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  • Caregivers

  • Helpful Links and Information for Caregivers

    Caregiving is defined as the act of providing unpaid assistance and support to family members and acquaintances who have physical, developmental or psychological needs. (1)   Caregivers serve more than the physical acts of tending to a patient's body, they are frequently the person or people who keep a patient from being isolated.   We know that many people who provide caregiving on a regular basis are family or close friends of the patient.  But there are also many patients who have the good fortune of receiving help and care from people with no obvious motivation to provide it.  

    Below are some wonderful links to sites that provide important information for caregivers, including a caregiver's community that can provide online support.  If you have links to suggest, please email webmaster@dinet.org

    We are interested in hearing stories from our caregivers; the day to day, the trials and difficulties, and the fulfilling experiences.  We are also interested in hearing about sites you may use, or important information and resources that you would like to share with other caregivers.  We are kicking off this section in honor of caregiving for October Awareness Month but it will continue to live on our site beyond the month.  Please consider sharing your story being cared for or caring for someone with dysautonomia and chronic illness.   Read caregiver's stories on our Member Stories page and email webmaster@dinet.org with a story you would like to share.

    Caregiver 101: On being a caregiver. 

    Caregiving: Recognizing Burnout 
    Tips to help caregivers get through the holidays as stress free as possible
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