Darlene

i see several pots where dr. recommends a recumbent bike. would elliptical work?

i m taking isoniazid for tb, and my symptoms are worse.

What is ALT?

i was diagnosed with dysautonomia in 05, i know a few blood tests were done (can't remember for what) . I know they did do an ELISA and westernblot. ELISA was positive, and westernblot was negative. Unless u test positive to for westernblot i guess u do not have lyme. Although i sure feel like. i want to know what labs should be drawn when being diagnosed with dysautonomia. i think my dysautonomia is auto immune, and am curious the cause of my dysautonomia.

idreamincolor, I take lexapro, it aids central serotonin regulation to help control blood pressure, supress the sympathetic nervous system, treat any existing anxiety/panic symptoms

arrythmia is a symptom of dysautonomia (POTS).

Are there any dr.'s in ohio that see people with possible mast cell activiation disorder?

i see blind spots, and lightning. can't explain it. my neurologist calls this aura

I currently see dr. grubb, but have been thinking about making an appointment with dr. chelimsky. Has anyone seen dr. chelimsky?

i have several lesions in frontal white matter. whatever that means.

i became sick when i was in school. i started school in 2001 and graduated in 2005. i was diagnosed with dysautonomia in 2005. i didnt not try to find a job immediately after graduation because i knew i was to sick. i waited to see if i would get better. i did start to fee good enough to where i thought i could work. i got a job as a rehab tech, i worked there for 5 months. then got a job as a nurse assitant, and worked 7 days. i really want to work, but get scared when i am on my way to work, or on the way home and i start feeling funny. or when i am at work, and i feel so hot (even though the air is on), nauseated, and hurt so bad all over. i would like to know why i am in so much pain. i went to my family dr. about the pain, but he just says exercise. i tried that once, and got pretty sick. i can walk some, but its not helping witht he pain. the jobs i mentioned were full time, maybe i can try to work part time. i was wondering can u get ssdi for dysautonomia? and if so, how much can u earn while being on ssdi? i wish i could find a dr. to listen to me about the pain. if i was 82, i would assume i should be in pain, but i am only 37.

my pain started 10 yeras ago. it started with lower back pain, then neck pain. now its in my left hip really bad. and all over. when i go to the dr. they say exercise. lol. the rheumatologist that dx me with fibromyalgia said look up arthritis.org, type in fibromyalgia in the search bar and learn all u can. i went to the neurologist, she had me get some blood work. told me to go to my family dr. and then back to her in a few weeks. my family dr. said exercise. really doubt exercise is gonna take away chronic pain. i wonder why any of these dr's never ordered an mri, cat scan or x ray of my lower back, and left hip. oh, thats right. nothing is wrong me with. just have to exercise. the pain is really bad. is there meds that help. does any of yous have chronic pain. what do you do for it?

0 positive

i am on my 6th month of isoniazid. and feeling pretty sick.not sure if its from the dysautonomia or isoniazid. has anyone here taken isoniazid, and what was your experience.

i have burning sensations in my arms and back, and all over body pain. i think the cause is nerve damage. what tests can i have to confirm this. skin biopsy? i believe the nerve damage is the cause of my dysautonomia. now i just have to figure out what is causing the nerve damage. my symptoms match those who have mast cell activation disorder. i have brought this up to the dr. and he just says its hard to diagnose. i live in ohio. does anyone know of an allergist that specializes in mast cell? i am will to travel. i think if i can find out whats wrong with me, and get on the proper medication i could live alot better life.

i have weird episodes. not sure if its an adrenaline surge or not, but sometimes all of a sudden i get this burning feeling in my arms and back. i feel real funny like i am gonna pass out. then i have this sudden urge to go to the bathroom. its weird.

derek, i dont think its the lexapro. lexapro helps my tachycardia. along with coreg.

does anyone have an autoimmune disease causing their dysautonomia?

i see dr. grubb, but not really getting anywhere. i see some of you have gone to mayo, vanderbilt, or cleveland clinic. i am thinking of going to one of these. do i need a referral from grubb, or can i just call and make an appointment? and which one would be best to go too?

i was dx with dysautonomia in 2005. was very, very sick. then was put on lexapro, and coreg, and other meds i have quit taken. anyway, it did help. but i am not back to normal. thought i would get better. but its not happening. i just quit my job because it was making my symptoms worse. i do not want to file for disability. will keep trying to find a job i can handle. but what if i can't? can u even get disability for dysautonomia? and where do i start if i have to go that route? i think i could work part time. can u get disability and work part time?

bev ray, i had to laugh when u called me northern dancer. lol. yes, i was diagnosed with fibromyalgia. that wouldnt cause this much pain, would it? i have never been back to the dr. that diagnosed me. she said to theres nithing that can be done about it. she said go to www.arthritis.org and learn all i can. and when i tell my family dr about how much pain i am in, they just tell me to exercise. lol. i have tried to excercise. makes me sick. i didnt know there was a pain specialist. hows come i was never referred to one. i dont want to talk bad about my dr's cause they do help me sometimes, but sometimes i dont think they know to much. isnt there a such thing as a pain management clinic also?

lexapro helps. i'm not sure how lexapro works, but i know i am pretty ill without it.

no. i was put on isoniazid 5 or 6 months ago. i think i read somewhere this med can deplete vitamin b12. i didnt know u could check seratonin levels? i wonder too if my muscles and tissues are getting blood supply.

i am in so much pain. lower back, upper back, hip on right side, left knee, my legs, my feet. i dont think dysautonomia causes this. i tried working, but made my symptoms worse. i dont know what to do. i was diagnosed in 05, i thought i would get better, but i m not. what causes all this pain? and i feel nauseated all the time. kind of feels like i have the flu 24/7. and if feels like i have this lump in my throat, like i have an allergy to something. i have wondered if mast cell was a possibility, but who can i go to for testing. i see dr. grubb, but he didnt seem to know.

yes, i have them too. but i can get this anytime. i assume its because of the dysfuntional nervous system. your nervous system controls, heart rate, respiration, blood pressure, body temp. etc.