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sue1234

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About sue1234

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  1. I'm thinking of the obvious question, but do you take any anti-depressants or OTC supplements to boost serotonin? If not, your doctor might need to think about Carcinoid and investigate down that path.
  2. How is everyone doing that was on this thread? So far, I'm okay and hunkered down. My new functional med doctor said if I get the symptoms, he will call out Plaquenil and Azithromycin for me.
  3. About five years ago, my 8 a.m. cortisol was trending above range a little, with a high-normal ACTH. Starting two years ago, it started trending down. In the beginning of last year, it was at the bottom of the normal range (around 5) with an ACTH sitting inappropriately low-normal (around 11), and my new endo did a Cortrosyn stimulation test in September. It came back 0.2 points BELOW the cut-off of normal stimulation(18 is the cut-off), but he said I was just fine and it was nothing to worry about. (I beg to differ). From my research, I think I have a pituitary that is not working correc
  4. Have they thoroughly investigated your blood glucose levels, especially for a few hours after eating? Some forms of weight-loss surgery, specifically the Roux-en-Y, can cause people to have severe hypoglycemia. I haven't had weight-loss surgery, but I have had low blood sugar for a few decades, and the symptoms can be what you listed.
  5. @bombsh3ll What's the latest with you? Did you find more help? After reading this whole thread, I personally think POTS is only a symptom of another underlying cause. It is similar to having a fever, as it is just a consequence of something else going on. I will continue to look for the root cause after it POTS came on suddenly 14 years ago.
  6. I'm not sure what you mean by this...are you taking cortisol supplements already, before this low potassium lab test?
  7. Do you know if your cortisol is elevated? Having Cushing's Disease can cause low potassium.
  8. I did not have fatigue when my POTS began, but in the last few years, it has made an appearance and gotten bad. I don't take any meds, so nothing to cause it. It is my most debilitating symptom now.
  9. We already tend to vasodilate from standing in pretty much one space. Add heat from the shower, and it really amps it up faster. When that happens and less blood is getting back to the heart, it makes the adrenals spit out noradrenaline to help vasoconstrict that blood back up to the heart. That is why you get an adrenaline rush. As mentioned, cool showers are better.
  10. Kim, My sister does have the family holiday gatherings now, but I guess I meant that I was always making an effort to be available for various things and be involved within the family, but it seems no one ever does this back. I am not on disability. My husband has a decent job, and I didn't work but a year back in the 90s. I guess after no one in my family wanted to sit down and find out why I can't do anything anymore, I don't feel I want to include them in any of my health issues. I feel like they haven't earned the right to know anything that goes on, because they showed no
  11. I've had POTS for 13 years, and had quit driving before that. I did not have a sibling even inquire what was wrong with me, much less step forward to maybe drive me to dinner, etc., back when I could at least walk 20 feet into a restaurant and sit at a table(can't sit up like that anymore). Before POTS, my mom drove me most places, since we did things together. After POTS hit and limited me to mostly staying at home, pretty much no one came to help or even visit. I even had a hip replacement while having POTS, and not even a meal was brought over. Anyway, I did continue to go visit my eld
  12. Katie, did you go see Schofield? I have an appt. with her next Tuesday.
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