My doctor told me they were vascular and I have had them since I had pots so a friend of mine who has pots and has the same knots said doctor Grubb told her it was Eds.
I was wondering I have knots and sore places on my temples and in the back of my head and someone told me it might be eds so I was thinking what does everyone on this forum think it is and do you have this symptom?
It is going to be a big event where people with dysautonomia can get together and help each other with ideas on how to cope with this illness while their family and kids will have carnival games and raffles also there will be tshirts and charms there with designs on it showing how dysautonomia affects us the address is 2795 highway 134 at the cox Harley davidsons motorcycle place.
It is a awareness celebration that will have speakers ,and a festival like setting like vendors,raffles and shirts and bracelets that tell all about dysautonomia also the money raised will help families with dysautonomia with their medical costs.