Darlene

This morning I woke up, and felt a bit funny. Things looked a little weird, not to bad. I looked in the mirror and my pupils were dilating excessively. Is this a symptom of POTS?

Has anyone been to the cleveland clinic? Any specific Dr. you rccommend?

Sometimes my vision gets distorted. I see zigzags, flashes of light, blind spots... this lasts about 20 minutes then my vision returns to normal. I am not experiencing a headache when this happens. My neurologist says this is auro without the headache. Does this happen with anyone else? This really freaks me out when this happen, because I think what if my vision don't return to normal. I have tried topamax, but it does not keep the auras from happening. Is there medication for auras?

I have tachycardia too. Lopressor works great.

I see Dr. Blair Grubb. He gave me meds for my symptoms. I don't think he did any testing to find cause. I would like to be tested for MCAD, and other things. I want to know why all of a sudden I feel my arms are on fire, like my nerves are inflamed, and feel funny, the go to the bathroom several times after the attack. This really freaks me out cause I feel like I am going to pass out when this happens.

I have read in many posts that antibiotics are hard on us. Why is that? Silly question I lnow. I am taking isoniazid, and my POTS symptoms are coming back. They say its not safe to stop this drug, so not sure what to do.

Mayo and Vanderbilt is a bit to far from me. Is there anywhere in Ohio or Michigan that does autonomic testing?

Thanks for the replies. I am so happy I can talk to people who understand.

all of a sudden i get the burning sensation in my arms, maybe its just warmth i feel... and then i have to go to the bathroom several times (diarrhea/frequent urniation.) it will last 20 minutes at the most. and i feel really weird when this is happening. scares me.

lexapro

Fibromyalgia is pain in your trigger point areas right? I have pain everywhere, not just in the trigger point areas. The pain is getting worse, to the point it hurts to walk on my feet. Does anyone else experience this?

i take the same meds. about lexapro, it also raises blood pressure.

I wonder the same thing. Does anyone live in Toledo, OH? And who do you see? I see Dr. Blair Grubb, but it takes me 6 mths to a year to get in for an appointment. If I am sick, I want to be seen quick too. I would like to find a family Dr, or neuroloigist or cardiologist that doesn't take several months to get in.

Hi Tee! Welcome to DINET

I remember awhile back sending my picture and dx to someone (can't remember who), for a documentary (I think thats what they called it). Were copies made? I was not on the site there for awhile, so missed what happened.

I'll bring the Klonopin

what do you mean they adjusted the curve on it? my daughter and i don't know anything about contacts. she will not wear it now. she says it feels like a leech is on her eye. (pressure) gives her a bad headache. we go back next thursday. should we try something else? or they can fix this? have you worn other brand names you have liked in the past

I was trying to find a post from the other day, then one of the moderators e-mailed me and said they moved it to chit chat, where ever thats at because it was not related to POTS.

When I went to the Dentist and told them about my POTS, and that I could have the injection with epi. He said he has other patients with the same thing. I was sure they would say they hadnt heard of it. I just wish the ER doctors were aware of POTS.

My neurologist prescribed me klonopin for anxiety (which I don't think I have anxiety, I think my fast heart rate is a side effect of POTS) Anyway, I noticed it helps me too. I ran out of klonopin, and at an appointment with Grubb I asked him if he could write me out a prescription for it. He just said did not. My family dr. won't write me a prescription either. They tell me to go back to the same Dr. that prescribed it. I don't understand this. 20 pills last me a year, and I haven't had any for 3 years, cleary I am not addicted to it. I don't like driving an hr. to get the mediciaction. Can't she tell my family Dr. and Grubb this helps me, and it's for them to write me out a prescription.

I wake up the night with tachycardia, but after I stand up and move around a bit it lowers. Does anyone else have this?

Thanks!

Thanks for the info!

She has never worn contacts before, so maybe she just needs to get use to them. The Dr. says you CAN NOT sleep in them, and they have to be cleaned EVERYDAY.