puppylove

Yep! My left kidney is fine but my right kidney is an ectopic kidney I think? It's not in the correct spot- it's by my belly button. All of the doctors I have seen say it can't cause problems, but I'm still going to look into it further.

Yep! My cousin has POTS and my aunt has CFS.

Yes! It's one of the sypmtoms I hate the most because it scares me. Usually it happens when i'm in a really bad POTS flare and can't eat/ sleep normally.

Yes. I can't even explain sometimes which is frustrating. I just say I feel "weird"...

I don't faint, so I don't really have anything to say about that but I'm really sorry you are feeling so horrible . (Hugs).

I'm getting a HIDA scan tomorrow to check my gallbladder. It's sounds simple but long. Is there anything POTS wise that might be a problem?

This thread is really old but I wanted to say I just got back from the circus, I decided to try again. This year went great! I got a little over stimulated and dizzy but I was okay and had fun. Wooo I must be making progress!

That's great!

Okay, thank you . Do you think it's helping?

Yes, they did a test using a biopsy.

I have my first appointment with a physical therapist tomorrow because my cardiologist thinks it would be a good way to get me back into exercise. They know what POTS is but they aren't specialists. I'm kind of scared because I have no idea what to expect and I went to a personal trainer once last year which was horrible... What does a physical therapist do? Thanks!

You feel like you can never win When you go out the room starts to spin The doctors don't know the real me So they tell me it's anxiety I drank water until I floated And all it did was make me bloated When I get up I fall to the floor And my skin looks like Barney the Dinosaur POTS really takes so much away But tomorrow will be a better day

It's really easy, I have had four. I asked for zofran and they gave me extra IV fluids and it was fine. My second one showed an ulcer/ lactose intolerance but the rest showed nothing.

That's great! So happy you're feeling better!!

Thinking of you. Sending positive vibes!