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yogini

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About yogini

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  1. I remember the days when I showered sitting down in the tub. I didn't even have a shower chair. it definitely feels great to be able to stand! If you do it for a few times you'll get used to it and hopefully it will start to feel normal and you won't have to worry.
  2. Have you tried adding salt to your diet? At my worst I used to drink a cup of broth every morning and night followed by lots of water. I was able to retain lots of water that way. Midodrine constricts your blood vessels, so it won't help retain water. The beta blocker you are taking would lower blood pressure. That might be a medication to reconsider with your doctor.
  3. xSome of what you described with your family could be a miscommunication or them not understanding POTS. Sometimes you have to ask or explain what you're able to do. If your mom offers to take you to lunch at a casino, just suggest another place that you can go to. BUT even if they don't understand dysautonomia, your family should've known send you food or ask what you need after a hip replacement. Pretty much no excuse for that. Take care of yourself and don't feel guilty. You make meals for your mom, that is enough.
  4. I think you'd be better able to figure out the right fluid level for yourself if you go slowly.
  5. A normal person would get winded when running and talking at the same time. With dysautonomia our bodies are often operating as if we are running even when we are sitting or lying down, so this isn't an unusual symptom.
  6. Was it a difference in altitude? Also I wonder if the different food made a difference.
  7. Swimming and rowing are great exercises for dysautonomia. Also a recumbent bike can be easier than a regular bike.
  8. If you want medical compression ask your doctor. You can buy waist high compression hose and or an abdominal binder. People on this forum have also been known to use things like Spanx. But I agree with another person above. Abdominal compression may sometimes worsen digestive issues, so please consult your doctor. Personally I just find it too uncomfortable so I stuck to thigh high stockings.
  9. Most doctors wouldn't know how much fluid and sodium to intake. Even the doctors that do recommend give a range and we have to experiment. A lot of it is just trial and error - if you do it gradually you can see what helps. Remember to count all fluids (not just water) in measuring your fluid intake. 15 cups - if you increased suddenly, might have an impact on sodium and potassium.
  10. Anytime. I am better now. I look back and think I wasted too much time feeling guilty (and also worrying about whether I would have a POTS episode every time I was out). It never happened, though I had to sometimes pay after the fact it was worth it. Im no doctor but think in moderation you should be fine.
  11. If you drink alcohol once in a while it should be fine. When I know I will be drinking I load up on extra fluids before and that helps to minimize the effects. And when I feel like going out but not drinking, I sometimes get a club soda and tell people it's a vodka tonic.
  12. 90/60 is actually considered in the normal range of BP and yours standing BP is also seems normal. Definitely check with your dr but doesn't seem like you need any BP medicine with these numbers.
  13. If you take a medicine and this is a new symptom that would make sense as the first place to start. Did you ask your doctor or pharmacist?
  14. IF you start to feel better and feel up to it, you may want to consider starting exercise. The whole trick with dysautonomia is to get on some kind of medication and become more active if you can, even if it is just walking. Exercise can help lead to recovery.
  15. I also think that if you have any other medical problem and it is acting up, it can trigger a flareup of dysautonomia.
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