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juliegee's Achievements
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Hello my name is Sam, and I am contacting you because I really liked a few items you spoke on in a discussion thread or two, and was wondering if you could share a few thoughts on your journey. I have been having chest pain off and on for a year, daily, and just found out recently what it is ( vasospasms). I started calcium channel blockers, has helped. One thing I wanted to ask you about, is how has your journey been going with the vasospasms/chest pain, any better? Have you found any way to reverse the trend? Look forward to hearing back from you, and hope you have found some relief.
-Sam
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Hi, I haven't been on her in a really long time but hopefully you remember me - You really helped me thru the first few years of My son Kyler's diagnosis. I now have a friend with a daughter that pobably has POTS They live in central PA. I recall something abut you and your son going to Baltimore for treatment. If my memory is shot please forgive me. I'm trying to find a decent doc for them but I didn't like the ones on the dinet list for Pennsylvania. Please let me know where...
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Hi Mack's Mom, I just tried to send you a PM, but it says I can't. I hope you are ok. But just wanted to thank you for all the information about MCAd as I was diagnosed on Friday. We are taking more tests to see how far it's gone. I posted a thank you on Friday, but wanted to make sure you knew how grateful I was for your encouragement and concern. Big Hugs to you!!! Maiysa