Darlene

does nayone ever get burning sensations in their arms? the other day i was driving, and all of a sudden i felt funny, and had this burning sensation in my arms.

i just had my eyes dialted a few months ago. after words everything looked funny. it freaked me out. wont be doing it again.

i couldnt think clearly while taking it, and it didnt help with the migraines. i quit eating high histamine releasing foods, foods that contain msg's, and foods high in tyramine. this really made a difference.

i have several floaters in both eyes, but worse in my right eye. who ever finds a cure will be rich i'm sure.

I have blurry vision that comes and goes everyday. Mostly my right eye. Eye dr.'s say my eyes look great. So, not sure what causes this.

i get tachycardia real bad if i drink so i just don't drink at all

I had a tooth pulled a few weeks ago. Hate injections in my mouth, but made sure it had no epi and did fine. He had difficulty pulling the tooth out, because it had broke off and there was really nothing to grab onto. My tooth hurt for a whole week afterwards. I went to the dentist the other day for a filling replacement. He said the filling was deep. But everything went fine with that. No pain. As far as a root canal... I would rather have my tooth pulled.

I called Dr.Grubbs office a few weeks ago. I assumed I wouldn't get in to see him for 6 months to a year. Boy was I surprised when they said I could see him July 1st. Anyways, I was telling him about this episode I had a few weeks ago where I had burning sensations in my arms, and back, felt really funny and had increased urination and/or diarrhea after the attack, amongst several other symtpoms. I asked him if he thought MCAD was possible. He said if I had MCAD, that my face would turn red and that I would pass out. I do have facial flushing. I feel like I am going to pass out, but for some reason don't. He also said MCAD is very difficult to diagnose. Just because it's difficult to diagnose means I shoul not be tested? There has to be a cause of my dysautonomia. Or, is the burning sensations in my arms, and back, feeling really funny and had increased urination and/or diarrhea after the attack normal for people with POTS? And I feel itchy all over (at times), and sometimes it feels like its on the inside. And what about pain, is that also a common symptoms with POTS? Does he even have an autonomic lab? If he doesn't know how to go about testing me for MCAD, or other auto immune disorders, why can't he send me to someone who does. I don't not know how to go about finding these Dr.'s on my own. Or is lyme a possibility? A few years ago I had an ELISA which was positive and a Western blot that was negative. I assume that meant I didn't have Lyme. But today he wrote me out a lab order for lyme titers. Whats that, another ELISA and Western blot test? Also, he had catecholamines written on the lab order, and when I went to get the blood test they had me lay down for a half hour, drew blood, then had me walk around for a half hour, then they drew my blood again. I took lexapro(calms the nervous system) and coreg(beta blocker)before I went to my appointment, would this make the catecholamine test inaccurate? Also celiac was written on the lab order, so I assume they are checking me for celiac. I just don't MCAD and Lyme are difficult to diagnose, but would like to tested to rule out things. Wish I knew what Dr's I could go to who were very experienced with certain auto immune disorders.

i was looking at my dx on the computer at Grubbs, and it says "dysautonomia, sinoatrial tachycardia, pots...." is dysautonomia and pots two separate dx?

i have headaches frequently, and visual disturbances

I was diagnosed with dysautonomia in 2005. I was put on lexapro and metaprolol(now coreg in place of metaprolol). The meds helped, but they are no cure by any means. I am afraid I am not going to be able to keep a job. I have lots of education, and hate to think I wasted my time. But, I just have days, sometimes weeks I just don't feel good. I am not lazy. Before POTS I was very active, and needed little sleep. I keep thinking I will get better, but I don't think it's gonna happen. How does one go about disability? I am embarrassed to even tell my Dr. I don't think I can work. And can you even get disability for dysautonomia? I was hoping to further my education, but I think I am setting myself up for dissapointment.

Does anyone else experience tachycardia at night? You would think your heart rate would slow while sleeping because your body is relaxed and you are using less oxygen. Sleeping is hard on my body it seems. And I don't feel good when I wake up. I feel better as the day goes on.

If he thinks you have MCAD, hows come he don't send you somewhere that can do testing I wonder.

I have lesions too. I know at one time my BP was extremely low. I have always wondered if that was the cause. Or when I hit my head on the windshield in a head on collison. My neurologist seems to think they are caused from migraines. Heck, maybe I was born with them. Who Know. My brother is an x ray technician, and sees lesions frequently. He said lots of people have them.

difficulty swallowing, and feeling like I can't hold my head up. And my in my right hand my pinky and ringer finger feel like needles at times.

I also have blurry vision that comes and goes.

What autoimmune disorders cause dysautonomia?

I have dysautonomia, and would like to know the cause. I would like to be tested for diseases that can cause autonomic dysfuntion. Whatever it is, it causes alot of pain in my joints and muscles. Sometimes I get this all of a sudden burning sensation in my back and arms and feel weird. Nausea. Light sensitivity. excessive pupil dialtion. My right eye feels straineded, and see a floating blurry spot. Diahrrea just about daily. Pain that itches (itching feels like its on the inside). Numbness is my pinky and ring finger. my feet use to feel like they were burning, but that symptom finally gone away. Had a weird attack after eating something with MSG (felt like I was being electrocuted, and had an auro without headache). Can't drink alcohol (flushing/tachycardia). Eggs and Icecream make me nauseated. I can't blow up baloons or sing without feeling light headed. Mouth feels dry at times (like I can't get enough to drink). Sometimes I itch all over. Memory loss. Frequent urination. fatigue. I am sure there is more symptoms I can't think of. I was put on lexapro and coreg, so the dizziness, and tachycardia is better. Would the meds make a standing up and laying down norpinphrine test in accurate? Does Grubb do autonomic testing? This is who I see. Or refer me to Mayo, or Vanderbelt, or someone close to lyons, OH or Adrian, Michigan.

What labs do you suggest for autonomic testing?

I am not sure how to explain this symptom... my cat was on the back of my couch and went to step down on my shoulder, it was painful, then started itching. I also have lower back pain, and when my bf rubs my back its very painful, and itches. The itching does not feel like its on my skin, it feels like it inside. Anyone heard of it?

I had my baby in 1994, and was diagnosed in 2005 but I think I have had POTS long before I was diagnosed. My symptoms during pregnancy were tachycardia, dizziness/vomiting, feeling like I was going to pass out at times. I remember them saying they had to give me an injection to help me stop bleeding. I felt even worse after having the baby. I was very dizzi/vomiting, and couldn't breath, and was nauseated several months after having my baby. But, it was all worht it.

me too

it felt like something was zapping my brain. and my POTS symptoms return.

I was told by Grubb to drink lots of fluids. I drink maybe 40 ounces of fluids a day. I have mild swelling in my lower leg. Should I stop drinking fluids? or can this be a sign of dehydration?