puppylove

On your worst days, if you still have important responsibilities what do you do? Like work, homework, chores... I don't want to let people down, or get remarks about "sitting on the couch all day", but basically that's all I can do on those days. There's probably a day a week when I'm "useless" but I still have homework deadlines, chores, walk my neighbors dog... Sorry if I'm rambling So what do you do on those days?

I went to a person like that at the start of my pots. The cracking really did make me feel better. But she tried to give me all kinds of supplements to take- they all had side effects and were not approved by the FDA.

Since yesterday I have been getting the weirdest new symptoms. They happen at the same time. The first is it's like I can't feel parts of my body. They don't feel numb if I touch them but when I'm just there it feels like I don't have hands, legs, etc. Also usually at the same time I will get this jolt feeling go through me.It feels like what happens when you doze off while sitting up. It's so strange. I took mestinon yesterday- but only one fourth of a pill once because I was afraid of side effects. Is this a side effect? It's been like 20 hours. Is it a pots symptom?

I took some the other night and it really seemed to help my GERD. I might start taking it everynight. Does anyone else take it? There are no side effects right?

My nieghbor told me about this job. You go and put cards in the slots and hallmark or CVS or wherever. At our hallmark you can chose when you go in to do it and it dosent take that long.

On my left hand there is this bulge right on one of my veins. The weird thing is when I take my bp with the cuff the bulge gets bigger and bigger and it HURTS. I take my bp once a day because my doctor wants me to monitor it, but I have been having to stop in the middle of it because that bulge spot on my vein hurts too much. Anyone know what this could be?

Ginger, melatonin, vitamin D, aloe Vera Sorry that's four

I know this is really old , but I have just been thinking lately that if this had never happened to me I would probably never have enough empathy for sick people, sick people's families, people going through hard things, or just people in general. I guess it is kind of a blessing in disguise because whenever I find myself judging anyone now, I stop and wonder what they are going through. So even though I'm still/ have been struggling for the past few years, I think Im starting to understand "why me" now, and I think it's making me a better person.

I agree with everyone, and I completely relate to what you're going through. About a year ago when I didn't know what was wrong me my friend who would sit with me at lunch told me she wasn't going to anymore because I was "boring" now. I didn't feel like talking because I felt like puking. Anyways, she was not the nicest friend to begin with, but my real friends have become so distant lately too. They really don't know what to say anymore, and I think they are tired of hearing me talk about it. I have to work to keep the friendship going since I don't go in to school anymore. But I'm going to keep trying because they are worth it. It's really lonely though and I always feel out of the loop. I'm sorry you're going through this too. (hugs)

I'm glad that help you so much! Thanks for letting us know- I will try it next time I go somewhere overstimulating. I also noticed the other day when I was having bad gastroparesis magnesium really helped with that too.

My neighborhood is having a supermoon party! I hope I feel good enough to go. And I hope it doesn't effect any of us!

Thanks!

I felt better after surgery too. Maybe because they gave me an IV?

I all kinds of GI issues and I think I get dehydrated when i'm losing liquids and I can't bring myself to drink. Also if you pull the skin on your hand up and it stays up for a second you are dehydrated because it should go right back down.

Thanks, i'm going to ask my doctor.

That sounds awful. I hope you feel better soon!

I'm feeling miserable and i think i'm getting dehydrated, but i'm too nauseous to drink. Does anyone know if I go to the ER, tell them I have POTS, and ask for fluids if they will give me some? Thanks.

Oh my gosh the preparing yourself for swallowing and food getting stuck started three years before I even got POTS. My mom actually took me to the doctor for it once and they said it was anxiety (of course )

Hi! Tummy issues are my worst symptoms and it definitely corresponds with other POTS symptoms. I'm not exactly sure if my stomach problems make it worse, or I just am worse in general on potsy days.

Katybug- Thanks for the info! If it's not too expensive I think I might try it.

I know it's crazy! We even had a class together and sat at the same table before we got sick. I wonder if something in that art classroom triggered it...

I just found out that another person in my grade has POTS. She gets really nauseous, like me, and she said going to this accupressure guy helps so much. He uses magnets instead of needles or that little pressure point thing. Has anyone done this? It's the first time I've heard of it...

I'm starting mestinon. Is anyone else on it? Has it helped you? Thanks.

My legs and arms turn such a dark purple, especially when I'm not moving around that it looks absolutely disgusting. Is there anything you can do besides compression clothes? If not, are there any you recommend? Thanks!

Wow!! That is so cool an exciting! I would probably say all your syndromes etc.,a little on how it effects you and your family, and definitely pick one to say the list of most common symptoms. I bet there are a lot of sick people with dysautonomia out there that don't know what's wrong with them, like I used to. If I had heard a list of symptoms I would have been able to know what I have. Let us know how it goes!