puppylove

Yup. I hate long car rides for this reason!

Hi! Yes, this happens to me too. Only in the shower for some reason. So I guess it could be from blood vessels constricting? I don't really know, but your not alone with this symptom!

My mom found these capsules at Whole Foods that actually help me with bloating!! Not perfect but I definately notice a difference. It's Rapid Relief Gas and Bloating from Gaia Herbs. They are all natural made with charcoal and fennel seed. Just wanted to let you guys know!

That's great that you got diagnosed finally. So happy for you!

My friends sent me valentines today! A social life is what you do to interact with people. This website is my social life.

Yes. I have to concentrate hard to do simple things correctly. During Algebra homebound class the other day I could not remember what 6•5 was. The teacher looked at me like I was nuts.

Thanks everybody- you guys are so nice. Sometimes I just get in to this feeling sorry for myself mode- not good I know. But thanks for the new perspective. I'm going to call them tommrow.

My friends have ditched me. I'm in homebound schooling full time now and they don't come over or even call. I'm so lonely but I'm kind of too preoccupied with POTS right now to try to have a social life. My friends are my dogs and my family and my cardiologist. That's kind of pathetic. And of course everybody on this website , but obviously its not the same. And it's kind of upsetting that I'm just gone with some rare illness and they don't seem to notice/ care. Is it just my friends or did this happen to everybody?

Yeah everyones will to some extent. My cardiologist just did this with me and my mom (non disautonomic) and mine was shocking compared to hers. Blood pooling is one of my worst symptoms though...

I'm not sure why but the only time this happened to me was during my TTT. Literally, the nice nurse was wiping my face for me. Maybe when your heart rate spikes?

I'm very sorry for your loss. I have noticed crying more now that I have POTS. Hang in there. (hugs)

Can you see this picture? cid:B7FC3723-5A9E-4778-9C73-F7FEF931613E/photo.JPG

Thanks! Her name is Twix. She is such a good puppy!

Made my tummy feel worse (already my worst symptom), increased dizziness, constant goose bumps, felt really "weird". I took it for a while and was just like ok this is making me more miserable, so that's why I stopped.

Midodrine gave me intolerable side effects so I had to stop. I've never had mestonin...

Thank You!

I have seen this mentioned countless times and I kind of know what it is but I have some questions. What symptoms do you get with mast cell that differ from POTS? Do they think it caused by/ causes POTS? How do you get tested for it? Thanks!

Yep, especially pasta.

My bed is a loft bed and every night when I climb the ladder to get in to my bed I am out if breath and heart pounding when I lay down. It's rediculous.

That's great! Let me know if you liked him as much as I did guys!

I get similar itching but only on my calves. Taking a cold shower helps.

How do you post a picture?

Awesome! I hope your appointment goes well too!

I have tried acupuncture and all I noticed was that I seemed to be more relaxed after. Also, the same lady who does the acupunture is a herbal chiropractor and she specialized in Chinese medicine. I always felt so good after a chiropractic session with her but unfortunatley our insurance does not cover it anymore. I definitely think Chinese herbal medicine is not a bunch of bologna though because she did all these tests on me by holding her hands above me and feeling my "energy". This was before we knew I had POTS and we were grasping at straws. But, the results of her " tests" were that my autonomic system was out of whack. So she was right!

YES! YES! YES! I would definitely give it a try. I wish he would see everyone on this website who could not find a good POTS doctor. He knows about all the weird little symptoms everyone mentions. When he came in he was like oh yes your pupils are very dialated and you have bags under your eyes. Then he felt my hand and he was like very cold, but sweaty oh yes you have POTS. I wanted to ask him where he has been the past three years when I tell so many doctors about this weird stuff and all my other symptoms and they just stare blankly at me and tell me I'm anxious.