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Darlene

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Everything posted by Darlene

  1. i woke up in the night with a charlie horse in my leg.. i wonder if i have an electrolyte imbalance. the thing i don't get is how i can pee several times a day when i m not consuming any liquid.
  2. dkd, no.. she did not do lab work. but i think she should had.
  3. my daughter is having this burning pain on her right side that goes from her chest to her back (pain worse after eating greasy foods) she has had a scope down her belly, cat scan & ultrasound on her gall bladder and hida scan. the lady who did her hida scan said her gal bladder didn't show anything til towards the end of the test. her family dr said her hida scan came back normal. can you have a normal ultrasound and hida scan, but still have gall bladder issues?
  4. i went to the dr... she checked my urine, no infection. something has to be wrong, my pee was browner than beer and i have never had the ammonia smell before. can't be anything i am eating because i am not eating anything different that i ever have.
  5. does it ever feel like someone hooked you up to an IV and sent fire through it? i m not sure if it's adrenal surges, or neuropathy. i do have mild polyneuropathy on my right side.
  6. i have a new symptom. this has never happened before, and i am embarrassed to tell my dr. my urine smells like ammonia. also, i have had this funny taste in my mouth, not sure if it tastes like acid or metal. i am a very clean person, don't want the dr. to think i am not. has anyone else has these same symptoms?
  7. oh, it was my neurologist who did the injections. he said he was going to used lidocain and kenalog.
  8. tyvm western mass. i m not getting them injections again. feels like someone set my face on fire.
  9. i had gotten these trigger point injections the other day in my shoulders and neck, very painful.. the next day i woke up and my face and neck was red and hot to touch.. i think there was lidocaine and kenalog in the injection. what would cause my face to turn red like that and feel hot? i don't know if i should get these injections again.
  10. i was taking 50,000 IU's (prescription) once a week for a year, my level did not come up. i started taking d3 2,000 once a day, and my level came up.
  11. does the gall bladder cause pain underneath right rib cage that wraps around to the back, nausea and hurts to take a deep breath?
  12. before eating a few hours ago my heart rate was 63, after eating my hr was 95. anyone else?
  13. i have had this metallic taste in my mouth for a week. i brush, i flush and use mouth wash. the taste is make me nauseous. anyone else have this.i see the doctor about this.
  14. has anyone tried low dose altrexone for POTS? if so, did it help? http://www.lowdosenaltrexone.org/
  15. i pee several times, and a big amount. i don't drink more than 500 mls a day. i really think i pee out more than i take it.
  16. i have a crazy range of symptoms i have had for the last 12 yrs, they are spontaneous and unpredictable heart feels like its pounding hard, feels like heart skipping a beat, palpitations, fast heart rate (especially during rest) burning sensations inside my body like someone hooked me to an IV and sent fire through it facial flushing, severe sweating/heat intolerance frequent urination, heartburn, belly pain, diarrhea(chromyln sodium has helps some) see visual like snow, static, not sure how to explain it... really noticed in places with florescent lighting like Walmart see several floaters light and noise sensitivity memory issues, trouble finding words visual blurring/tunneling (depersonalization feeling) lightheadedness/dizziness (funny feeling in front part of brain) hair loss (2010) out of breath easily(feeling like i m not getting enough oxygen), exercise intolerance muscle weakness (can't walk up steps without experiencing high heart rate and difficulty breathing), (muscles weakness mostly in upper legs and upper arms.... sometimes its uncomfortable just to hold a news paper or hold my arms up to wash my hair) difficulty swallowing vibration/buzzing feeling in random places of my body muscle twitching/muscle spasms tingling sensations in hands and feet muscle/joint pain mostly in low back and neck/shoulders (difficulty holding head up at times) back pain so bad at times i can't wipe my own butt(hernaited disc L5S1) itching (sometime my whole body itches real bad), sometimes i feel itching on the inside like systemic rash sometimes it feels like someone is rubbing ice on my skin and other times fire headaches (with and without auras) fatigue nausea don't feel right when my sugar drops below 72 feeling like a lump in my throat (allergies?) anxiety/panic attacks (secondary to dysautonomia/mast cell activation syndrome?) sleep disturbances difficulty with foods and drinks (sausage, cheddar cheese, foods that contain msg's, fake sugar. alcohol, sauerkraut, pickles, yogurt, pizza, spicy foods, shrimp, eggs, bananas, cinnamon, vinegar, flu shot, z pack, etc.) how i spend a typical day I get up(most of the time i am dizzi, nauseous, not feeling right(depersonilization like feeling), i lay in bed for a bit, then i get up and go to the bathroom, take my medicine, take a bath, then put my pj's back on and lay back down. i m am nauseous most of the time, i drink ensure for lunch. my daughter cooks dinner. i try to drink plenty of fluids but its hard to do when your nauseous.
  17. i had my hearing today. when i got there my lawyer told me he didn't like the judge that was there today. he was hoping for one of the other judges... guess he doesnt approve to many cases. to make a long story short... i went into the room, the lawyer sat beside me, there was a lady in front of us typing, the judge was on a big screen and the job coach was on the phone. the judge asked me why i thought i couldnt work, i told him... the jusge asked the job coach if there was a job i could do, he said "no". the lawyer and i left the room... the lawyer said "you will get a letter in a few weeks, most likely in your favor.
  18. my hearing is tuesday, if my case is approved i m sure i won't get more than $710. do you get more if you have a dependent, and do you know how much more
  19. you need more positive tests besides ana to have lupus
  20. for those of you who have been to a hearing... what can i expect? the layer said the judge will ask me a few questions and then the lawyer will have some things to say to the judge. my appt. is at 9 am, but he told me to be there at 8:15 am and to dress plain (no tee shirt with writings, jewelry or makeup). i m not sure what to say when the judge asks me what symptoms prevent me from working. i can not work mainly because i don't feel good... nausea, diarrhea, belly pain, etc. people don't work when they have the flu. well, that's how i pretty much feel everyday. i feel funny, like a depersonalization type feeling(not getting enough oxygen to my brain?), lightheaded/dizzy... sometimes the symptoms(episodes) accompany systemic burning sensations. i will not drive by myself anymore because i do not want to be alone when i have an episode. i can't drive more than 14 miles past my house without having anxiety. i get confused sometimes, and i can feel when its happening... i can't think of words or make sense. i also have a ruptured disc L5S1 with nerve disc compression, and sometimes i cant even wipe my own butt. i do have a few college degrees, not sure if this goes against me. anyway, just curious what to expect other then what the lawyer told me.
  21. i seen my cardiologist yesterday... after leaving my appt. i felt disappointed... i have never felt disappointed after leaving his office... not sure why people fly from all over the world to see him... anyway, when i have these episodes i write them down (memory isn't good)... and give him the paper, with the symptoms/episodes i had been having... he didn't even read my paper (he always has before)... i told him about the burning sensations i keep having, like someone hooked an IV to me and sent fire though it, etc., i have been telling him about these episodes for 8 years... he does not know what is causing this... i asked him if cleveland clinic may be beneficial, and he said if "no"... well, i think CC could be beneficial... don't you? if you don't know whats causing these symptoms, then shouldn't you send me to someone who can... i know CC does extensive testing, as my cardiologist does not... i am pretty sure there is a cause of my dysatuonomia... what would it hurt to rule out lyme, mitochondria, or whatever can cause systemic burning. .... or maybe there is no cause, and this is the best i will ever feel... i can not spend the rest of my life like this... i can handle the severe pain, nausea, headaches... it's the scary symptoms i don't like... like feeling weird/like a depersonalization feeling/light headedness, weak feeling in my body, and the systemic fire feeling... i have looked at past medical records where he says "i think another disease process is going on"... he seemed pretty tired yesterday, he yawned a few times, and stared at me several times without saying anything (talk about awkward silence), seemed like he was distracted... i feel like my appointments this past year or 2 have been a waste... i have seen a neurologist where an mri revealed several white matter lesions (frontal white matter), and i have had an emg that shows mild polyneuropathy... i seen a rheumatologist and he ordered lots of labs which show positive ANA and Histone and low vitamin d... with the brain lesions, mild polyneuropathy, and 3 positive ANA blood tests maybe there is a connection... i'm tired of going to dr.'s if they are just gonna waste my time... what can i do?
  22. my cousin had his tilt table test a few days ago... i got to be in there with him... his bp started out at about 138/82 and his hr about 91... as soon as them tipped him upright his bp and hr went up, and after given him the nitroglycerin his bp went to about 148/114 and is hr when to 172... he had visual disturbances, had a burning sensation in the front part of his head, felt like he was gonna pass out, was twitching, vomiting, & sweating. would you say this is hyper-pots?
  23. whos doing the muscle biopsy? i get burning sensations inside my body. but no dr. knows what this is or tries to find out what out. are they doing to biopsy to find the cause of the burning?
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