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About nikigrl8883

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  1. thanks for answering my question....but i am not paralised when this happened....and what about the tv coincidence....? theres no explanation for that...im worried theres more to it than just a sleep disorder because why would that tv thing happen i was awake when that occured
  2. i am really freaked out today as last night i was having horrible nightmares about an evil presence in my house that was after me...i woke up gasping and felt somthing like air going into my mouth...because i was so scared i turned on the tv (it was like 3:45 am) it went to some wierd channel like 205 and their was a movie just starting called "nightmare"...then i hit info to see what it was about and lo and behold it was about a girl who was having dreams of an evil presence and having sleep paralisis and it seemed all to real...! thAts that the info button said! i think theres somthing bad around me making me sick to some degree....i am catholic and havent been myself lately...alot of strange things have happened to me since i was 18...i am 24 now... i got sick when i was 22 with pots...i dont know whats happening here
  3. i was wondering if anyone who has tried zoloft for pots help, knows how long it takes to see a change and if anyone had sucess...ive been on zoloft for a little over a month but my heart rate is still awful
  4. i have a question, i have been taking 50 mg of zoloft for anxiety and im wondering of its making my pots worse......what are people's experiences with zoloft and pots inhere? it sure as **** isnt helping the pots i know that lol.... i want to go out dancing tonight with all my friends but pots scares me so bad my life has stopped for 2 yrs....will i pass out if i dance alot? ive never passed out so far but dancing i dont know...i dont even know why i have pots still....if i drink one drink will i be screwed?
  5. then i wonder what these burst in my head are from and the feelign liek im going unconscious when my bp is ok....very odd indeed ......im not crazy lol i swear....maybe it has somthing to do with my pituitary gland being alittle off
  6. thank you all for the replys.....i needed it ....the only thing was i dont think my bp was low at all yesterday i took it right after this episode occured... if anything it was on the high side....and this was almost right after the heavy leg feeling and passing out feeling.....all day today the same feelings as yesterday and my bp is not low.....my hr is normal sitting standing somewhat high but not that bad...my head just feels odd all the time all da long it has......i usually suffer through the day at college and dont feel this bad,,,ughhhh
  7. i think i have been having some type of partial seziure i feel like im going to have one anytime...i have a wierd aura i feel......yesterday i went to the hospital to visit a friend who was actaually admitted for having a seizure (ironic) anyway as i was leaving my legs felt like wieght and i felt like i was gonna go down anytime...when i got home my head felt extremly odd.....my bp was sky high and i felt sick i kept getting waves of anxiety through my body...i feel the same way today.....the back of my head feels wierd my throat is very tight i feel nasusa...very shaky.....i got that internal vibration feeling in my face lastnight....when this happens i feel like im loosing consciouisness but never actual do....i dont think im having the full out falling down seizuresd and shaking...but theres somthing going on in my head.....ive felt bursts in my head before....i had an eeg about a year ago that showed nothing ive had a brain mri nothing....but im telling you this is somthing like seizures anyone else have this?@@ or know about it
  8. i have a problem here (lucky charms) my endocrinologist left and thats why i am going to see a new one next month in boston before she left i asked her if i should take some dhea suplliments and she said i could take one 25mg a day.....i did for a few days and felt very anxious but who knows becasue i feel anxious alot,,,i stopped taking it when she left becasue who will montior it?! what should i do
  9. the only thing the endocrinoligist came up with so far is i had a elevated prolactin level bu that is normalized....i had a pituitary mri to check for tumors none were found...but the gland was slightly enlarged,,,,the pills i took to lower the prolactin shrunk it i guess....and the only other hormone that was off was DHEA...mine is very very low and im only 24 yrs old ...it is suppose to be high at that age....the explaination was its a precursor to somthing else,,,,possibly adrenal problem or from abnormal pituitary function but all those hormones have come out normal so far.....so i get no answers...thats why i am going to another endocrinologist in boston next month......ughhhhhhhhhh all i know is this is ****
  10. i have been struggleing with pots for about 2 yrs now and my symptoms have always been hard to explain ...no one seems to understnad what im talking about even in here....please if anyone has felt this or knows what this is please tell me,,,,,i feel like im loosing it... almost every single night i have these odd symptoms always when im tryign to fall asleep.....my breathing changes like i end up gsaping for air to get it normal again but it isnt apnea,,,this is while im still awake falling into sleep....during this time i feel somewhat dizzy and i get bizzare pressure feelings in my head and it feels like a surge of somthing from the middle of my head....i dont have a brain tumor ive had numerous testing...i do however have somw kind of pituitary issue going on that cant be put into any category....i guess its not bad enough? im going to see adiffernt endocrinologist next month but i bet anyhting she wont give me a reason why this is happening.....i force myself to somhow fall asleep and usually after this episide i wake up with a elastic band feeling around my torso....this doesnt happen everynight but alot...during the day i also feel wierd...oh also when this thing happens at night i get very anxious and panicky its like a surge of hormones is coming out of my pituitary gland.....am i the only one on earth with thiS! i dont have MS either...
  11. lol me again last night iwas horrible...im having these odd symptoms that are hard to explain....wierd feeling in the head middle to back near the base...almost like slowly loosing consciousness....folled by a woozy dizzy feeling in the head.....feeling like my breathing is ceasing then it starts again while im awake still! extreme tachy upon waking / at night it slows down the tachy....low body temp 97.1 fluctuates through that range somtime 96.9! wierdneness...i think i had an out of body experience last night omg scary it was after those wierd head feelings i finally fell asleep or did i lol? i was going throughout the house to get my dad upstairs liek i was really doing it...i felt there was an evel presence following me..then i woke up with tingling energy sensations on my kneck and left upper chest to shoulder....FYI my house is haunted i believe and i knew this years before the dysautomia....other people have had experiences here as well
  12. ok im starting to wonder somthing....remember how i said i always have uti infecctions well for years before the pots i had this and took ample anti biotics can antibiotics cause dysautomia? i mean it seems plausible right? and if so can it be reversed......and what about immune dyfsensy? i never use to eat right for like 2 years straight and thats when i had utis all the time
  13. hey everyone:) i have a question about body temp...ever since i realised i had pots my body temp has be wierd...at ist it was on the high side all the time....99.0 that went away after a few months...now its kind of low 97.2 goes up and down throughout the day....but my normal body temp has always been 97.7...its been oddly low as of late....my thyroid has been tested and was normal ....is this past of pots?
  14. ugghhh i have frequent bladder infections...every time i have sex i get one...anyway this has been going on for years before i had pots.....my body is immune to all the sulfer drugs now when it wasnt before ....i found that out the hard way when i broke out in hives the other day...anyway cipro never worked for me for some reason but im alergic to amoxicilin and i cant any of the CILINS from that family....so the doctor tryed leviquin since i never had that one....the bladder infection feels better than it did but omg the side effects are hellish.....the ist day i threw up my whole dinner and my feet were getting that cold feeling numb sort of but not....i suffered through that....but i was getting wierd heart symptoms like beating really hard and slow feeling like it stopped and started again just laying there...i was gasping for air like my body was stopping....that use to happen to me alot when i ist got pots symptoms...seems the pills are making my nervous system worse...i still have 3 days left on them,.....the thing is i have to take it becasue nothing else is working .....does anyone else get worse when there on antibiotics?
  15. i am so atressed out with this whole pots thing along with all the symptoms. ive had pots for almost 2 years now..i go to an endocrinologist due to an elevated prolactin level ...which is now normal and my mri showed no more enlarged pituitary gland BUT and theres always a but,,,, i have consistently low DHEA levels and im only 23...i know my level is suppose to be high at my age and its rather low....all my other hormone test are always coming back normal.....so i have to keep being retested (cortisol aTHC) all that junk....nothing so far......why does this happen in young women? my moods are all over the place tooo.. when im emotoinal im VERY emotional....almost crazy lol/// i also am tired but extremly anxious at the same time....ughhhhhh and all this can explain pots but i never get a solid answer....can severe anxiety over years cause low DHEA in a young woman? i need advice i know this is a controversial topic
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