Darlene

we had a reverse osmosis system. now i live in town, and do not like the taste of clorine. i only drink bottle water (dasani), and vitamin water.

what is the difference between Small Fiber Peripheral Neuropathy and autonomic neuropathy? i get this burning sensation inside my body, feels like someone set fire to the inside of ym arms, back and face. then i have frequent urination and diarrhea after an attack. some of u say it sounds like mcad. dr. grubb said its probably peripherial neuropathy. it's there a test someone can do to see what causes the burning. i aslo get this burning feeling in my feet, and no i dont have sugar. but i think the burning feeling in my feet may be seprrate from the burning inside my arms, back and face. was causes neuropathy? and does it cause pots?

i just started taking magnesium recently, and for some reason has helped with my tachycardia.

i m not sure what the dr.'s notes would say. how do they know what i go through everyday? they don't. if u own 2 cars, one is probably worth 3500/4000 and the other 6500, can u still aplly for disability?

if he's a pots dr. then he would know u can get symptoms anytime

well, i think i am going to file for disability. i was dx with POTS in 2005, although I have been sick since 2001. i felt like i was on my death bed in 05. since the dx i did gradually get better. even though i could not work, i did not file for disability because i thought i would continue to get better, better enough to work, but i'm not. i really think there is something else going on besides POTS. but, i guess i will never know. and do not have money to drive to mayo or vanderbilt. how do i go about disability? can i do it online?

i was dx with POTS. my symptoms happen anytime, even when sitting or laying down. when first dx i felt like i was going pass out 24/7, even when i was laying down. not sure why they call it POTS. i just think my nervous system doesnt work right. your nervous system controls things like body temp (i can be hot one minute and chilld/freezing the next) it controls heart rate (i get tachycardia, worse when laying down), it controls pupil dialtion and my pupils look like they r always spasming, it controls respiration (for years i couldn't breath). i can't sit for a long period of time, or stand. i ve been sick for 10 years, kept thinking i was going to get better, but starting to accept that i am not. thinking of filing for disability myself. i feel like such a loser. and if i did work, it would mean driving, and this i don't do much cause half the time i feel funny. who this that rich, your dr. or the lawyer?

i am 5'2" was 128/138 til my late 20's then went to 172 lbs. then when i had gotten deathly sick with dysautonomia i went down to 155 lbs. i was put on lexapro and metaprolol and my weight went to 195 lbs. i am not 212 lbs. i think from meds and being inactiv since being sick.

i ve been having low back pain since 2001. i ve been to chiropractors and physical therapy in the past, but it didnt help. i recently asked for an mri, they said most of the time your ins wont cover it unless u have been to physical therapy. so, i went back to physical therapy, my last day was thursday. monday i started having severe pain again. i don't understand whats going on. i get this severe pain in my lower back, can't walk for about a week, it gets better then a month or two later i get the severe pain again. its a repeated cycle. i went to the ER 2 months ago cause the pain was so bad, and the pills and injection for pain didn't even work. has this happened to anyone else, or know what this could possibly caused from. i ve been ill since 2002. dysautonomia and severe low back pain. if i would had job the last 10 years, i would had missed several days. i have not filed for disability cause i keep thinking i will get better. but i should realize by now i probably won't, and file. i didnt go to college to not be able to use my education. i don't even have enoigh credits dor disability, so what would I receieve? $700 a month (this is what my friend gets who didnt have enough credits). this isnt the life i want to live. being sick and broke. i want to feel good, and go to work every day, and own my own home. i m having a hard time accepting this will probably never happen.

like i said in a previous post i have low vitamin d. dr. gave me a prescription, but never rechecked to see if my d came up. i ve been taking citracal but it makes me nauseated. what vitamin d is best to take?

artificial sugar, msg's, green tea... anything that stimulates my nervous system

i see dr. grubb, but when i talk about a symtpom for example; this burning sensation i get inside my arms, back and face and the increased urination and diarrhea after an attack. he doesn't say what it could be. i ve been seeing him since 2005, and see him about every six months. the guy is very compassionate, and takes time to listen but isn't helping me. is there someone more knowledgeable about dysautonomia. cleveland clinic maybe?

yes i did. think it helped my POTS symptoms too.

they don't do anything

when the rheumatologist gave me a prescription for vitamin d he gave me 4 50,000 IU's capsules to take once a week for a month. well i'm on my last pill, and asked him if he was going to give me more. he said no. i said are you going to do another blood test to see if it came up. he said no, the 4 pills you took should have brought it up. how does he really know? anyway, hope hes right. i myself think he should had checked it again. then i told him about some new symtpoms, about how i have been having muscle twitches. he said its from anxiety/stress. i laughed at him and said i don't have anxiety or stress. i said dr.'s alway say that. let me guess, my low vitamin d levels are caused from stress to, haha. definately lost my faith in dr's.

i feel better when i am heavier. when i was 155 my bp was low, now that i ve gained 40 lbs my bp is normal.

i was put on isoniazid because of a positive tb test; i was suppose to take it for 9 months, but the dr. took me off after 7 months. it made me very sick, and made my liver enzymes high. i can take an ssri, but not a ssnri.

the past few days i have been having muscle twitching. i think thats what you call it. it feels like there is a grasshopper inside me. my labs did show low albumin and vitamin d. not sure if this could cause it.

are amino acids the same thing as protein? i had some labs done, and have low albumin. i assume i do not eat enough protein. if i take an amino acid supplement, will this help bring it up?

Is there a such thing as an amino acid blood test?

what does albumin have to do with the liver? thought it was the kidneys. my liver function was high due to a medication called isoniazid, but has returned to normal since i quit taking it. what is plasma volume?

i posted recently i was deficient in vitamin d. my albumin level r low too. does anyone have this problem?

my rheumatologist just called, said my vitamin d levels were pretty low. could this have caused all the pain i ve been in, and other symptoms i thought were caused from dysautonomia.

macs mom, may i ask what med regimine u are on.

my rheumatologist is testing me for celiac, well... i just started a gluten free diet a few weeks ago. wouldn't that make the labs inaccurate? i also had a postive ANA recently, and he is checking for lupus. he did say he didnt think i had it. he did talk about fibromyalgia (which i have been dx with a while back). i asked him what caused it. he said something about the brain, and asked if i have tried cymbalta. does the dr. think i'm nuts? i don't see how cymbalta is going to help stop pain. percocet and a toradol injection doesn't even help. and i am tired of hearing lose weight and exercise. i am pretty sure that isnt gonna cure the pain. have they thought maybe i have something they r missing. like mast cell, lyme, or whatever else cause pain