Darlene

i just picked up some chromolyn sodium tonight. does $1,000 for a 24 day supply sound right? i have never taken this before, and not sure how to take this. the pharmacist gave me my meds and never said anything about it other then he has never give this to anyone before. i dont know if i should start out with a few vials, and work my way up or take 8 in one day as prescribed. it says to take 4 times a day a 1/2 hour before you eat. i wonder if its ok if you do not eat with the 4 th dose, the last dose you take before bed. if any of you have taken this, did u experience any side effects?

i too am nauseous quite a bit. try to drink ensure if you can. have you thought about taking a beta blocker for your tachycardia or klonopin for anxiety? lexapro can help POTS symptoms and anxiety both.

i felt like i was going to pass out 24/7 and was vomiting just about every day before being prescribed lexapro and metoprolol. my heart rate was high, felt like some kind of adrenal surge. these meds help calm my nervous system. i take 50 mg twice a day. start off slow. like cut the pill in half. made me tired at first, but this will go away.

does dysautonomia cause floaters? i have several in both eyes, especially the right. don't think having that many can be normal. drives me insane.

mitochondria, chemical exposure, small fiber neuropathy

something is not right with my right eye, and its been this way for about 3 years. its feels like my eye is attached to rubber bands. not really sure how to describe the feeling. and its a little blurry. wonder how i can make that annoying feeling go away. its bad enough i have tons of floaters in both eyes.

not sure why the dr. called me in. she didnt tell me anything i didnt already know. that my vitamin d level was still low and my ANA is still positive. i m always in pain, and a dr. told me dysautonomia alone wouldnt cause all that pain. i think there is something the dr. is missing.

i have lost lots of hair. i found out about 6 months ago my vitamin d was low. not sure if its from that or not.

i am having a hard time dealing with the things i can't do anymore because of dysautonomia. i just started going to counseling recently. i also think the dr.'s a missing something. i am always in pain, and dysautonomia alone wouldnt cause this.

the last time i went to the rhuematologist he checked me for lupus and stuff like that. my ANA was positive and my vitamin d was low. well, i have taken 50,000 IUs of vitamin d once a week for 6 months now, and levels still haven't came up. i was telling my cousin who is a dr. how i sick i had been, and how much pain i had been in... and how i think there is a cause of my dysautonomia that the dr.'s are not are not finding it. i told him i didnt feel like i was getting anywhere with my family dr. or dr. grubb. he said go back to your rheumatologist and see if he will run more tests, thyroid and stuff. i had tons of blood work drawn. the results came back, and my rheumatologist must had faxed the labs to my family dr, cause my family dr called and said she wanted to see me. i am so tired of dr.'s like my family dr. and grubb prescribing me meds to cover up the symptoms instead of do testing to find the cause. if they can't help me, then send me to someone who can like cleveland clinic. i keep wondering why my ana is always positive, makes me think whatever is wrong with me is autoimmune. i have brain lesion too, so i have wondered if whatever is wrong with me has caused that too. i ve been trying to put the pieces together for 7 years now.

i seen my rheumatologist about 2 weeks ago, he ordered tons of blood work. He must had sent the results to my family dr. because she called this morning wanting to see me. does this mean something is wrong. usually when my labs come back normal i dont hear from them.

i m afraid of going to sleep because this is when i experience tachycardia

no, vitamin d does not make me nauseated. and no, i havent spoken to my dr. about this. my neurologist called to tell me it was low, she never said to follow up with my dr. but i would assume i most definitely should. i am really sick of going to doctors though. they don't help you. like i am in pain all the time, i have burning inside my body (adrenaline surge?), tingling and numbness in hands and feet... i could go on and on. they never do any testing to see whats causing any of it. next time i see grubb i am going to ask if he can refer me to the Cleveland clinic. and if they don't help me, i give up. i don't understand why they can't give me something for pain. they give them them to drug seekers, but not the ones that need them i guess. dr. grubb suspects mast cell and told me to take h1 and h2 blockers. all i can say is, i am so tired of being sick. i have been denied for ssi twice, but am hoping to get approved at the hearing. not sure why i get denied. do they think i would go to college for several years if i wanted to be on ssi. so frustrated.

‎7 months ago my rheumatologist told me my i was deficient in vitamin d and prescribed 50,000 IU once a week. well, i have been taking the vitamin d for 7 months, had my blood drawn the other day, and my vitamin d level is still exactly the same. makes me wonder who else i could be deficient in. who can i talk to, to find out how i can raise my vitamin d level? and wonder what would cause it to be so low when i ve been take high doses of vitamin d.

i m having a hard time myself dealing with dysautonomia and chronic pain. i see a very good cardiologist (grubb) and neurologist, but don't feel like i am getting anyway. you would think they would do extensive testing to find the cause. their has to be a reason i have chronic nausea, burning inside my body, fast heart rate, dizziness, chronic pain, lesions in my brain... i go to counseling for the 1st time tomorrow, not sure if it will help but worth a try i guess.

i have a herniated disc, L5S1. i have tried motrin 800, percocet 5/325, flexeril, mobic, naproxen, and tylenol. in the ER they gave me an injection of toradol, a percocet, flexeril and that didnt work either. i ve tried pt and chiropractors too. don't want to do surgery because i know a few people who had surgery and it didnt work, and dont want to do steroid injections because of that outbreak that killed several people. is there a med that can help me deal with daily pain?

i applied for ssi about 8 months ago. i have been denied twice. about how long does it usually take to get a hearing? the denial letters say i can adjust to some kind of work. if that was the case, don't they think that's what i would be doing that. i feel so sick, pretty much everyday. the people that decide my case, i bet they miss work when they have the flu. well, that's how i feel every day.

what causes this chronic nausea? i try to eat, but full after 3 bites. i try to drink ensure once a day. and i know i am not getting the fluids i need. hard to eat and drink when you are so nauseous.

i have been experiencing muscle twitching under both eyes for the past few weeks.What can i do to make this go away.

it ruins everything for me too. went to college for nothing. 7 years even. can't work now. or go on vacations or do stuff with my family. depressing a little.

not me. symptoms to unpredictable. do drive when i am feeling ok. mostly have my daughter drive.

http://forward.com/articles/7940/treatment-seen-for-familial-dysautonomia/

metoprolol 50 mg, twice a day

hate the fluorescent lights in Walmart. and when i get my eyes checked, the light they shine in your eyes. and the strobe lights at spook houses.

i was dx with fibromyalgia. my mom was dx with fibromyalgia too. my want went to the cleveland clinic, she said the dr. their didnt believe in it. he told her, "your son is dead, thats why your in pain". i never knew that til the other day. wish i would had been there. i would had went psycho on him.