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About ken870

  • Birthday 07/12/1962

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    senoia georgia

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  1. Wmtate how long did it take for you to get your northera from Lundbeck I have been waiting now for 18 days and I haven't got it yet?
  2. Dops I did not know you could get Droxidopa now I thought it was Droxidopa was northera.
  3. I heard it is used to help people with dizziness and fainting when their blood pressure drops when they stand.
  4. I am wondering if anybody on this forum plan on using northera for their pots and if you do do you think it will help.
  5. I get that feeling a lot of times and it comes from hard knots that I have in my temples and the back of my head.
  6. I have vascular knots in the back of my head could this be vascular eds.
  7. It was very helpful thank you very much.
  8. My doctor told me they were vascular and I have had them since I had pots so a friend of mine who has pots and has the same knots said doctor Grubb told her it was Eds.
  9. I also have heel pain and knee pain when I sit for a long time or if I stand a long time.
  10. I was wondering I have knots and sore places on my temples and in the back of my head and someone told me it might be eds so I was thinking what does everyone on this forum think it is and do you have this symptom?
  11. Kayla the head of this event wanted you to get in touch with her about selling your shirts at the event.
  12. One more thing the holiday inn there is giving discounts to people who are going to the awareness celebration.
  13. It is going to be a big event where people with dysautonomia can get together and help each other with ideas on how to cope with this illness while their family and kids will have carnival games and raffles also there will be tshirts and charms there with designs on it showing how dysautonomia affects us the address is 2795 highway 134 at the cox Harley davidsons motorcycle place.
  14. It is a awareness celebration that will have speakers ,and a festival like setting like vendors,raffles and shirts and bracelets that tell all about dysautonomia also the money raised will help families with dysautonomia with their medical costs.
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