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blsvlo

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About blsvlo

  • Rank
    Advanced Member
  • Birthday 12/27/1975

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Profile Information

  • Gender
    Female
  • Location
    kentucky, usa
  • Interests
    I love my family. My husband for 8years and my 3 little girls ages 5,7and 8. I stay on the laptop alot since I have been sick. Before being bedridden I loved to do alot of things.
  1. I just recently hired a housecleaner... She comes in every other week and my gosh she is good...... best money I could have spent!!!! work of caution it took me 2 to find the right one!!! The first one took my pain medicine :-( but it was well worth finding the next one...
  2. You are very talented with your writing..... hugs
  3. thanks for your replies..... well I did start beta blockers a few weeks ago and it does seem to be since then that I have gain a few more... This worrying about weight is just too exhausting and I agree with it may not be a blessing to be too skinny too... So I just want to be healthy...lol thanks again and more advice for anyone on here cause it seems alot of us are struggling one way or another... I do like the idea of the bike laying on the ground!!! hugs to all
  4. Somewhere I heard that type A personalities seem to be more effected by pots.... I some how believe that! Most of us are saying we were very actice and athletic in some form and that is somewhat of a type A persons.. I am only 5'1 and a little overweight but before dx I lost lots of weight and now I can not get it off..
  5. I can not seem to lose any weight. If it is as though we are doing aerobics in place then why do I have weight issues??? I don't eat alot and I try to be active. I tried riding my bike this morning and just 2 minutes and my heart rate got up to 183... It makes me so exhausted to try to excercise. My polar heart rate monitor helps me try to stay in the right range but it is hard... Anyone have any advice on how to take some weight off?? As if I need more problems from the weight... Thanks, and hugs to all
  6. Thanks for all the responses....... You guys are so supportive...... I did get with my POTS doc and he upped my deta blocker just to keep my heart under control! I did work through it and stayed pretty much in bed. I do feel better today but I will be watching myself for possible pneumonia... Hugs to all, Lisa
  7. I forgot to mention I have POTS.....
  8. I have flu like symptoms with a cough and burning chest. Laying flat my heart is racing (even on my beta blocker) and hurting so bad I almost feel like I am dieing.... I really rather stay in my own bed but I also don't want to be too stubborn that it could cause me my life.... I also have MS.. any advice for me?? hugs, Lisa
  9. I am so sorry :-(..... i can not imagine what you could be going through, my heart really goes out to you... If you need to talk to anyone please feel free to message me. Hugs and Kisses, Lisa
  10. I am only suggesting this because when I didn't have a doctor at the time that wanted to help me I did my own research and if you would put in your search this name (pheochromocytoma) and read about it and see if any of it fits you and your symptoms. I am not saying this is your answer but it is a good place to search... You will need a 24 hour urine catch.. hugs to you, lisa
  11. I agree with both the Tilt table test but whatever you do don't let them use the blood pressure to determine the dysautonomia..... I am dx. with POTS and several doctors said I didn't have pots because my blood pressure didn't drop enough. I would also suggest the 24 hour urine that will see his level of sodium and it checks for some other important things... Please whatever you do be proactive with his health........don't give up and remember the Doctors work for you!!!! If you go in there and expect them to help you because you are paying them to do that it seems a little easier to get things done!!! Hugs
  12. I was dx. with Multiple Sclerosis in 2005 and then pots in 07... the shocking feeling down spine and the numbness in left hand and arm is one of my first symptoms with the ms... but I really could not tell you which one it would be seeing how both are the nervous system....
  13. 1. Lisa Osborne 2. age 31 when dx and now 33 3. dx. with POTS with Multiple Sclerosis 4. I live in Campbellsville, Ky
  14. I have the same problem. Then if I am on my feet too long they begin to hurt really bad.... best wishes to you. lisa
  15. ok where do I start.............. just like most here you struggled with any doctor believing you and most pass you off as crazy or doing this to ourselves and put you on anxiety medications.... I wish some how i could go back to all the docs. and nurses who did that to me and my family and give them a peice of my mind and hope that they will reconsider how they treat people.... doubt it will work! anyways, I went to the physician list on this website and low and behold seen a doc. just 2 hours from me in kentucky who knows something about Pots........ and i made the appt. it was monday and i came out of there in tears with joy and peace.... he told me you are not crazy and most docs will tell you that but this is your autonomic system messing up.......... holy cow he didn't have to say anything else............ i was where i belong!!! I have POTS................ all the other docs couldn't understand why my heart rate was 160 standing and my darn blood pressure was remaining the same..... how about POTS and then they say no way your bp would go down......... bull malarky!!! I just want to thank this site for the info and education to get me to a place where me and my family can relax and not deal with the stress of docs. saying i need a shrink.... i highly recommend any one close to bowling green ky to go to him...... love all of you!!!!!!!!!!!! lisa
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