pat57

so glad it was a good visit and you are pleased with him.

anybody else on that?

I have had low potassium, was given some IV, and that was it. No further instructions. I searched around just now and found that its recommended to take a supplement breifly and not a mega dose. Potassium can actually be dangerous. And then as tearose mentioned take magnesium . My EP did ok potassium supplements for me because I was on high salt, and they work together. So to answer your question "can low potassium affect POTS", yes.

Hi Deucykub, Thanks for the reply. I did see RA Dr. Funny thing is I test positive for RA have abnormal sed rate and ANA, but don't have RA. (because my joints are normal) I was tested for "all" the other autoimmune conditions that they have tests for. Negative. My fingers don't go white or red- as with Raynauds. The go blue and are extremly hypersensitive to touch- but Ice feels good. So far episodes are brief and easy to manage. I would like to know what it is tho and surf around from time to time if something "rings a bell" like what you descibed.

are you well hydrated?

'POTS patients use about three times more energy to stand than a healthy person (Grubb, 2002). It is as if these patients are running in place all the time. Activities such as housework, bathing, and even meals can exacerbate symptoms" potsplace.com

can you make one of those girls a manager? good luck!

Deucykub, Is it painfully hypersensitive to touch and relieved by ice? My fingers and toes do this.

LOL, I vaugely recall that the sympathic or para sympathic nerves are effected by stress. And there is agroup useing copeing stradigy technics. I think its a clinical trial (the link was posted here someplace) OH mighty mouse- you have it? I have been in "cognitive therapy". And it does work wonders. I could get you lots of info on that, but typeing is not so easy for me. Neither is spelling! Your reaction to stress can increase or decrease the physical sensations , the phisological responses, the emotional. All are of couse connected in the human response. I will give you one example of how thought causes anixiety. Husband is late- no phone call. Thought -he may have had car accident- reaction aniexty. Husband is late - no phone call Thought - Phone is probably dead. reaction- less anixety. (that is refered to as , "taking the secure thought") small -pitiful example of the many things taught during coginitive therapy. But I hope it shows the point.

My only advise is that you may become dehydrated if the proceedure is a no liquid prior thing. Ask for an IV drip and of course explain your concern. I'm pretty sure you lay flat. I had one way back in 1990.

I have Neurocardiogenic syncope, so things might be different- (I don't know). BUT, if you have warning time with your near faint that's one thing, but driving with uncontrolled syncope can be deadly. I lost my license for 4 years, because of uncontrolled syncope. Since you did not actually pass out- I ASSUME- that is why you still have a license. Please do pull over if you don't feel right. I do not get the sensations you mentioned. If I don't get good rest, I am extremely crabby and exhausted. I did get moody- and headaches on florinef. Was taken off because BP went too high. One of my common symptoms is feeling dazed. You wrote "I feel distracted and it is hard to concentrate". This -FOR ME" means BP drop. I am able the raise it with a brisk walk and I am on meds that prevent the bp from casueing a faint- "thankyou Jesus".

I'm so glad to hear your son responed so well- Macksmom.

I don't know. But I can tell you I have veins that show behind my knees and plenty of "spider" veins. And I do have NCS. I see no swelling.

Travel by airplane is challenging for dysautonomics and may increase symptoms. Airplane cabins are pressurized to about 6,500 feet, which is high enough to cause some dysautonomia patients to hyperventilate. Hyperventilating makes a patient more likely to get symptoms of sympathetic activation (Robertson, 2002). Those with POTS do need to know that the air in an airplane is some of the driest in the world. Flying can have dehydrating effects in normal individuals. How much more so flying might dehydrate someone with low blood volume. Everyone should be well hydrated before boarding a plane. Also, normal people sometimes have trouble with blood pooling in their legs during flights. Rarely, this can lead to the development of blood clots. Patients prone to pooling blood may want to wear compression stockings when flying. Patients may also want to request a bulkhead seat, as this will give them more room to elevate their legs. http://potsplace.com/pots_an_overview.htm incase that's helpful good luck!

okay dokey, you've been here for everything -I see. Member number 3! WOW!

Buy whatever you like and cut the legs..................

thankyou for the replies, guys. Morgan have you heard of this? http://www.cureresearch.com/p/pheochromocy...oms_printer.htm I did a search to see what baroflex failure was and came up (somehow) with this. HTN was mentioned as part of pheochromocytoma. And look at the rest.

has anyone else experanced a feeling of wellness when engaging in fierce physical activities? The faster I move, the better I feel. I don't run, I'm not that fit, but I mop and do "heavy labor". When I went back to work I choose a job with constant motion. Standing or sitting- might or might not end in syncope but made me feel poorly.

there is only the present moment- what scars you bear- they are old wounds. You no longer need to tend to them. Still, if there is pain from the old wound- you will feel it- but it cannot cause futher harm. "They" do say emotional stress can be a POTS factor.

http://www.ciggyfree.com/AS3/depression.pdf long read!

the nictione blocks the natural addition of serotonin, and attachs its self to the receptors so that your level of serotonin becomes dependent on doseing with nicotine. When you withdrawl the nicotine- serotonin levels fall. I consider St. Jonhs wort very safe, but a person should always look into such things. So I do appreciate your adding that warning. As to the above. One should not take my word on that either.

http://www.uwswa.org/results/agencies.aspx there is probaly more help out there then you realize. And don't let pride stop you from allowing people to help you. People WANT to help, that is why the organizations are founded. Good luck! I was "looking" for a support group and got side tracted by these helping orgs. But I bet they know of good support groups just right for you. I was a single mom and have chronic illness, less delibating than what your faceing, but my ex tryed to ruin me financily, I made it, I saved the house we were in. He lost everything. I reached out for help,otherwise- things would not have come to this. rushing. sorry about the sloppiness of the post!

Maybe he has Wolf Parkinson White? Most abaltions are for that and DX by an EP.

Say, I'm sorry, I can't, to those things that are too much. I can't is an "end of discusstion" type answer- yet not harsh. Priotize your activities. Stuff is stuff, if your love your kids and they know it your almost "there". Disclipine yourself - you cannot afford to waste resourses. And do not regret doing what needs to be done. (such as laying on the couch)Go ahead and greive the loss of your health and previous strenth. You need to! For the most part a hug and saying "I wish I could............" will satisfiy a child---I think. I also suggest an approraite support group- for you. You can benifit in many ways. It is hard- good luck

when it reads 0, that means its too low for the machine, the P (palpable) means just that- I think. I don't remember haveing a cuff on at all. Might have? But you get wired. As to blood going to priotized organs. Seems reasonable to me to say- that's why we'er not dead!