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    Advanced Member
  • Birthday 04/26/1979

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  • Location
    Near Dea Moines, Iowa
  • Interests
    Photography, Marketing, Camping, Spending time with my son, and just living one day at a time!

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  1. Yes my doctors agree with the Lyme DX but it was made to Mayo. With Mayo DX me its made it much easier. The infections have been from PICC lines, PORTs, and my pacemaker. I got MRSI, and can't seem to keep a line for treatment as I keep getting septic. I not with on line, and have only had to have IV fluids a few times since May which is great. I still have a feeding tube though. I hope that helps.
  2. Hello All, Wow is been a very long time since I have posted here, or even been on the site. I wanted to let you all know I am finally feeling like there is alight of hope. As some as you know my POT/ Lyme's had gotten very bad four years ago. Things got so bad for me that I was placed in a nursing home. After two years in a nursing home things where still getting worse. I was on IV's 24 hours a day, I was having infection after infection, sezious..... they transferred me to hospice where they gave me 3-6 months. While there things improved some the moved me to another nursing home where I was
  3. Amy,

    I believe in MIRACLES,

    I SEE ONE in your future. BE OPEN

  4. Hello All, How are you all doing? I hope well. I not been around much, as I was in the hospital and then 6 weeks ago was transfered to nursing home for short trem care to work on health. I am hoping that I will be able to go hope soon. But PT, and OT is going slower then I would like. The passing out seems to finally getting better. It now only happening a few times a day. Due to the Lyme's I am still having problems with gait, and not able to walk yet. The goal is to get me safe enoght to be able to transfer from bed to wheelchair, and get some of the lyme stuff undercontrol and go home. I ca
  5. Hello All, Well I am finally home from the hospital. I am hoping this time is going to before a while. Over the last 5 months I have been in the hospital all but 13 days. I been check over by more doctors, had more test ran, and then ended up with side effect after side effect. At the end of all if it I been told I can not sit up above 45 degrees. So I am stuck in bed. I have to have 24 hour a day care, to be at home. Plus the in home nurse, the PT, OT, and then a aid to help with baths. I am learning a new form letting people in. It?s been very hard for me to let go and also have to ask for
  6. Hello All, Long time no see! Hope this finds you all doing very well, and enjoying this great June weather. Well things have been very hard for me latley. It's been a few months since I been around. I been in and out of the hospitals. Form Mayo to the local hospitals, from IV line probles to now, heart problems again. I am so tried of fighting, but I am not going to give in. Everyday is a day we are given, and it's a day to fight for and make the best of. The Lyme diease, and Babesiosis is still causing alot of problems (from heart damage, to alot of left side nerve damage, I am now in a whee
  7. Hello All, Sorry not been around much, I been trying to take care on myself and had to go back to Mayo again. Well after a long debate, trail and error, the ID, cardio, and POTs doctor (Nero) all have made the choice that for my health the port needs to go in. Even thought I keep getting infections in the line, not to treat would be worst. I am very scared as the results of the next infection could be fatal. This last time I had sepis I got transfer to Mayo. I am very uptight and worried, but I have not more options in order to keep getting fliuds, and meds this is the only way. Again thanks f
  8. Thanks everyone! I am sooooooooo happy! Nina- I am hangin in. I am still having a tough time, but this good news sure helps bighten the day. I am going to KS, MO. on later today, to see my LLMD, and then back to Mayo, on monday! We are hoping to get to the bottom of things and at least k now where to go from here in treatment. They are still talking about central lines, and now they are talking about a j tube. At this point I am not sure what to think anymore! I am just wanting a better quality of life, and would like to stop getting infections!!! Talk to you soon! Amy
  9. Guess what I finally got Approved for SSDI!!!!! After 28 months I got it! It's even approved for POTS, and Lyme! Yeah!!!!! I am so happy, and I finally feel like, I can breath again and know I am able to feel like I am supporting my family! Thank you for all the support over the last 2 1/2 years, and giving me ideas, and ways to fight for my SSDI, and never give up!!!!!
  10. Welcome Back! Gla d to hear from you!
  11. Hello All, I wanted to drop a line and let you all know that I am back up at Mayo. They sent me up on tuesday, right now I am undergoing all the test to find out if there is anything that can be done to help. I can't wait to get back home! I wanted to drop aline and let you all know whats been going on! I will let you know more once I I have to to explain everything! Again thanks for the support! Amy
  12. Happy B-day, Sorry I missed it! Hope you had a great day! Amy
  13. Hello All, I wanted to thank you all for your support over the last three weeks. It?s been a long road. Well as many of you know I got another sepsis infection, they had to remove my central line, and due to how bad this infection was they sent me to Mayo, where the also agree that I am to the point the infections are going to kill me. Due to having a pacemaker, and ongoing line infections the pulled this line, and are trying not to place another. (They don?t have high hope that I will make it and all ready have a plan in place for a port to be placed by a surgeon At Mayo.) Well they where rig
  14. Thanks for all the support I am finally home from Mayo, but am having a very hard time will update you all soon I am up to it! Again thanks for all the support! Amy
  15. Happy B-day! Hope you have a great day! Amy
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