pat57

search EMG, H-reflex and Somatosensory evoked potentials

LOL, Nina- you go!

a temperpedic bed might help- I think.

I think it is reguarded as fact that "stress kills". the topic is very broad, and so I leave it at that!

welcome back, finanicial stress stinks too. Your pacemaker failed to keep the BP up to acceptable levels? ****.........

oh I'm so glad you found that problem and your doctor remains attentive. And don't worry about hurting my feelings. Sweet of you, but I appreciate the clear reply. You are pretty succinct which is another reason I was urgeing you to journal. You write well. But you do excatly what you deem to be in your best interest!!~~~ (((((((sunfish))))))))

the following is a copy off the web in response to your "back/neck/shoulder pain" otherwise I just want to say I'm so sorry you are bearing all this. Wishing you increased good health and support! Coat Hanger Pain: This is a rare type of pain that is occasionally seen in people with Parkinson's who also suffer from postural hypotension (drop of blood pressure on standing due to autonomic nervous system dysfunction). However, this type of pain is more common in people who have a form of parkinsonism called multiple system atrophy (MSA) rather than Parkinson's. (Further information about MSA is available from the Sarah Matheson Trust, Neurovascular Medicine Unit, (Pickering Unit), Imperial College School of Medicine, St Mary's Hospital, Praed Street, London, W2 1NY, Tel. 020 7886 1520). The pain usually starts around the back of the neck and may radiate to the back of head and the shoulder muscles. The overall shape of the area of the body where this pain occurs resembles a coat hanger. The cause of this type of pain is unclear and it has been suggested that the pain may occur due to reduced blood supply (due to postural hypotension) to the muscles in the neck and shoulder area.

are you the Donna from Alabama? I wondered where you got too. with a bit of luck you'll be improved due to no more stress from that "sorry old man".

I was thinking I should modify what I wrote. I said tell them "you must see him"- it won't help to demand- but to plead. Explain your case. And I've been told that if you go to the ER and complain of chest pains you will get carefull attention. I think it is urgent that you know the treatment pain. You might consider the ER if you find that you feel its urgent too. And as a 50 year old who could be your mother- I suggest you tell them that you have chest pains- you think its stress- BUT?????

Call that cardios office and tell them you are 26 you have Cardiomyopathy and Paroxysmal Tachy, silent Ischemia, POTS, and have had 2 heart attacks and you must see him right away!

below is a repost for you- sophia and AJVDK, so sorry- hang in there! AJVDK writes "Hey All, I thought I would drop a line and say hello! Give you all an update how things are going with the Lyme/pots treatment. Well this week started off really bad! On Monday my arm was really red all around my PICC line. So I called my doctor office and they wanted to see me. So I went it and they said it was a reaction to the tape holing the PICC to my arm, and that I needed to have my home health nurse come out today and redress my arm. So I called and she came out. She agrees about my arm. When she when to draw back blood on my line there was no blood return, so I needed to go to the hospital to have TPA put in the line. (No I am getting worried as this is the 2nd time already in 14 days that I have had to have TPA.) So Tuesday is I when to the hospital, but ?? I ended up having to have the PICC remove as it had yellow/brown color stuff coming out of where the PICC is. So they pulled the PICC, and placed a new one so that I can still receive my meds. They are now talking that if this PICC goes bad too, that they are going to place a port instead. I am not sure what I am going to do. But they all agree I am still going to need the fluid and Abx. As for the Lymes treatment I am doing IV abx every 12 hours. I started a pain patch to help with all the joint pain, it is helping some. The big problem not is that I am getting really dizzy again, and the POTS stuff is getting worse. So it like you treat the one and the other gets worse. I am hoping as time goes on things will get better. So that was my week, I am hoping next week will get better! Thanks for listing!"

Nothing exciting really but, I complained about my legs feeling heavy and being tired. I did tell him that I was dizzy for 3 hours one day- which was my last 12 hour work day. I went to 8. He says maybe 8 hours on my feet is too much also. Supposed to drink more water and do a 20min cardio workout on days off. And work up a sweat when I do it. Well I did 20 mins on my stationary bike, and no sweating. I don't know excatly what a cardio work out is - however - I'll do a seach right now. I asked him about midrone (spelling) he said it will make my bp too high-

Lisa, is your condition painful and brief? My fingers do that- hurts alot, I put ice on it to sooth it and it lasts about one minute. edit-oops I meant to address this to Bronwyn..................

congrates! how many- nights- hours- a week?

don't know if this link will work, but if it does check the graphs at the bottom of the page. http://www.nymc.edu/fhp/centers/syncope/He...ic%20evaluation

I no longer watch TV, which gives me some extra time for housework. I no longer cook either and my husband has taken that over- plus the grocery shopping. I do need about 12 hours of sleep lately. I think because "I waste no time" my husband doesn't dare complain. As terrible as it sounds, I have the benifit of haveing chronic Hepatitus C. My husband has seen co workers who have had it less time then I- go into liver failure and die. SO this makes him think I'm doing well! I have done the treatment and my current level of damage is low so my problems are dysautnonia related.. You know how people make they own conclusions because they trust their own judgement above "facts". Its the you look good syndrome. ANYWAY I think if you expect people NOT to understand- that helps. Also I don't explain things- I leave them in the dark and that has the effect of "Oh man I wonder what's wrong with her". That works for me.

tessa I think "healthy" BP is suppossed to have 30 points between the systolic and distolic. Not really sure.....

what do you think about a dictaphone?

Good to "see" you. Do you keep a journal? It is my opinion that whatever we experiance has value. You can speak to caregivers and others who are, or may, face debilatating painful health issues. Your paying a high price to be such a voice and I think it would be comforting to others but also for you because there is a purpose behind the ordeal. When others are helped because you have walked a path before them you will be blessed. I have some experiance in this, haveing been an alcoholic by the age of 18. You can imagine what situations I volentered for. The experiance has given me the ability to help others by which I am blessed. In no way am I motivated to help because there is a return. But I am grateful for it! I will help you with this- if I can. Let me know. ((((((sunfish)))))

cardio sent me to shrink- shrink sent me to neurologist, neurologist sent me to Electrophysiologist. BINGO- we have a winner! I wonder tho ,MS will make you weak, and it is often a flare and remiting cycle. Beats me, but you "should" go to either Cleveland Clinic or Vanderbilt and see what they have to say. good luck!

if you don't mind, can we get an update on how your feeling? My quess is that your being carefull not to engage in a pity party- or the appearance of one. And so have swung the pendulum to the other direction. IE saying very little. How are you?

willow, How old is Mike? he is still "well"? WHAT an ordeal!

flop, It looks like youv'e got the help you need now. Glad for you, in this turn of events.