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Darlene

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Everything posted by Darlene

  1. i did contact the cleveland clinic. i think they said they took medicaid, but not paramount advantage. unless that was afrin in south carolina. i should call my ins company.
  2. has anyone of you had an EMG done? how uncomfortable. the needles they poked me with several times didn't bother me, but i didn't care for them zapping me with these electrodes. he was just going to do my legs, but it showed neuropathy so he decided to do my arms too. hope i don't have to do that again. anyway, what causes neuropathy?
  3. i live in toledo ohio and my insurance is paramount advantage, the medicaid kind. the cleveland clinic does not take paramount advantage. how can i get paramount advantage to pay for a visit to the cleveland clinic?
  4. http://en.wikipedia.org/wiki/Prostaglandin_D2
  5. they didn't do the cat scan, instead they did a nuclear scan. i had to inhale the radioactive substance into my lungs, and they took pics. then they gave me an injection with the radioactive material and took more pics. the lady that did my scan said she has never seen anyone react to the injection. i did fine, no side effects. if some of you are allergic to the contrast dye they use in cat scans, instead of using pre medication... hows come you just don't get the nuclear scan instead?
  6. speaking of adrenaline surge. something happened to me last night. i had gotten this burning sensation inside my body, my pupils were dilated and things looked foggy. i was scared. i didn't know if i was having a mast cell attack or my nervous system is just really whacky. i wonder if Methyldopa and clonidine could help me. these episodes have to stop. scares the heck out me.
  7. is there medicine to keep this from happening?
  8. sometimes it feels like the skin on my legs are on fire, i have had this feeling on my arms, chest and back too. then sometimes it feels like someone is running ice on my skin. what do u think this is?
  9. something weird just happened to me. everything started to look funny, then i felt this burning sensation inside my body, & my heart was racing. i looked in the mirror and my eye were dilated. i didn't know if i was going to pass out or what. i went outside and stood for a minute in the cold weather. i get these burning sensations quite a bit. anyone else? i wish this would stop. it scares me when this happens.
  10. same thing happens to me too. maybe you have to much histamine in your body. do u have mcad?
  11. wow. i was told it takes months to see improvement.
  12. well, they couldn't do the test. both contrast dyes contain iodine. they are going to do a nuclear scan(whatever that means). he said you have to inhale something. its tomorrow at 11. he said if i had difficulty breathing tonight or chest pains to go to the er. i do have difficulty breathing, but i would assume from the bronchitis and asthma.
  13. i have had difficulty breathing for quite some time. i have bronchitis now... breathing machine helps. anyway, the dr. did a d dimer blood test, and it came back elevated. she wants me to get a ct angiogram. i said the only way i will do it is if they use non iodine based contrast. she asked if i reacted to it before, i said "no, but i have mcad, and don't want to taking any chances". she is suppose to call me back with an appt. i wonder what causes the d dimer to be elevated? has anyone ever had a ct scan angiogram? did you react to the non iodine based contrast?
  14. you ever watch an old tv film and it flickers... do u ever see that in your vision? wonder if its from starring at the computer day after day.
  15. i am taking cipro. the dr. gave me a breathing machine. i have only done one treatment so far, havent really noticed any improvement yet. they did give me prednisone, but afraid to take it. i had high cortisol levels once in the past... not sure how it is now, but was thinking if its still high this med probably wouldnt be good. but i dont really know.
  16. my other symptoms are stuff nose, coughing, lungs were burning, but now it just hurts to breath, i woke up earlier this morning with difficulty breathing, going back to the dr. at 2, its pretty scary when i cant breath, so i hope they can help
  17. can bronchitis make you hurt all over? i m in so much pain.
  18. yes, they said my lungs sound clear. i do have an inhaler called symbicort. i hate this shaking stuff. and i hurt all over. i alternate from Motrin 800 and Tylenol.
  19. ANA positive 1:80 homogenous, free t4 a tiny bit low, vitamin d low, histone ab high, dna(ds)ab high, multiple signal abnormalities, periventricular in nature, predominantly on the right side. there are atleast 6 lesions, CBC: mpv - low, segs- low, eos- low, phosphatid IGG high
  20. does bronchitis cause chills? i went to the hospital in the night, they did a lung xray and said i have bronchitis. i am taking cipro. i am sooo cold, i am shaking like i am standing outside in zero degree weather. is there anything i can do to keep warm. and my body hurts all over. they checked me for the influenza and it as negative. 1st time i had that done... they stuck a q tip up my nose and it touch the back of my throat. defiantly worse then a catheter.
  21. what meds do you take for tachycardia, and what med do you take to help breathing issues besides singulair or symbicort?
  22. thanks for listening. i do see dr. blair grubb, and never met such a compassionate dr. he did prescribe gastrocrom the last time i was there, so i hope it helps.
  23. My rheumatologist referred me to a neurologist. He kept asking me if i went through a trauma or if i was abused or sexually assaulted. What the **** does that have to do with anything? I told him, "I know where you are going with this, you think it's all in my head". I said, "I had a good life growing up, no trauma, no abuse of any kind". Then he asked me if I had anxiety. I said, "yes, but i think it is secondary to dysautonomia or mcad". he said dysautonomia doesn't cause anxiety lol. I said, "you don't know about dysautonomiathen, because it can cause anxiety". Then he asked me if i was depressed. I said, "no". he said every person with dysautonomia is depressed. he said, "why do you think the first they prescribe is ssri's". i think this dr. thinks dysautonomia is all in a persons head. here is why dr.'s use ssri's.. SSRI's are used because serotonin is the principal neurotransmitter that the brain uses to govern autonomic control, in particular to govern blood pressure. some patients with autonomic disorders may have disturbances in central serotonin production and regulation. SSRI treatment can suppress the sympathetic nervous system. SSRI's may also be effective in treating the chest pain that is associated with dysautonomia. We are given ssri's, because they can help our symptoms, not because the dr. thinks we're nuts. he said i was wasting his time, and that he had two other people waiting for him. how am i wasting his time? i m not the one who wanted to go there. my rheumatologist referred me to him. Why did he act this way? I m not going back there again.
  24. what meds or combination of meds do you take for gerd? thank you.
  25. before lexapro i felt like i was going to pass out 24/7. my bp was pretty low. with lexapro my bp is normal. it did cause weight gain, but i am super sick without lexapro. i hate the weight gain, but would rather be heavier and feel better then be thin and feel like i am dying. i cant take snri, the norepinephrine makes my tachycardia worse.
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