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Children

Dysautonomia information geared toward children can be found at:

The Children's Heart Institute: http://www.childrensheartinstitute.org/

Dysautonomia Youth Network of America: http://www.dynakids.org

Nationwide Children's Hospital: http://www.nationwidechildrens.org/postural-orthostatic-tachycardia-syndrome-clinic

Children's Hospital of Chicago: https://www.luriechildrens.org/en-us/care-services/specialties-services/center-for-autonomic-medicine/diagnosis-treatments/Pages/inpatient-outpatient-treatment.aspx

 

Chronic Illness

Rest Ministries:
http://www.mychronicillness.com/

 

Disability

Social Security Administration's Adult listing of Impairments:
https://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm

Social Security Administration's Childhood Listing of Impairments:
https://www.ssa.gov/disability/professionals/bluebook/ChildhoodListings.htm

Apply for Social Security Online (Adult):
https://www.ssa.gov/disabilityssi/

Apply for Social Security Online (child):

https://www.ssa.gov/disabilityssi/apply-child.html

Disability Secrets:
http://www.disabilitysecrets.com/

Florida Woman Claims she was Unfairly Denied Unum Payments:
http://www.chattanoogan.com/articles/article_29001.asp

National Organization on Disability:
http://www.nod.org

Online Lawyer Source
http://www.onlinelawyersource.com/social-security-disability/index.html

Employment

Job Accommodation Network:
http://janweb.icdi.wvu.edu/

U.S. Department of Labor Office of Disability Employment Policy:
http://www.dol.gov/odep/

Medical Bills

Giving a Chance Foundation (for members with Chiari I Malformation, Syringomyelia, Basilar Invagination, Tethered Cord, Ehlers Danlos, Hereditary Disorders of the Connective Tissue, Pseudotumor Cerebri, etc.)
http://www.givingachance.org/

Medication

Find prescription drug programs for which you may qualify:
https://www.pparx.org/Intro.php

Transportation

Air Care Alliance:
www.aircareall.org

Angel Flight:
www.angelflightamerica.org

The National Patient Air Transport Helpline:
http://www.patienttravel.org/


*This page is a work in progress. New links will continually be added. If you would like to volunteer to find links to add to this page, please let us know




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