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Dysautonomia information geared toward children can be found at:

The Children's Heart Institute:

Dysautonomia Youth Network of America:

Nationwide Children's Hospital:

Children's Hospital of Chicago:


Chronic Illness

Rest Ministries:



Social Security Administration's Adult listing of Impairments:

Social Security Administration's Childhood Listing of Impairments:

Apply for Social Security Online (Adult):

Apply for Social Security Online (child):

Disability Secrets:

Florida Woman Claims she was Unfairly Denied Unum Payments:

National Organization on Disability:

Online Lawyer Source


Job Accommodation Network:

U.S. Department of Labor Office of Disability Employment Policy:

Medical Bills

Giving a Chance Foundation (for members with Chiari I Malformation, Syringomyelia, Basilar Invagination, Tethered Cord, Ehlers Danlos, Heriditary Disorders of the Connective Tissue, Pseudotumor Cerebri, etc.)


Find prescription drug programs for which you may qualify:


Air Care Alliance:

Angel Flight:

The National Patient Air Transport Helpline:

*This page is a work in progress. New links will continually be added. If you would like to volunteer to find links for this page, please let us know.

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