Jacquie802

Just curious if anyone has ever taken Ery-Tab 333MG?? It actually says that it is soemtimes used to treat gastroparesis, but that's not the reason I am taking it. I have to take it 3 times a day for 5 days, so I'm just curious what experiences others with POTS have had with it. Jacquie

Just curious if anyone has had any problems with a tetanus shot..? I got a human bite on my finger (more about that later) and I have to go get a tetanus shot... Jacquie

Hello, and welcome aboard!

My EP/Cardio also wanted me to try Zoloft as well....

I'm a little peeved, so I apologize for the crappy mood I am in. Last night I went out with a friend to a bar (for food, no drinks for me) and we had to wait for seats to become open. So some seats open up and a few girls we went to high school with were going to take them even though they had literally just walked in and not waited 20 min like us...So I sat on the chair next to me that was open...THEN my friends goes Jacquie why aren't you being nice...I was soo pissed so I said because I've been waiting here alot longer...She knows about my probs with standing, etc. so this comment really really made me mad. She really put me on the spot like a was some witch, but really I just needed that seat because I wasn't feeling great and I'm sorry we had also waited alot longer.... Just needed to vent! Jacquie

So I went to my PCP today and showed him the lump on my neck....He said it wasnt my thyroid or my lymph nodes...that's all he said! He did say if it got larger or I was worried about it to come back, but what the heck...I do have an ENT i see so i was thinking about making an apptmt with him..However, when I told my ent about the lump on the roof of my mouth years ago he said it was nothing....who knows.... Just thought id give you guys an update...if that's what ud wanna call it! Jacquie

Sometimes anti-anxiety meds are used to treat POTS...So even though your not diagnosed by ur docs as having POTS it could help you out symptom wise...

I agree with what the others are saying...def. go to the ER if you are still having the prob, that way it is at the very least documented... Jacquie

The hospitals around here will pay for the use of their medical equipment, but DO NOT cover the doctors fees...i.e. EKG interpretation, etc.

Would you mind letting me take a peak at the brochure if it is online?? Also, what has your doc given your son for treatment??? I just ask because I have horrible nausea that I've been dealing with and havent found a med or treatment that helps... Jacquie

So, I'm pretty sure I have mentioned before how I've been getting spells of tachycardia after I wake up...I've tried taking meds (BB) before I nap but then I wake up very dizzy, but if I don't take anything my heart is zipping right along...I'm not sure what this is, because sometimes if I had a sip of very cold water it goes away, but if it is my SA Node Re-entry problem then wouldn't it be more random then always happening when I wake up from a nap or a night's sleep??? Thanks, Jacquie

How do the cats get along?

Glad to hear that you are home! Enjoy getting some Z's in your own bed

Hi guys and thanks for the replies... On one side of my thyroid area i have a lump...I'm thinking it is most likely a goiter but I am going to have my PCP look at it Friday.. I do have another lump on the roof of my mouth, but it has been there for years...I had a brain MRI within the last year, so if it was something like a tumor I'm thinking it would come up on a brain MRI?? I'm going to point that lump out as well to my PCP, but I was just curious if anyone else had the same type of things... I have had numerous thyroid tests and they come back normal... Jacquie

Just curious if anyone else has this...I'm not even sure if it's related to POTS, but anyhow...I have gotten my thyroid tested numerous times but i notice that i have a lump on one side that is larger than the other....I've had a brain MRI but im not sure if it covers that area?!?!? I see my doctor Friday so I'm goign to ask. Ive also have a lump on the roof of my mouth but none of my doctors ever thought anything of it...Just curious to see if anyone else has had anything similar to this?! Thanks, Jacquie

What med caused you to get sick?? Hope the day passes by soon enough for you.

That doesn't sit well with me either... I hope this doesnt offend anyone, but it almost sounds like a silly name for such a serious illness....We already have a hard time finding doctors that can help us....

Thank you soo very much for the updates, Emily. Melissa is often in my thoughts and I wish there was more we could do for her.... I'll continue to keep her in my thoughts and prayers that she gets home soon! Sorry this is a little late, but Melissa I hope you had a very happy birthday!!!! Jacquie

Hi, I hate times like this when everything seems to be going wrong. As for the Keflex, I have used it a few times. I think I was on it for UTI's or something of that nature. I don't remember having any side effects that caused me to stop using it. As for the support system I only have this forum and my therapist...as silly as it sounds though sometimes I don't think she quite understands what I am going through....If you wanna talk more feel free to PM me. I hope your nasty infection goes away and things start to look up for you! Jacquie

Hi, Just curious if tachycardia can cause severe nausea...? I just woke up from a nap with horrible tachy, which has been happening lately, but I have this horrible nausea as well that goes right along with it... Just curious if anyone else experiences the same thing.

Maybe a vitamin defficiency???

I am right there with you!

Hi, I have been sick for about 3.5 years now. The major thing that I have to get over and know it's a huge issue now is being scared to do things. I just turned down a trip to Costa Rica, that was free for me. My huge concern was that the closest hospital would be 40 minutes away. Pre-POTS I wouldn't have cared how far the closest hospital was, etc. I have improved somewhat though, I now drive by myself in my car to places and can even go into stores alone...My huge fear was that something was going to happen to me, as crazy as it might sound to some people at times it's still very real to me. I remember not leaving my house alone for a year or two and my family would get soo mad and aggravated with me, I guess it's because they felt like they had to babysit me... I personally don't know if I'll be back to my old self again, symptom wise my doctor said that I will have waves where I feel horrible, then waves where I'll feel somewhat normal. I got this condition after having a viral infection, but I truely wonder if I had it before then because I remember always feeling fatigue, malaise, etc. during my years at high school... Very good topic! Jacquie

Willows, That is a very thoughtful and great gift idea...I bet he is going to enjoy it! Jacquie

Hi, I usually drink lots of water before I go out and avoid consuming too much alcohol. However, no matter what I do, I usually end up feeling crappy for a few days after the event I figure it's worth it though if I can go out and have a good night! Jacquie