pat57

I was on it for "epilepsy" which turned out to be NCS. Was having seizures. Anyway, no side effects. Well- a mild drowsyness in the begining.

Cool pun intended......

it sounds like anticipation of the procedure that causes the rise.

I take St. Johns wort. Sanctioned by the EP and my MD. Prozac kept me up.

http://www.rsds.org/3/clinical_guidelines/..._diagnostic.pdf long but worth a look see?

I do. 3 sticks, maybe- not 13!!!!!

I have when I stand up fast. be carefull-you!

I'm with you on that. We want to be heard. It seems the nature of apptments. Theres no "relationship" - your strangers. Theres time contraints. And an agenda. Not condusive to communication.

I had a Dr.- one time literally shake his head in amazement over how well I was doing. Statiscally , at that time, I was in the >15% survival group. I was not only survivng I was "well". It shook me up to hear how great I was doing because then I thought it was a fragile wellness. My point is that the fellow remarked what he knew, saw, and experianced. He was happy for you. (as my dr. was). I do not think either of them could predict the emotional reaction it could cause in the patient. I echo what Doctorguest wrote.

sorry hon. I recommend acupunture for mucsle pain. I was in a car accident and develp\oped arthritus, had pain everyday for years. I went to acupunturist for something else. But while I was there, he did the neck. The results were AMAZING. He told me that I my mucscles got involved because I was favoring the neck because of arthritis. Unbeknowns to me , the majority of my pain was muscles. I do not have EDS, so I'm talking about stiff or knotted muscles. I would think compression stockings would be a good idea- re your ankles. good luck!

are you stilling still? I try-always to be moving- if I'm standing, because of leg discomfort. I'm sure mine would be blochty and probabaly redish if I stood still.

Donna, I have trouble with the family too. I had an aunt tell me "That's not nice" because I don't make dinner for my husband and daughter when I go into to work at 4:30 pm. And I have a brother that laughs at me because I've said- I can't go-I have laundry to do. Well I don't like the Aunt and The brother is just being stupid. I have been stupid a few times myself so I can excuse him. He has done enough good things that I know he does care for me and "trys". I think the Aunt believes in MRS. Cleaver which makes her inflexable so I don't bother with her unless I have too. And I know she's wacked. good luck........

not me, I'm in PA.

I wonder if the family has a need to think of you as fabricating how bad you feel. That -to rationalize not helping you. Rationalizing to avoid feeling guilt. Being that you have a pace maker, its obvious that you have a serious condition. I think a pharmacist could help you with your concerns re adding another drug. But it appears to be part of a process to find what works best, and that can have a payoff. good luck!!!

According to my PCP emotional stress is physically exhausting too. Sorry about all your going through.

I went for various prolaspe problems. He asked what the symptons were and said to get a second ,long, appt, so he can have a good look see. Plan out the repair stratigy. He did want a "cardiac clearance" too. EP say not a problem. Also I was happy that he said there was no harm, in lifting, or delaying the proceedure. Sorry- I have awefull spelling......

hmmmmmmm ok, don't know how a high HR (only)factors in with NCS.

you do know that the vasodeppressor response is to HIGH bp right? Like I said, your high already then add florinef and your brain sees danger and lowers it. I have NCS, so I know a little on this subject. From what I have seen re your HR and bp, it would be dangerous and would need lowering!

Angela that reminds me of an upper GI I had. Threw up on my white shoes. They were fhloresent pink!

no, she doesn't

I hesitate to say this, but, my sister hears her heartbeat pounding in one ear and she has a glomus jugular tumor. They track it with an MRI.

this is just an off the wall comment. But, with you high HR or bp( forget which). what was he thinking???????????????? If it went higher because of the florinef your vasodepressor reaction is appropiate! Also just because you reduced the dose, does not mean the level has reduced- yet. You may be at high levels still.

I will pm yyou

Ditto- what Rachel said. Wish we could do more, but knowing you not alone can be immeasureable help in bad times. (((amy)))

slices of fresh ginger root, would be best. I have some dryed ginger it keeps a long time. difficult to slice but you can. http://www.suttonsbayspices.com/Spices_and_Herbs/23204.html