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L4UR3N

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About L4UR3N

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    Advanced Member

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  • Gender
    Female
  • Location
    PA
  • Interests
    Horses, painting/drawing, playing guitar & piano, enjoying all the beauty that God has created just for us.

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  1. Sorry for the delay in posting! I'd like to answer some of your questions-- hopefully I get them all! If I miss some, just ask again lol . Coconut oil- YES!! I use lots of coconut oil, and olive oil. Those are really the only two oils I use. I stay away from all the rest!!! (including if it is just an ingredient IN something). Medications - I am not on any meds at all, just vitamins (some of which are higher than normal doses) and the minerals found in my water. Diet- as far as the Paleo goes, I should say what I follow could be considered a modification because I do still consume milk and da
  2. Hello! I know I have not posted anything in a long time, and partly that is because I have been doing much better!! I would like to share with all of you what has helped me, in case it could possibly help someone else too. I dont want to mislead any of you, because I am not "cured" of dysautonomia. My symptoms however are greatly improved, and some days I feel as if I have none at all. My heart still races when I walk up the stairs, and I suspect it always will. I am realistic in my expectations and do not expect to ever be "cured". I have Ehlers Danlos and unfortunately you cant change your
  3. Flaxseed oil mimics estrogen in your body, and many Potsies seem to have hormonal imbalances. Estrogen imbalance can in turn cause PVC's. Not sure yet if it is too much or too little estrogen that is the issue, though in my own body I seem to have trouble with too little. Progesterone is evil, estrogen is good. At least for now . lol
  4. Ok so I have mold too. Ive known about it for a while (um...years) and just keep cleaning it up as I see it. Now this is really starting to freak me out thinking about how sick this could make me. I have mold in my sink and shower drain (when I remove the drain it is everywhere!). I keep pouring bleach down and letting it sit, but obviously it's coming back. It also was on the wall of my shower, though I really coated that with bleach and have not seen any more in that area since then. We had water in our basement as well as a pipe burst and leak into the basement cealing and surrounding insul
  5. I got out of it--for now-- by changing employers! lol. I was looking for a new job anyway . This was just an added excuse. It worries me though because this seems to be a growing trend to force health care workers to be vaccinated. Pretty sure it's only a matter of time until my new employer requires it too.
  6. Well..... I just had an echo (last one was 2 years ago) and I now have diastolic dysfunction stage II as well as regurgitation of ALL of my valves. Thank you for these articles. I'm only 29! Something has to give....
  7. Unfortunately listing egg allergy is an unacceptable excuse to them, unless you have had a documented anaphylactic reaction from it. Apparently even intolerances dont count. ....I really dont see how this can be legal for them to force us to get it!!!
  8. I forsee it turning out badly for them when people DO have bad reactions to it and then sue them
  9. I am definitely prone to bad reactions, and though they say there is no way to get the flu from the vaccine I have seen it time and time again. People get the vaccine and then get sick,...while I never seem to get it without the vaccine, lol. A viral illness also provoked my POTS to get significantly worse. ....and then there is the whole mercury issue. Ironically a high level of mercury in your body can cause POTS like symptoms . Im not entirely sure how they are legally able to enforce it, but they are. Basically if you do not comply then you will be terminated. They will excuse people who
  10. My employer has decided to make it mandatory for all health care workers to get the flu vaccine. I have never had the flu vaccine, and NEVER want it. I am probably one of the rare nurses who believes it does more harm then good (after all, nurses are supposed to encourage people to get it!) What I am looking for is any evidence that it could potentially make POTS or EDS worse. In order to be exempt they need hard, factual proof. Unfortunately they have not given me much time to find this proof, so I need your help!!! Anyone know of any research articles that may be useful?
  11. It is definitely related, though I'm not sure exactly what cases it (as with everything else wrong with us! ). It is a good idea to be tested for sjogrens as well as the small fiber neuropathy, however if you look up Familial Dysautonomia it is one of their main symptoms. While us potsies may not have FD, the dry eyes may be due to our SNS imbalance. Mine were so bad that I had to get punctal plugs. I tried Restasis for about a year prior to the plugs, but unfortunately it did not work. My opthamologist explained to me that Restasis would only work if the cause was autoimmune--guess mine wasn
  12. For those of you who have found beta blockers to be helpful, which one are you taking and at what dosage?
  13. Im so glad to read this thread . I have had PVC's for about 5 years now and just recently started having runs of VT. Quite a different feeling for me than the SVT, though they are both scary. I am very frustrated by my lack of treatment options (beta blockers and calcium channel blockers are out--and antiarrhythmics are not a good option d/t past medications that have evoked arrhythmias). I had an EP study which was not able to produce the arrhythmia. Really the only sure thing that produces it is a change in my hormones (happens every month around the same time!). I wish I could figure it out
  14. Taurine seemed like the "magic pill"..... until I took it, . It did nothing to me at all expept for cause an increase in PVC's (which it is actually supposed to decrease according to the lit). I had a run of v-tach while on it and decided enough was enough. Wont be trying it again...
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