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mom4cem

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Everything posted by mom4cem

  1. Welcome. You will find great information and great people here. Finding the right doctors and the right medications or things that help you feel better is the never ending quest. Asking friends or relatives for a referral might be one way to go or might even help you stay away from certain drs. I had trouble in the past with coming of of prednisone. Chills, panic etc. I know I have dysautonomia with lots of different symptoms too. Let us know how you do.
  2. Sorry . He is in a better place without pain. I hope you find a way to make peace/closure with your feelings. How about writing it down? Sometimes it is easier to get it out that way. Hugs out your way..
  3. Hi Julia, Ouch, sorry about the cavities and cost! I don't think I have many teeth left that have either been filled or are crowned. The only teeth left are the pointy teeth on top and bottom. Any molars have all been worked on I get numbed with out the epi in it. I ask everytime I go. I need to make my appt and go get them cleaned again. Hate the poking and prodding and scraping,yuck. Just had the 4yr old get his cleaning. He had 3 cavities,,he still has all baby teeth. Cost 400 smackers for that. That certainly hit hard and these are baby teeth. But these are on teeth that won't come out until he is 9 or 10. The kicker is hubby went with him to get them filled and he did not even drill, just had to pick out the cavitiy with the pick and fill it. Guess we are paying for the fish tank and nintendo games in his office!! Can't wait until he can go to the reg. dentist like the rest of us. (The reg dentist could not work on him and referred us to a pediatric one)..
  4. Happy 30th!!!! May this mark the begining of a healthy new feeling and outlook for you.! Enjoy the day in whatever makes you feel good and makes you smile Am I the only one who just stopped at 29?..My birthday calendar never turns..lol.
  5. Glad to hear you had a good trip to the clinic and some fun on the return trip. Yikes, teeth cleaning dislike that also. Wishing you a white smile and a cavity free mouth
  6. Hopefully you were able to get some rest and are feeling better now. I also tossed and turned, and turned on and off the tv all night. Chest tightness, adrenaline kicking in,,yuck. Wishing you a better day today
  7. ((((hugs)))) to you. There is no easy way to say to handle this. While my 39 yr old cousin was dying I went to the hospital, heart racing away, lightheaded. I thought at some point I would pass out. It is not easy by any means. You should not feel guilty about not being able to be there. I am sure he understands and would not want you to risk your own health either. I am sure also your father or other family member has passed on your love to him. How about contacting one of your relatives to pass on your words to him? Try to hang in there during this trying time. Don't be suprised that him being at peace with what is going on that one can somehow pass our feelings to another through our thoughts even though we maybe miles and miles away.
  8. Maybe you pulled something, have a muscle spasm. Especially since it hurts when you move around. Heart attack I would agree that it would hit and happen and you would know. I don't think it would be reduced by sitting or resting. Call your dr. in the a.m. for reassurance. Of course if it worsens or you are really worried a trip to the e.r. or a first med type of place would hopefully put your mind at ease also. I had a pain once after reaching to get something under my bed I could not move or breathe in without being in pain. I layed on the floor for a while, then finally was able to painfully get on the bed. I could not lean forward because the pain would be awful. It eventually got better, but it frightened me, it was on my left side and went to my arm, but it hurt when I moved or breathed. An ekg at my dr office showed no changes. Hang in there, try some moist heat or heating pad to the area.
  9. You are not a failure. I don't think I could even get as far as you got. I see a therapist sometimes more often then I taper off depending on how I am doing, what I am dealing with. I don't know what you have been through or going through personally, but maybe it is just the need to find the right person to help you on the outside. I've switched therapists at one point because of insurance reasons and I had to go back to my original one even though I have to pay out of pocket. I just did not get the understanding, not even the right kind of vibe from the second one like I did with my original therapist. It certainly is tough to go through, I go through depression and anxiety spurts. Lots of supporting hugs out to (((you))).
  10. I get that feeling around my neck at times. Feels like someone is choking me. Can't wear turtlenecks or things like sweatshirts with a hood, feels like the neckline is choking me even though it's not. Happens even when I wear a tank top.
  11. Paige, Hang in there. It is a positive thing you getting help. It may take some time but I am sure you will see things differently soon. You are in my thoughts.
  12. Hi, Sorry about dumping a pity post on the board now but my 4 year old just does not want to listen to medical problems anymore go figure! lol I have been having occasional episodes of chest tightness, no pain, high heartrate at rest and tachy when I get up and move around. I had this since Fri. over the weekend I could feel the pressure in my face, almost like being choked around the neck. My b/p was usually 100/80 or 95/75, not bad by far but for what I was feeling I thought for sure it would be higher. The tachy from moving around would jump to the 120's. Its gotten better but comes and goes. Still getting out there and trying to keep moving and making pathetic attempts to exercise. Saw cardio yesterday and while he did not say much he did say he want's to repeat the echo/stress test I had a year ago just to be sure. When I questioned him if he thought this was just more dysautonomia symptoms he said yes but want's to make sure. I asked if he was worried or looking for something and said no. He knows I am a worry wart nut. I always worry that they are not being totally honest with a patient, but I have been with him for over 10 years. I hate tests. I worry to the extreme of the worst case scenario of what they will find. Last year I had the usual show, MVP with trace regurgitation of valves. Been that way for years. Dump a nasty head and chest cold on top and I am sure I will be huffing and puffing during the stress test, lucky if I make 3 minutes. So I sit here blowing my nose, coughing and worrying incessantly about Mondays tests, thinking will I see my kids grow up etc,,see where I am going? What has changed, whats gotten worse etc. Straight downhill with this negative thinking This is going to be a looooong weekend. Thanks for listening.
  13. Glad to hear and speedy recovery
  14. Hi Faith, Just catching up to this post now. It sounds like you have a dr. who really is trying to help as well as his nurse, but it so unfortunate to hear those words, we don't know what else we can do". Don't give up hope, hang in there, from your posts you have been through a lot already and I'm sure you will get through this one also. There's something out there or some combination I'm sure that will help you. Keep the faith
  15. Hi, I take a low dose tenormin(atenelol)12.5 anymore and I begin to drag. Fluids help also. Sometimes it just seems to run in cycles. At times more so during prior to menses sometimes during and other times during stress. Seems to hang around for a while then subside. Hang in there
  16. Glad to hear he was willing to help. At least he is being cautious and wants you to try it out first in the hospital. Keeping my fingers crossed it helps you
  17. I hope you are up and around feeling better soon. I am with you in the sinus boat. Just woke up with it today and the humidity is high and I am sure the mold will follow right after too.
  18. That is interesting. I have read about pulse pressure. I wonder if it pertains during spikes or if it really is more for hypertensive patients. What I mean is that blood pressure can vary over the course of a day. Just as they don't consider on hypertensive unless they get consecutive readings at visits that are high. So for us who are not exactly "normal" and go through periods of highs/lows can we really apply this for us, especially if it is not like that day to day? As I type I am going through a high episode. When I check it is either 120/85 or goes to 110/82 aroun there. Thanks for the info.
  19. Hi Lois, Nice to see you so positive. Your term living in Pink is a nice way to say it. It may not mean much, and I have not been personally affected by it, but I have been wearing my pink bracelet for quite a long time. Thinking of you,,,keep strong.
  20. Hi Susie, I don't think we have met. Hello ..I am 39,,(yikes!!) and a Mom. Always swore I would never be to my kids as my Mom was and at times, still is to me. But, must be genetics, starting to sound like her more and more.. Your Mom is being protective, having a child that is ill or has been very ill at some point puts us in that mode. My kids are still young but I remember when I was about your age wanting to borrow the car and go hang out. I had to beg/plead, you would think that I had a "hit me" bumper sticker on my car or something that she was so worried that something would happen. Well anyway, Mom will most likely get used to your being independent, slowly though. I give you a lot of credit for getting out there and doing this on your own. It is something you sound like you really want to do. Hmmm, the only time I have gotten close to a goat is going to the local plant nursery and they have some animals there for the kids to feed during the fall. You go and enjoy. Just keep Mom in the loop with some calls to let her know you are fine. Have fun! Baaa, I mean Bye!
  21. Welcome Steamship, At times I have incredible fatigue. I hve previously been diagnosed past positive for Epstein-Barr(CFS) I had titers so it should previous exposure and there was a time when I was so tired I could barely move but it did improve. I usually notice the fatigue in my joints and incredible brain fog. I can't say I have found anything to help but rest when you need it and keep up fluids. If you have not already done so, I would do what the others suggested to cover all the bases, thyroid function, adrenal function tests etc. Hope you get answers soon.
  22. ((((Lois)))) That really is a double whammy and I am so sorry you are going through this not one but both at the same time. I am still basically new here but I have never thought your posts were irritating. I admire a "tell it like it is" approach. I am sure with your attitude you will triumph.
  23. Sorry for what you have went through over the summer , but glad you are back on the forum. I have two boys and a girl. She is a "hurricane" in herself. If I had 3 girls and they were all like here,,,boy I don't what I would do. She is not even in the teenage yrs yet but she is already showing signs of the "pre-tweener" syndrome. My oldest boy pretty calm, the youngest guy, well at 4 he is a handful but he is picking up many of the habits and mannerisms as my daughter(who decided to take him under her wing Oh yeah, I will be paying for that sooner or later!!! Hope to see you around
  24. KLS, I'm sorry you feel this way. I know, I have felt that way too at times, but really I know it is because not everyone can apply themselves to the topic, they either have never experienced it, are just not feeling well enough to post or whatever the case may be. Even if I have only gotten one or two replies I have found great comfort in that. Please don't feel left out, we are here for you.
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