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  • NIH supported research is being conducted by the Rare Disease Clinical Research Network on the impact that the COVID pandemic is having on people living with rare diseases.  You do NOT have to have been tested for COVID or have had symptoms of illness, the only criteria is to be under 90 years old and to have a rare disease.  Caretakers or parents of children with rare diseases are also encouraged to participate.  Read more about the goals of the study and the process at this link: https://www.rarediseasesnetwork.org/COVIDsurvey

     

  1. DINET Forums

    1. Dysautonomia Discussion

      A place to discuss all topics related to dysautonomia.

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    2. Information and Announcements

      Information and announcements posted by the Dysautonomia Information Network.

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    3. Chit-Chat Forum

      An "off topic" forum where you can talk with friends about things other than dysautonomia.

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