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gertie's Achievements


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  1. Thanks Rexie, Do you take hydrocortisone as needed when BP falls or do you take it daily? I have been given fludrocortisone to dake daily but I had too many side effects from it. I'll check out the ashwagandha.
  2. Thanks for your replies. I'm sorry you're going through this. I don't feel alone. The med I was given I couldn't take because of its interferrence with my other health problems.
  3. I have become afraid to eat because of IC, IBS,kidney disease, food allergies. I only eat a few bites 2 or 3 x's a day of food I think is safe for me to eat. Then I wait to get a bad tummy ache which happens often. I admit I've become almost, if not, paranoid about this.
  4. Have any of you passed out while outside? After working outside in yard for a few min I decided to water plants & come inside. I didn't feel overheated but when I started for inside my house my vision turned gray & I knew I was going down. I made it inside the garage but did not make it inside house before I collapsed & when I came to my hair was drenched & it took me awhile before I could get inside house where it was cool. I've passed out a lot in my life but always inside where I could get to a chair or bed. For some reason this was the most disturbing. I live in rural area so there's a lot to do outside in the summer. Now I'm not comfortable going outside at all. I've had dysautonomia many years & never had this problem with the heat. How would you handle this? Thanks.
  5. I have this all the time but I have Meniere's disease. Lately it's worse outside for me. I always use a cane outside. One of the treatments for POTS is more salt & treatment for Meniere's is less salt. I can't win at anything I do.
  6. Thank you. I ate light breakfast this am & felt like nothing digested. I decided to experiment so I took an Ativan .5 & forgot about it. In a few minutes I started burping & felt like my food was digesting & even went for a walk & ate a light lunch. That also leads me to believe some of it is caused by stress & anxiety. Nothing is much fun anymore is it?
  7. I'm wondering if not getting hungry is a symptom of this illness or just my age? I'm in late 70's & for a few last years I don't get hungry & when I eat a small amount I don't feel like I digest it for hours. Thanks.
  8. Thanks everyone for helpful info. I use heating pad for a lot of ailments.
  9. Thank you for responding. I too find that trying to stay calm helps but it is hard to do.
  10. Do any of you ever do this? When I get to thinking about all the physical health problems I have & am unable to take medication that might help. I'm highly allergic & also have kidney disease which limits my food & meds. I've been having awful IBS symptoms with pain & vomiting, can't eat. Sometimes in the middle of the night I wake & start shaking so hard I can't stop. I think it makes my POTS worse. If you have this problem what do you do to get yourself under control? Thanks
  11. Thanks so much for your reply. I also have temporary blindness in one eye occasionally. My eyes feel like they are crossed sometimes & the only way I can see at all is to cover one eye. Medication will cause me to do that sometimes also. Thanks again!
  12. I managed to get by with readers for a few years for my closeup reading. Now whatever strength readers I try works about 5 min tops & then vision goes blurry again. I still manage distance pretty well, not perfect. I've always kept up with eye checkups. Last year after examination the Dr could not find any prescription that helped. She changed the lens three times & I spent a lot of money & still do not have any glasses that help. She offered to do cataract surgery early to see if it might help. I refused. I use a magnifying glass a lot. My old optometrist told me it wasn't an eye problem but a brain problem. I have had a brain injury but there must be something that will help me enjoy reading again. I've been searching this board for something that would help. It seems a lot of us have this problem but I didn't find an answer. I've thought about ordering those lighted magnifiers that is advertised a lot but the reviews are not very good. Anyone found anything that helps? Thanks.
  13. What you are experiencing sounds like what happens to me if a take antihistamines. I feel as if that are blips or seconds when my brain is not working. I have been diagnosed with partial seizures but for me this symptom only comes from AH. It is a scary feeling.
  14. I have been on very low dose Gabapentin/Neurontin for the last few months but have cut that in half. It is not supposed to cause kidney failure but if you have CKD it can become toxic to you if you take a large dose. It is excreted thru kidneys.
  15. All I know (I think) is my bun & creatinine was high & my EGFRAA & EGFRNAA was low. All still confusing. Those numbers have been changing for last 3 years. Kidney function getting less each year.
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