yogini

If your blood pressure is dropping when standing you can boost ir. Your doctor can best advise you but you can try water and salt and/or compression hose. Compression hose helped when walking and it has the added bonus that you can take it off when you don’t need it.

I makes sense to let the dr know. Is she taking meds to boost her BP or what meds is she taking? I suspect a doctor would not prescribe medication to lower for 134/90 BP. This is marginally higher than a normal BP of 120/80. I sm not a doctor but based on what I know with family BP issues this is not that far outside the normal range as probably isn’t what’s causing the sluggishness. You could try reducing salt, eliminating caffeine and drinking more plain water which would help to slightly bring down BP.

If the 20/30 don’t bother you then going up one grade likely would not, it’s slightly more pressure. Each brand also feels different and tge thinner dompression garments feel different than the thick. I wouldn’t overthink it. It you feel you could benefit from more compression and your doctor is supportive just try and see.

Can you find out from your employer what the specific concern is? Like do you operate heavy machinery or lift heavy items as part of your job? Are you fainting? Even healthy people have a fluctuating heart rate and millions of people with very high blood pressure - in danger of having a heart attack - all work. So it seems strange that your employer would need a letter from you.

I can’t speak to SVTs, which are usually considered separate from dysautonomia. However if you are experiencing ups and downs as part of dysautonomia it doesn’t mean your medication is failing. They are a normal part of our condition and no medication can prevent them. You may want to keep track of your heart rate and blood pressure when your symptoms act up to see if you notice a pattern. Fludrocortisone has the side effect of anxiety/adrenaline so if you are taking and feeling anxious that is also one thing to explore. But ultimately if you felt better on another medication combo and your doctor refuses to put you back on it and refuses to listen, thar is concerning. I would spend a bit of time asking him why. You could also get a second opinion from another doctor.

Background information about your condition, the origin and the treatments you’ve explored to date would inform the best next steps for you.

This is a disappointing response from your doctor. It seems that he or she is allowing patients to flood the ER at a time when there is low hospital capacity for a symptom the ER likely cannot help with. Rather, the doctor could provide a referral to a cardiologist, prescribe a beta blocker etc, Most POTS patients are told their tachycardia is typically not dangerous, but it depends on your particular issues. a cardiologist can run the tests and best advise you.

Sorry just seeing this. I would definitely see a sleep specialist as they can best get to the bottom of the issue and they will know a whole range of treatments you many not. It may also feel like adrenaline is keeping you awake but it might actually be something else

Yes I had symptoms with first and second shot but none that I could tell with the booster. It might be better to rely on data than one off stories. Another thing to keep in mind with the booster is that it’s usually only half a dose. Best wishes on your decision.

Have you measured your blood pressure at night? Often the heart is beating too fast to maintain blood pressure. For me I couldn’t fall asleep when my blood pressure was too low. Drinking a large cup of broth followed by several glasses of water right before sleep helped.

It is not unusual to have confusion or even misdiagnosis between dysautonomia and inner ear conditions since there is a large overlap in symptoms, and both conditions can be hard to diagnose. One way to know if your dysautonomia is acting up is to keep track of your heart rate and blood pressure, and you can be more careful at times when they are off.

I couldn’t hold down salt tablets, so I began drinking chicken broth. It’s much easier to have natural foods (olives, pickles etc) than to have salt tablets or to pour salt on my food .

Is your heart rate normal? A high heart rate can cause lightheadedness. But it’s also extremely common for dysautonomia patients to have normal stats, including blood pressure and blood volume, and still feel dizzy. This is because your autonomic nervous system isn’t working properly and not enough blood is going to your brain. The blood is staying in your lower body.

As long as your blood pressure isn’t high you may still benefit from water and salt. Check with your doctor. Blood doesn’t go to the brain which is the problem. Yes, having your period makes things worse

Being in a reclining position is a big help. Honestly I can’t believe that doctors didn’t figure all this out for us. POTS is triggered by being upright.