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Everything posted by mom4cem

  1. Hi, I'm in Nassau County.just over the NYC line. I see you are up in Albany. Have a good Dr. up there?

  2. I wore a holter recently and had these episodes while wearing it. Though my heartrate went up there was no significant tachy or arrhythmia so I'm guessing it's some kind of dysautonomic episode. I've had these episodes on and off for a while.
  3. Hi, I took the same drug one time and had such episodes of tachycardia that I felt it had to be from that since it happened like 2hrs of taking it. Then I took it again and it was the same. It took me a while to get over it. Felt like it sent my system into overdrive for a while. Feel better.
  4. Made me cry. Been feeling bad these past few days. It really was nice to read.
  5. I have a rx for bystolic also. I take atenelol 12.5 in a.m. and 12.5 p.m.. I'm waiting to hear from my dr. exactly how to take it before I switch
  6. Oh yes. I have to stop with each bite and I pant. You would think my nose was all plugged up with the way I breathe but I can't seem to get enough air and eat at the same time. Don't know what that is about but I've had it for years.
  7. My heartrate does not have to be high for me to feel bad. Many times when I'm lightheaded, shaky etc, I check my pulse and it's fine.
  8. I also tested low in Vit D.. I took a 2000 IU supplement every day, and the next blood check I had which was about 8 weeks after the first my levels were heading back up. I still take one every day and have for the past year and half.
  9. My dr. had did a saliva test on my adrenals..cortisol..on me a few years ago.... though I had a normal rhythm of up in the a.m. etc... I was low on the charts.. so based on that the report said I was borderline hypocortisolism. I started licorice.(yuck),,I also took an whole food supplement adrenal booster..(can't remember the name anymore), then took a powder adrenal booster-Dr. Wilson's Super Adrenal-. I'll have to look back in my records to see what else I took. I go through periods of being really tired,,constant yawning even with 8 or more hours of sleep, achy joints and muscles, brain fog..feel like I can't even muster enough energy to move from sitting.. it is like a crash. Crash and burnout to be exact and it can last for a while. Usually it comes on from not taking care of myself as well as I should. I'd like to hear what this Dr. suggests for you. Interesting to learn new things. Very nice she remembered you and took an interest. There really are good ones out there.
  10. So sorry that you have to be here, but glad you are on the forum. I'm also a fellow Long Islander. I am older than you but my symptoms started when I was about 24..gradually seemed to wax and wane and then peak in my 30's and still pretty much there in my 40's. After all these years I have not really had any diagnosis other than MVP and Dysautonomia. Mostly have been told over the years, anxiety or just "too sensitive" to my own adrenaline. Many of the same symptoms I can sympathize with and over time I've just found to either avoid as much as possible what brings on symptoms (we know we can't avoid everything) or I try to really do things at a less hectic pace, try to fluid load before doing something I know will put a strain on my symptoms etc. I have given up a lot along the way but now I try to get some of those things back, like going to the movies(the loud sounds can send me over the edge..lol)..enjoying the summer etc. all in small doses. Are you on any medications or have they suggested any to you or offered any type of suggestions?
  11. I find that I notice the floaters more if I am looking at a bright white wall and also if I am having more problems with allergies and sinuses. I wear sunglasses every time I go out, it helps to reduce noticing them.
  12. Interesting with a happy ending.... http://cosmos.bcst.yahoo.com/up/player/popup/?cl=11681289
  13. I was not bad on it but when I went off of it, Wow...!!! tachy and anxiety...
  14. It snowed a nice bit here and my daughter wanted to meet her friends and go sledding. I've been feeling fairly well lately so I agreed and took her. One of her friends threw a snowball at me and I, unfortunately, ran down the hill and chased this kid to the bottom of the hill with some snow. As fun as that was for my daughter and friends to watch, what an idiot I was for doing that. I walked back up the hall and when I stopped I noticed how fast my heart was beating and how hard I was breathing. I sat in the car, my hands were shaking and had to take another 1/4 beta to try to slow it down. It worked after a about 30 min,,it started to slow, but boy have I had adrenaline swirling around my body all the rest of the afternoon, last night and today. Reflux kicked in to boot. It really bothers me that I can't do something as simple as that without potentially throwing myself into an episode and paying for it for days. So even thought my hr is ok with the beta I feel hyper, like my heart will race anytime, wired and tired. Arrgh, tried to have some fun with my daughter and paid the price. Guess from here on in it's sitting in the car and watching..boo. This stinks!!! You start to miss all the simple things you took for granted before.
  15. I have the newer GABA and have been taking it sporadically. That's probably why I've not noticed much of a difference except that it does help with my sleep. I have to start taking it regularly.,
  16. Oh My! I really hope they can stop these from recurring. Sending you well wishes, speedy recovery and hugs!!!
  17. For me I am 5'10 1/2,,,(think I'm shrinking) used to be 5"11. I'm 132 pounds and I struggle to keep that up. now being in my 40's it's still that way. Look like a tall walking stick with arms, legs and hair
  18. I use xylitol gum also. Some trident flavors use xylitol, you have to check the labels. I've not had any problems with products that use stevia as a sweetner and like the earlier post suggested, Whole Foods is a good choice since they carry such a wide variety of brands/products. My Dr. has me using some powder supplements and they use stevia as a sweetner, I drink a glass of the powders mixed in the a.m. One is for greens and the other is a protein and one other is red supplements(berries, etc.) I do find I have energy after drinking it. I've been using two of the powders for 2 yrs and the other on I just started. I acutally like the taste. If I remember correctly Whole Foods carries a brand of flavored water that is naturally flavored, no sugars or artificial sweetner. Just can't remember the name now. It takes a lot of looking at labels, but that would be the place I would start.
  19. A non-med alternative for you might be mangesium citrate(powder). Regular magnesium may do it, usually when you take magnesium they say to take it to bowel tolerance. I take magnesium because I have low magnesium, but certain types are not so well absorbed so they go to your bowel and can produce loose bowels. I take oral mag(taurate-it's better absorbed) but I also take a mag product called Natural Calm. It's a powder that you mix in hot/warm water, it fizzes and you drink it. I, 99% of the time have a movement the next a.m.(after taking it at night). My mom has issues with constipation and when she started to take it it helped her. You can follow the directions and work up to bowel tolerance. Just a thought.
  20. Poor fish. She has been through it so often. Keeping you in my thoughts and prayers. (((((((((hugs))))))))
  21. I go through periods of the day with it. I went from someone who rarely sweated before to times now when I am embarressed at how much I can sweat.
  22. I know when I feel like I'm fighting off a cold or virus my heartrate climbs and stays high for a few days, even if the virus or cold does not really come out. I usually start with zinc to stop the cold n virus but I guess just it being in your body, just a little is enough. Hope you are feeling better.
  23. I can't offer any input but just wanted to say I'm keeping you in my thoughts and I wish you the best. Yes, please keep in touch and let us know what you choose.
  24. Good Luck~~~You're in my thoughts!! Get out soon
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