gwen54

thanks for all the help! cardiactec - my concern exactly...the possibility of having something happen and no dr there is scary. Jacquie - thanks for sharing your experience, although I have to say it does worry me since I'm also a difficult case and stump many drs - esp since I dont tolerate many meds. But since BMC doesnt take my ins, I'll start off there and see how things go. If you don't mind me asking, what are your main symptoms? pickledfairy - thanks.. Dr Novak sounds great - but i just checked and I'm bummed he's not on my ins plan either. good luck with the new treatment plan! If anyone else wants to share their experiences with any boston drs, please post or PM me! but thanks to your responses, I'm feeling pretty confident that I'll be in good hands at Beth Israel and I think I'll go ahead and schedule the tilt test. thanks again

hi Elle, thanks for your reply! I appreciate it

THANK YOU!!! your response was very helpful. I'm so happy to hear you had a good experience there and I appreciate the recommendation! was it Dr Gibbons who did the test or was it a technician?

Hi, I posted a while back looking for a dr who understands/diagnoses POTS in the boston area. Due to some other health issues, I had to put this on hold for a while, but now I am looking to schedule the appt as I have many symptoms of autonomic dysfunction. my pcp just had me do a 24 hr holter and suggested doing the tilt table next (eeeeeeek) many recommended Dr Lelorier. Unfortunately he isn't contracted with my insurance and the referral/auth process would be a pain, if even possible but I noticed Beth Isreal Deaconess on the list too, and they would be covered. Have people had good experiences with them? The receptionist said I would come in for a tilt table test with a technician, then the neurologist would review the results and schedule a consult if needed. are they knowledgeable and compassionate? I have some very bizarre and disabling neuro/ brain symptoms and I generally have horrible luck with neurologists understanding what I go through day to day. I don't think I could handle one more arrogant dr!! one last question.... I've read that some places give you medication during the test, some don't. The receptionist wasn't sure. Does anyone know if Beth Israel does that? I have MCS and react badly to many drugs, so I'm concerned I wouldn't be able to handle it. thanks for reading. I'd appreciate any help!! wishing you all wellness

thank you for all the responses - I really appreciate the help unfortunately Dr LeLorier doesnt seem to be in my network, but maybe with a referral I can get it covered somehow. in case Dr LeLorier doesnt work out, I would love any other suggestions. I live just north of boston, but can get a ride anywhere within 30-40min. thanks again!!! wishing you wellness....

Hi, i'm new here....i looked through the links of physician referrals, but didnt find what i was looking for. I hope its ok to post this here. I'm already seeing one of the drs mentioned on one of the lists and while shes good, she's not an expert with orthostatic issues. I'm new to the Boston area and am chronically ill. I am still working on building my new team of drs to help me and I desperately need a dr who understands Orthostatic intolerance issues. I know I have POTS, and probably NMH, but I need to find a dr (preferably cardiologist, but anyone!) who will do a tilt table test since i never had one (and who takes Medicaid) if anyone has suggestions, PLEASE contact me. i'm very sick and this i believe this is an important link thanks and healing wishes to you all