nadine

Happy belated anniversary- thoughtful husband and wonderful gift!! YOU and your son are doing great!! I am sure you will look wonderful in your outfit.

Melissa- you really deserve a break here-- my goodness. I hope your next visit at the hospital is far less stressful. Did they file an incident report regarding these residents? My former employer, health care facility, had a system where incident reports were completed. The focus being on how to prevent such things from happening again. They would go for review and discussion- then action. Pt. would be contacted regarding the action that was planned or discussed. well - rest before you get back there!!!!

I hope your doctor is able to give you some input. I did not do well on SSRI's -horrible reaction on Lexapro, Cymbalta and Welllbutrin made me feel like I was going to climb the walls. The other two made me pass out and all kinds of horriblel sensations. Just need to figure out what works for you. Hang in there and have a great time at your fair. I think that is fantastic that you have this in your life. You obviously have a great time doing it. We have big time farmers in our family too, they are all fair people. Take care

Glad your home and keep us posted on the progress. I do hope that arm is ok. What were the thoughts on that?? Do you have family or in home services helping you?---Take care-

Just wanted to say thinking of you-- keep yourself distracted as much as possible while you are waiting. Some good movies, company anything to keep your mind somewhere else. I have worried for months as I waited to see specialists to get answers to some pretty scary things and actually still don't have answers. The wait is awful, but hang in there.

PERSEPHONE- Nice to hear from you. Congrats on your scholarship!!!! How wonderful--- Sorry to hear about the hospitalization, hope you are back on track now.

Interesting- I still think mine is related somehow to the Medrol and heavy doses of Augmentin I was given for ear trauma last year. They keep telling me no- but it all happened after that- as far as becoming completely disabled. Had NCS about two years before, but nothing to extent of symptoms I now have.

Melissa- Hugs, prayers, best wishes for a quick exit from the hospital!!!!!

Welcome and sorry to hear all that you are going through. It is very difficult to struggle with the illness and not have family support. Unfortunately, for too many this is the case- especially when little is known by the general public regarding this illness. I always say you can never fully understand unless you are living in that persons shoes. Do you have any other family support or friends?? Would your parents really ask you to leave? I would be concerned that all the additional family stress would certainly affect your illness, emotionally and physically. What about a medical translator? Someone in your country, area who is qualified to translate the material from perhaps the DINET website for your family and medical providers? Someone from local university?? Not sure what is available there? I have to say the line about deconditioning makes me so angry--- we are deconditoned because of inability to tolerate exercise!!! Well, I should speak for myself -- but I assume most would agree. I was never an athlete, but certainly was someone who enjoyed walking at least!! Hang in there and I hope you find someone, perhaps from the website to guide you.

I am so glad you had such a great week!! We need those few good moments, hours, days, week, whatever to help pull through the hard times- sounds like the work trip was very uplifting for you and I am sure people were excited to see you out and about, if only for the day

Morgan - Thoughts are with you and I hope they can soon figure out what is happening. Trying new meds is always so scary and frustrating. You want something, anything that will help and then we face all these med sensitivities!!! Just curious what they were trying and what they think is going on- or just trying to treat symptoms? Don't worry about responding, just curious. Take care

Amber is Access a state program? States differ greatly, but I don't think pre-existing is usually an issue if you are income eligible for state programs. I may be wrong about this, again seems to vary in dift states. I know that there are also programs here where you spend down a certain amount to be eligible if over income but you must meet other criteria as well-such as being totally disabled, etc. Not sure what your meds are,but you could look into prescription programs and possible health clinics who offer sliding fee- although that may mean transfer of care. I am sure this is very stressful for you.

Happy belated bday-- so glad you were able to get out-- wonderful!!! I have all sorts of weird body temp issues- can feel hot on inside, cold outside, one side sometimes freezing, even though i will be in hot shower-----odd for sure. PS--Joy-- My goodness i watch the sox games and did not here about this tragedy, how horrible. May there be a chance it was only be a rumor? I could only hope for that poor family.

Congrats on your new family member!!!

welcome--- It sounds like you have enough to keep you busy at home and just trying to work. Four children and all those loving animals would be all the social engagement I would need-lol. I am sure that they require all the energy you have. I also have CFS -diagnosed many years ago and NCS, now ?POTS and FM as well. This has been a great place for info and support.

Welcome back--- It sounds like you had a wonderful time, all things considered. Congrats for the swimming accomplishments. I didn't realize that you were from the Netherlands, that would be a great trip as well!!! You should put up pics of your trip and your home land as welll. Glad you had a great time, now rest up!!!

Dreams do come true------------ how exciting for your family- sounds like a scene from Our Town!! Wonderful

Tearose- I hope you are feeling a little better. There is always someone worse off, but this should not keep us from expressing what we are going through. Keeping it inside will only make it worse, right?? I have a hard time doing this as well.

Continued thoughts are with you ---- May you both continue to have the strength to hold each other up and to stay positive, as you face the challanges ahead.

Welcome home and thanks for the post regarding your experience.

This is an interesting topic. I was wondering how much health information is considered when adoption agency makes decisions. I assume it may be dift. if it were a private adoption or perhaps international. Just wondering about that. I know that the agency always wants to know about the health of the birth mother, etc. So I am wondering how much info they get on the adoptive parents.

I also don't like being alone, but I am during the day. It is such a scary illness, never knowing minute to minute how I will feel-at least for me. Having my pets help, husband checks in by phone at noon. I carry phone with me at all times. My daughter is home a couple days during week and I do have family in town, neighbors are close by and my doc office is only 2 miles away. The hard part is not wanting to call anyone unless absolutely necessary and never knowing for sure when it is. My symptoms have been real bad today, heart a fluttering and several presyncopal episodes.Not sure what is up. I am trying to tell myself that I have done a lot for me and this is the first day I tried not to use a/c- that came on at mid day as I couldn't take it anymore. So it is comforting for me to know people are near, but I do not like being alone at night for sure. I will have someone stay with me. if husband and daughter are going to be gone. Yes Tearose - I do the same TV, computer, movies.

Willows- You always make me laugh-- Love the comments about your outfit and the hubby holding the flashlight to get his point across-LOL

I live in Southern NH and not sure if this will help you. I went to New England Heart Institute for my TTT in Manchester, NH. I see a Cardiologist there. They have a large group there and used to have Electrophysiologists there as well -two that I have seen are now gone. So I am not sure what the current staff is for this. I am still struggling with treatments and clear diagnosis for my conditions. They did however clearly diagnose my NCS there about three years ago. THey have quite a bit of cardio testing available there. Good luck Has anyone gone to Lahey Clinic? My primary physician thought they may have Electrophysiologist there? Anyone seen for dysautonomia there? I was seen there years ago for CFIDS-just wondering

Ariella- I was thinking of you when I put up the post. Please know that I will be doing my own prayer here- I pray for many things, but I will try to remember to add a special prayer at 6pm!! Though there is a time difference-? 6hours Please take care- And yes that was a miracle indeed!!