
bttrflyamby1981
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0 NeutralAbout bttrflyamby1981
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Rank
Advanced Member
- Birthday 01/25/1981
Contact Methods
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MSN
aquabttrfly@hotmail.com
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Website URL
http://
Profile Information
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Gender
Female
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Location
Arizona
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Interests
I love to read! I also find the computer is my "friend". Without it I don't know what I would do.:) I have 2 kids ages 6 and 3. And then I have my fury kids. LOL 1 dog and 2 cats.
Recent Profile Visitors
3,075 profile views
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I Past Out This Morning....
bttrflyamby1981 replied to cardiactec's topic in Dysautonomia Discussion
I'm sorry you passed out! (((HUGS))) -
You sound like you've gone your limit....please take care of yourself. I'm sorry about your grandfather. (((HUGS))) My sister passed away Sat due to a heart attack. I hope you can enjoy your time with him and that the POTS will chill enough for you to get through all that your going through. Best wishes
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glad your home!
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Anyone With Similar Symptoms In This Cluster
bttrflyamby1981 replied to nikigrl8883's topic in Dysautonomia Discussion
I have most of your symptoms.....your not alone sweetie. -
Please Help - Tingling Hand?
bttrflyamby1981 replied to JenniferInOhio's topic in Dysautonomia Discussion
try opening and closing your hand into a fist and see if that helps get blood flow to your hand? I have carpel tunnel and I have to wear a brace on bad days. -
I spent 2 years with a Dr when I should have moved on when he said he didn't understand POTS. My fault! But I now have a EP who is very understanding and compassionate. I hope you'll find one that will fit your needs. (((HUGS)))
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In my opinion even though your sons hr didn't go above 100, it sounds like it could be POTS. It did go up 30 bpm. Do you know what his vitals were when he vomited? Not knowing your Daughters vitals it would be hard to tell, but I'm guessing your intuison tells you what's going on. Listen to it. My first TTT was nagative. It took 2 years before I finally got diagnosed. I knew all along this is what was wrong with me. However the Dr I had didn't understand POTS. He himself admitted as much. Maybe you'll need a second opinion, I would ask for copies of the TTT and take it to another Dr. Best luc
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I can't add anything, just wanted to give my support.
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I Hate To Even Write This...
bttrflyamby1981 replied to Michelle Sawicki's topic in Dysautonomia Discussion
awww this is awefull news! So sorry to hear. (((HUGS))) Melissa -
Thanks for posting for Flop and being a true friend! (((HUGS))) Flop! I hope you get better soon!
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I have a 3 year old so I understand!! He LOVES playing with playdough and board games. Of course both take energy having to clean up or show him how to do the game the right way. I have a 6 year old too and they will sometimes play nicely together. But the FIGHTING. I guess this is my fault since I know most of it is brought on by boredom. Independent play can be good for a child, don't be hard on yourself. As long as our children know and feel we love them, what we are able to do doesn't matter. Now if only they could give us a little of that energy! lol
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Just wanted to offer a (((HUG)))
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thanks for checking in......I have also read that it can take 8-9 months. But some sooner. I guess it just depends on what the SS department is doing? Good luck.
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The Lovely Topic Of Diarrhea!
bttrflyamby1981 replied to Canadagirl's topic in Dysautonomia Discussion
that makes me think allergy if your normally not like this. or even a viral infection..are you running a fever or anything? -
I have no idea? Could it be from an allergy to a new food? Hope you figure it out.