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  • NIH supported research is being conducted by the Rare Disease Clinical Research Network on the impact that the COVID pandemic is having on people living with rare diseases.  You do NOT have to have been tested for COVID or have had symptoms of illness, the only criteria is to be under 90 years old and to have a rare disease.  Caretakers or parents of children with rare diseases are also encouraged to participate.  Read more about the goals of the study and the process at this link: https://www.rarediseasesnetwork.org/COVIDsurvey

     

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