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About Sophia3

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    talk radio, Internet, Nascar, Formula 1, IRL, cats, learning to do light gardening, TV..old shows on DVD

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  1. has nothing to do with bladder spasms. Simply a vagus nerve response common in MANY dysautonomia patients. with some it's tachycardia, others syncope (fainting) or pre-syncope. hope this helps. http://en.wikipedia.org/wiki/Micturition_syncope
  2. Cordelia, thanks Bella, I stated earlier I do NOT HAVE SMART phone or ipod or any of that modern junk. Thus I need a BASIC wrist HR monitor that is dependable I need something EASY to read due to bad vision and wear STRONG reading glasses! ps My HOUSE mate has an ipad but I find it most difficult to type on touchpad.
  3. I want to HR monitor but if you wear a chest with a beep, can you shut it off? I don't want to be using things at the Y & call attention to myself. I'm thinking maybe a watch monitor if those are accurate. Would like one UNDER $100 even better if around $50. I'm concerned with volume on the beeping too. anybody have any tips or links of what to buy? p.s. I want something self contained. I do not use a smart phone. My house mate has an ipad but their stuff is $270. OUTRAGE. I dont' work and he lost his job :-(
  4. Been using DDAVP for 10 yrs. Life changing. keeps me from being dehydated. Use as needed. never had water deprivation test to check ADH levels..Dr said too dangerous. So we went by clinical symptoms & I no longer lose 5lbs a day from EXCESS urination. Been fine for me. Good luck.
  5. was dx with CFS in 86 when it was called Perpetual Adult Mono by am Immunologist I saw..then they changed name to CFS as it was more than EBV..then Johns Hopkins found the ANS connection (as had the late Dr. Streeten for years but didn't know Dr. David Bell was studing CFS pts with O.I.) Anyway, sleep centers found I have alpha delta sleep disorder which means very LITTLE refreshing sleep...so vicious circle for decades. Very complicated this CFS umbrella just like ANS issues. But any documentation in tests is always a good thing though many many SERIOUS isssues are dx by exclusion of other t
  6. Sandy shell. this is the best GF Pasta (was on the diet for awhile & folks that are GF really love this brand) http://www.tinkyada.com/ Also there are good Pamela's cookies that are great though pricy and all sorts of GF mixes easily found. I made a great GF chocolate cake recipe, too. That said GF products go stale quickly so wrap & freeze accordingly. http://www.food.com/recipe/one-bowl-gluten-free-chocolate-cake-209764 (*I got gas & pains from xanthum gum, which is hard to find info on online for this. In store bought versions, no issues. Something about the kind I bought &
  7. I'm CONFUSED. IT says Midodrine in the title but the post/link do not mention it. Please ENLIGHTEN me. And is this drug OFF the market again. I don't currently use it but LOVED.IT!
  8. Yes it was MYLAN that was horrible. I needed half a pill & it crumbled in the scored area so much, Kroger ALLOWED me to return it & just pay diff for name brand. Anyway, we guess Shire changed their mind & quit making w/o alerting the media Glad I never counted on it to function but many do . . .
  9. Sorry you can no longer get Proamatine. I've not come here much in last several months but am confused. I thought many posted here that Shire was STILL making this drug due to our calls/emails & such. Is this NOT TRUE?? No more proamatine. Can somebody update people? I was thinking of asking for a script but not if there IS not medicine. Generics were CRAP..especially the one made by that drug company in Morgantown W Va . forget the name
  10. I have not sweated in hot climate for years! I may a little bit under arms or with cold feet when not appropriate (like when cold/nervous) Now I am in full blown menopause (no estrogen and FSH at 132. I've experienced hot flashes in last 3 months. (Exercise is NOT HELPING them AT ALL by the way and I've even way stepped up my routine but I digress) While not drenched, I do get to perspiring on abdomen, head, under arms and one night had to change night shirts. Anybody else experienced this? MY ANS doc just thought it was interesting but nothing with my body suprises him. Good news is when it
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