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About purplefocus

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  • Birthday 08/03/1966

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    I love being a mom to two beautiful boys and spending time with my new husband.

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  1. Hey all, its been awhile since I have been on here, but wanted to see if anyone had every experienced anything like this? Yesterday (around 1pm) I was feeling really tired (I had sorta felt bad all day), so I laid down, well I remember my boyfriend trying to wake me and I just could not get all the way woke up, sorta felt like the way you do when you are coming out of anesthesia. Anyway, I obviously fell back to sleep. When I woke up again I was in the emergency room and my ex husband (lol) was beside my bed. I really honestly thought I was dreaming. I must have looked frightened, he re
  2. Thank you for all your support. I got out of the house tonite and went to cracker barrel with my boys. It was so hard but I made it and I think they really enjoyed it also. When I left the house, my neighbor asked me had I been on a trip or something that she had not seen me in months. I think I took a huge step by getting out tonite. I am so exhausted but I feel better also if that makes sense. I didn't think I was gonna get back up my steps but I did manage. I really appreciate all of your responses, it really makes a difference. Thanks Thanks Thanks Paige
  3. It has been along time since I have been in this forum. I got into a huge depression and just withdrew myself from everything. I'm trying to get myself out of it. I stay in my house all the time, I never get out. Its just not worth it. By the time I get a shower I'm so exhausted that I just go back to bed. My quality of life is horrible and I'm so frustrated. I have another appointment with my doctor on the 20th. I hope there is something that will help bring me up. I have been reading some of the post on here and it has actually made me feel better knowing that I'm not alone in how I
  4. I so know what you are talking about. I have had people to accuse me of drinking or being drunk............very frustrating.
  5. Hello Everybody, I am Paige and I use to be on here alot. It has been a very long time since I have been around. I had gotten really down with the dysautonomia symptoms and depressed and just crawled into a whole. But I do want to share something with you all that has happen in the past few months. I think stress has more to do with what brings on my symptoms more than anything else. Just read this. About 2 1/2 months ago I moved away from where I had lived all my life. I moved almost 200 miles away from there. Well I was sick most of my time...rarely having good days....since I h
  6. Hi, I'm so sorry you had to deal with this uninformed person. The medical staff makes me so angry when they are so hardheaded and just trying to get you out of the door. I am a nurse myself and I never jumped to conclusions or if I had my suspicions about someone I kept it to myself. You need to find another doctor. They are out there, you just have to weed out the bad ones. I worked with so many doctors and nurses in the past that I really wondered where they got there licenses.......I don't think some of them came from any college. It was scary. I got the actress award also, I was so
  7. Dr. Moore is my doctor. She is truly a wonderful person. She never once made me feel like I was crazy or that is was all in my head. She has tried numerous things with me........not only medication and she won't give up on trying to get me to a better quality of life. When ever I have had to call the office I always get a quick call back. I have nothing but praises for her and the staff. She has done so much for me and is still trying. I know I am in a better place than before I was going to her. I was passing out 4 to 5 times a week and now it is down to a few times a month. I think
  8. I'm glad you are going to talk with your doctor. My legs hurt all the time to the point I could not stand to put much weight on them. They would feel numb and tingly and just plain hurt.........it didn't matter if I put them up, down, side ways, upside down. My doctor tried to do a nerve test and after a short time I just could not tolerate it, he went ahead and started me on Neurotin and it helped wonderfully. I was at the stage of being driven everywhere and once we got to where ever I got out at the front, went in the front door and sat down.........I only went to the doctor, Walmart.
  9. I know I would like at least 2 that is if they come in size for the fluffy women. Like everyone else after seeing design and price probably more. Paige
  10. Hi, I got approved on the first try. What I think helped with my case is the detailed of daily living activities. I left nothing out. In many cases I compared what I can do now to how much more of that activity I was able to do before. I do mean everything from trying to brush my hair to unable to stand to cook dinner for my family. I tried to think of everything. It might not have been what helped because I did send my medical records but I truly believe it did. Oh you might want to make a copy of what you fill out........I had to fill the activities sheet out a few different times.
  11. Hey everybody, Do you remember me? I still come on and read every now and then but I haven't responded to anything in awhile. My life has gotten soooo much better. The severe depression has gotten so much better and I think it is because I finally accepted I have an illness that gives me limitations. I still push myself hard but I don't expect unrealistic things from myself. I still have all the same symptoms regardless of all the medication changes.........with fatigue and slight confusion being the worse. I deal with it so much better now........my family and I just expect that
  12. Hi, I'm so sorry about the loss of your sister and all the stress you are going thur. Your symptoms sounds very familiar. I too am also a nurse and have 2 children (4 and 14). It's very important to find out what is really going on with you like they said in the other post..........don't let a doctor just label you. If it truly is POTS then hopefully you can find a doctor that specializes in DYSAUTONOMIA. I don't know if you have been to an ER for any symptoms but those doctors are usually the ones that want to say you are having a panic attack or such (at least that is my experience
  13. Jan, You and Jeff are in my prayers. It makes me very sad to read what ya are having to go thru but no one can say EXACTLY how things will go. Try to get that chin back up and enjoy today. Paige
  14. Becky, I am so proud of what you are doing. I know how devastating this disease is and how employers can be. Sounds like you did an awesome job yesterday. My thougths and prayers will be with you today. purplefocus
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