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gertie's Achievements


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  1. I have this all the time but I have Meniere's disease. Lately it's worse outside for me. I always use a cane outside. One of the treatments for POTS is more salt & treatment for Meniere's is less salt. I can't win at anything I do.
  2. Thank you. I ate light breakfast this am & felt like nothing digested. I decided to experiment so I took an Ativan .5 & forgot about it. In a few minutes I started burping & felt like my food was digesting & even went for a walk & ate a light lunch. That also leads me to believe some of it is caused by stress & anxiety. Nothing is much fun anymore is it?
  3. I'm wondering if not getting hungry is a symptom of this illness or just my age? I'm in late 70's & for a few last years I don't get hungry & when I eat a small amount I don't feel like I digest it for hours. Thanks.
  4. Thanks everyone for helpful info. I use heating pad for a lot of ailments.
  5. Thank you for responding. I too find that trying to stay calm helps but it is hard to do.
  6. Do any of you ever do this? When I get to thinking about all the physical health problems I have & am unable to take medication that might help. I'm highly allergic & also have kidney disease which limits my food & meds. I've been having awful IBS symptoms with pain & vomiting, can't eat. Sometimes in the middle of the night I wake & start shaking so hard I can't stop. I think it makes my POTS worse. If you have this problem what do you do to get yourself under control? Thanks
  7. Thanks so much for your reply. I also have temporary blindness in one eye occasionally. My eyes feel like they are crossed sometimes & the only way I can see at all is to cover one eye. Medication will cause me to do that sometimes also. Thanks again!
  8. I managed to get by with readers for a few years for my closeup reading. Now whatever strength readers I try works about 5 min tops & then vision goes blurry again. I still manage distance pretty well, not perfect. I've always kept up with eye checkups. Last year after examination the Dr could not find any prescription that helped. She changed the lens three times & I spent a lot of money & still do not have any glasses that help. She offered to do cataract surgery early to see if it might help. I refused. I use a magnifying glass a lot. My old optometrist told me it wasn't an eye problem but a brain problem. I have had a brain injury but there must be something that will help me enjoy reading again. I've been searching this board for something that would help. It seems a lot of us have this problem but I didn't find an answer. I've thought about ordering those lighted magnifiers that is advertised a lot but the reviews are not very good. Anyone found anything that helps? Thanks.
  9. What you are experiencing sounds like what happens to me if a take antihistamines. I feel as if that are blips or seconds when my brain is not working. I have been diagnosed with partial seizures but for me this symptom only comes from AH. It is a scary feeling.
  10. I have been on very low dose Gabapentin/Neurontin for the last few months but have cut that in half. It is not supposed to cause kidney failure but if you have CKD it can become toxic to you if you take a large dose. It is excreted thru kidneys.
  11. All I know (I think) is my bun & creatinine was high & my EGFRAA & EGFRNAA was low. All still confusing. Those numbers have been changing for last 3 years. Kidney function getting less each year.
  12. Has anyone developed CKD? I don't think Dysautonomia causes it but my blood test now show CKD. I've never drank alcohol, no sodas, coffee, eat low protein, no medication abuse. I'm just curious if any of you have experienced this? Doctor did mention it might be caused from BP going from high to so low it causes fainting. thanks.
  13. Thanks for all your replies. It is hard to describe the feeling. I hope it's a long time before I have it again.
  14. Does anyone experience RLS? If so, could you describe to me how it feels. I've experienced what I think is RLS but it's hard for me to explain what I feel. It feels like a kind of electrical shock that radiates down from my hip to my leg & I have to move when it starts. It's almost painful. The next day my legs seem to feel tight in the muscles & slightly sore. I can't sleep or relax when I have an episode. It usually effects one leg at a time & there doesn't seem to be any way I can lay to get relief. If I take something like Lorazepam I can relax enough to go to sleep. I've only had this happen a few times over the years. Thanks!
  15. I have to watch my diet because of migraines, interstitial cystitis, IBD, & allergies. There's not much left I can eat & it's mostly things that are not healthy like white bread & rice. Everything I can eat is not good for me. I get to craving a raw salad. I've learned not to worry about it.
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