I don't think it's really bad for you, per se. If it happens a lot it could lead to deconditioning, which can exacerbate POTS symptoms. At which point you may want to take up some light exercise (pilates can be done from a bed) to try to avoid too much deconditioning happening (but I'd talk to your doctor first about it). Exhaustion will also definitely worsen symptoms, so if you're sleepy or feel like you're going to fall over, try to get some rest (even if it's just sitting down for a moment). Listen to your body!
  14. sleepy_lady

    Vision and eyes undiagnosed

    I get dry eyes really bad sometimes, it was the worst when I was 17 or so. It's been so bad, I've had to peel my eyelids off of my eyeballs after waking up (yes, literally peel) and then make myself yawn repeatedly in order to make the smallest amount of tears so I could blink.
  15. kafie

    Vision and eyes undiagnosed

    The first thing that comes to mind is migraine with aura. Have you told them about the pain with it? Does the pain come on with the visual symptoms, before, or after? (I think with migraines usually the visual symptoms precede the headache, but can also occur separately (and certain types of headaches can cause eye pain as well)). I'm not totally sure what causes these kinds of symptoms. I have an astigmatism too and I get floaters as well from time to time - I think generally related to a sudden blood pressure increase. Certain autoimmune diseases (which can cause dysautonomia) can cause eye symptoms including visual disturbances, redness, and pain. Sjogren's Syndrome comes to mind, but I'm not sure if that fits your symptoms and it usually involves dry eyes or mouth... and possibly a bunch of other systemic involvement.
  16. Sometimes I have to take off work becusse my POTS symptoms are so bad, and my fatigue is so bad I physically and mentally cannot function. Usually a full day of sleeping on and off helps a little bit. Is this really bad for you? Does anybody else do this? Its awful because I have to take off work but if I don’t its like my symptoms worsen and are prolonged.
  17. aaronh819

    Vision and eyes undiagnosed

    I have astigmatism too in one eye always wore contacts until the pain set in. It never did bother me until all this started going on. Nothing really like the picture. I get a lot of head pressure especially when standing or bending. So much going on it’s unreal. Would love to wake up and this all be a bad memory please Lord. Thank you for the reply
  18. So today has been a pretty bad day. The blood pooling is so bad and I've been so lightheaded and nauseous and just feeling really wonked. I attribute this to jumping out of bed this morning rather than getting up slowly. (I haven't been lightheaded first thing in the morning in so long (but it also usually takes me awhile to summon the energy to pull myself out of bed), and this morning I almost fell right over...) My standing heart rate is consistently over 120bpm, almost up to 150bpm (with at least a 30bpm increase). My resting heart rate has been around 90bpm sitting, 80-90bpm even laying down (and not always dropping as quickly). The blood pooling is especially bad, with the redness in my hands going up my arms, and the blood pooling in my feet actually being relatively visible (I don't know if it's because my feet are so dry from athlete's foot, but there's only a shade or two change from reclining to standing... unless I take a shower, the most visible color change is in my toes... and they're kinda purple). I tried to take my blood pressure a couple times and it was all over the place with systolic between 135-116 and diastolic between 95-76 (and not always rising and falling together... idek). (Lower systolic upon standing, higher diastolic... opposite for laying - I'm sure I must have messed that up somewhere) I've been drinking coconut water and pedialyte and a whole ton of water. It doesn't seem to be helping (or maybe I would have fainted by now if I hadn't). So I'm just trying to periodically elevate my arms and legs and be careful. 😰
  19. My doctor hasn't responded to me, and I'm almost due for my next dose (My 10mg bottle ran out, I was given 20mg this time around because the walmart near me told me they were stopping carrying 10mg--professional, I know.), so I'm about to split a tablet just because I'm not sure what else I can do! I got two different answers when I called my local pharmacies (The woman who answered the phone at one pharmacy told me not to split the tablet, but a pharmacist at another pharmacy told me it was completely safe.) My resting heart rate is already super slow when I'm relaxed, so I don't want to cause any trouble for myself by taking a whole 20mg. My 20mg tablets look like this: In case that helps, does anyone split this pill?
  20. sleepy_lady

    Vision and eyes undiagnosed

    Does your vision look like this? Mine does, I was diagnosed simply with astigmatism, but who knows. Glasses help me a great deal, but I get the eye burning and red eyes, too. Although, not to the extent you are describing. Sometimes washing my face thoroughly prevents the burning, I'm not sure why. I also get head pressure, mostly at the back-left of my head. It's been that way for years now (Since I was 17 or 18, I'm 25 now.), so I'm used to it, but sometimes it does make me feel unnerved. I hope my message has been helpful in some way!
  21. have been having such a terrible time for so long with eye pain and terrible visual disturbances. Been to multiple specialists neurologist many eye specialist neuro opthalmologist had an mri ct all with no avail. I definitely thank the Lord they haven’t found anything wrong in my brain or anything like that I am just beyond scared to death things just being so bad with no help whatsoever. The last few months it’s became debilitating progressing so fast I have no idea what to do. The pain is unreal like someone is taking a torch to your eyes at times. My eyes have became red also all the time. I’ll try and describe the visual problems or at least what I can think of there’s so much. Terrible visual afterimages constantly seeing everything you look at repeatedly, seeing clear outlines of everything you look at whenever it’s bright, tons of floaters, white dots everywhere whenever looking at the sky or anything bright, flashes of light all the time from white to blue or black. Even when I close my eyes I always see blue light even when I’m a dark room with my eyes closed for hours I can’t ever get rid of this. I never heard of anyone seeing blue like this all the time with eyes closed. Also have an arc of light in the side of my right eye almost all the time, extremely bad light sensitivity, if I see any glare of light or head or taillights or anything it gets burned into my eyes for minutes. I cannot find help it is progressing so fast I’m beyond terrified. I can even look at my phone or anything and look around and see a black outline of whatever I was looking at for minutes. There is so much more going on with my vision and head pressure and so much more I could never list it all. I also have been having weird pains and feelings in my head muscle twitches almost nonstop and so much more. If anyone has experienced anything like this please help me. I have lost all faith in the medical field just keep getting put off months at a time. I Pray more than anything for healing. I would do anything work for free the rest of my life just to have my health back please my Lord. Please anyone that can help it would be greatly appreciated I’m beyond desperate. Thank you so much and God bless
  22. Yesterday
  23. WinterSown

    Lexapro making things much worse

    Yeah, I know it doesn't turn me into a happy person overnight. #sarcasmlost Nor do I think I will be happier tomorrow or a month from now if the side effects don't end. When does the diarrhea go away? Did that taper off eventually?
  24. Seems to be. When my POTS is worse I get them. Florinef got rid of them then it stopped working and bam, they are back! All electrolytes and bloods perfect so it's not that in me.
  25. Pistol

    Lexapro making things much worse

    @WinterSown - Lexapro takes several weeks to be effective. Most people ( like me ) do not feel any effect for 4-6 weeks. In some cases your body may need to take that long to adjust. It does not turn you into a "happy person" just from taking it for a few days. If it makes you feel that bad you either do not tolerate it or you need to give it time to do its job. As you know - most people with dysautonomia are sensitive with medications, so often you need to give it time to truly find the effect it has on you.
  26. POTSmom2

    hyperadrenergic POTS

    we were told that if its not genetic - it likely due to a mast cell activation disorder issue...
  27. Others or Dr. Google may have to comment on the alterned chloride level, but one thing that jumped out at me was your elevated monocytes. Do you get recurrent EBV? That could cause both the elevation and autonomic dysfunction in my opinion
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