Darlene

and before i got this..POTS... I was full of energy..I only needed 5 to 9 hours of sleep... now i sleep for sure 12 hours everyday, and the other night i went to bed at 8:30 PM, and didn't wake up til 12:30 PM the next day, i have tried cerefolin, didn't help, is there anything i can do to feel not so tired?

It started with a fast heart rate, especially at night, it would awaken me, I would be afraid to go to sleep at night, because I know when I lay down, my heart is going to race, and this made me feel uncomfortable, I was extremely nauseated, sometimes vomiting, diarrhea, oh my god, sounds sounded so loud, like their was a microphone in my ear that intensified every sound, and lights seemed brighter than usual, I would get hot flushes, I would get hot all of a sudden, and my face would turn pure red, but then 10 minutes later I would get so cold I was literally shaking, I was severely dizzy, lightheaded and felt like I was going to pass out 24/7,had difficulty breathing, it was like my nervous system quit working. Every day is different, some days I am ok, like today, I feel good, but just a few days ago, I felt terrible, I had this weird feeling in my head, I can't describe it, what ever your brain needs, I don't think mine was getting it, I don't know, and a few weeks before that for a whole week I sated in my room for 7 days, was in so much pain, and very tired, you know...actually i think it started a few years before I was diagnosed, I remeber when all of a sudden I would get hot, my heart would race and my hands would start to shake, I do have blurred vision, it comes and goes, floaters, and I also see tiny pin point sparks of light when looking at the sky or a white back ground. I have urinary frequency, especially after I drink Pepsi, I will pee 10 times it seems, and I have diahrrhea pretty much all the time, I use to have a hard time holding my head up, had difficulty swallowing, and one summer my feet felt like they were on fire, but this doesn't happen anymore, finally i was diagnosed in 2004, put on lexapro and lopressor, and this did help quite a bit, my question is, why is it when i try to go off of it, the lexapro, why do I get sick again, I know I will never be able to go off the beta blocker because i have tachycardia, but why do i need lexapro, i hate taking it, it makes me fat, i was thin before i started taking these meds, i have tried other ssri, but they make me sick, lexpro is the only ssri i can take, i just don't know why when i try to go off of it, my nervous system fails.

I made beef and noodles one night, and their was msg in the container(can't remember what it was called, you can make broth with it) I boiled my noodles in, and had the weirdest thing happened to me that night, i had a aura without migraine, and it felt like I was being electrocuted, like a light switch was being turned on and off.

i too use to be a thin person until diagnosed and put on a beta blocker and lexapro, i am unhappy with the weight gain too, and have no energy to work out, i went from sleeping 5 to 8 hours a day to sleeping 10 to 16 hours a day, funny thing is, i eat healthy, no sweets, or fast foods, I feel to sick to eat most of the time, so I don't know why I gained weight in the first place

hopefulcase2, no, it's not painful, do I get in when I am laying down? I don't know. I will have to pay attention next time. I check my bp when it's happening, and it's normal. I know your brain is made up of oxygen and glucose, so I am thinking it's not getting one of them.

Can anyone suggest a good Dr. I know I have something else going on other than POTS, maybe something that is causing the POTS, anyway, not getting any answers from my cardiologist, neurologist, or family Dr. I want a Dr. who will check me for everything, lyme, thyroid, sugar, wilson's. I've been sick for 4 years now, and I have had just about all I can take, and don't want to be one of them people on medical mysteries that have to go through 100 Dr's until I find the one that finds out what is wrong with me. And yes I have already been to Grubb.

I will never get one again, people use to tell me the flu shot made them sick, I did not believe this, and one year I got one, no symptoms, but, I was healthy then, then in 2004 after being diagnosed with POTS, I knew I couldn't afford the flu already being sick, so I got the flu shot, omg, I wish I never had, I woke up that night with severe tachycardia, the room was spinning, I was vomiting, I'm thinking the flu shot may work out ok in heathy individuals, but not the sick, it worsened my dysautonomia symptoms.

For those with you with lyme disease. Does it exist in Ohio? What were your symptoms? How do they accurately diagnose you? I heard you can have lyme, and the blood test may turn out negative. All I know is 4 years ago I went to Canada, shortly after I came home I got ill, I didn't have joint pain at first, my first symptoms was lightheadedness, tachycardia, dizziness, feeling like I was going to pass out, nausea/vomiting, loose stools(like water sometimes), hot flashes/shivering, visual symptoms, ringing in the ears, but now my neck, shoulders, hips, and other joints hurt, and I am feeling very weird in my head, it's scaring me. I know when my bp get low, I get this weird feeling in my head, I assume this is due to the lack of oxygen in the brain, but why do I get this weird feeling in my head when my bp is normal?

I was wondering if anyone gets this weird feeling in their head, I can't decsribe, but it feels so terrible, it's scary, I have felt this all day, I thought maybe there was lack of oxygen going to my brain, but I checked my bp and it was normal, I have been nauseated all day , I don't eat much, and still stay the same weight, i gained 30 or 40 pounds within a few months of starting lexapro, sometimes I think there is more wrong with me than just POTS.

what does increased gastric capacity mean? i take lexapro, and have loose stools, everyday.

I have visual symptoms too. I have floaters, I see tiny pin point sparks of light when looking at the sky, or a white background, my vision gets blurry sometimes, one time about 5 years ago, it was as if someone turned off a light switch, but it was not pitch black, it was dim, it only lasted for a second, sometimes i have i thinks it auro cause it will last for about 20 minutes, and then it goes away, where I see flashes of lights and zigzags, this scared the heck out of me the first time it happened, at night i really see crazy things, I use to see stuff floating around, but now when I wake up and look and my daughter if she is sleeping beside me, her hair looks blue, so does her face. Weird, I know.

Pots doesn't cause joint pain does it? My lower back, neck, left hip, right thumb, Left 1st toe, and my right baby toe. The pain in my lower back, and left hip are severe. I also have muscle pain. Somedays I can hardly take it.

It comes and goes for me, I will wake up in the night sweating, and I even have the air conditioner on in my room, or it will just hit me in the day, I always joke about moving to the North Pole.

When I am laying in bed, just before I fall a sleep I will take my BP, and it will be like 90 over 53, and I will wake up with tachycardia, I think when I fall a sleep my BP probably drops further, and this causes my cardiovascular system to work harder to maintain my blood pressure. I take a beta blocker, but it doesn't work. Sometimes I think it causes tachycardia.

You still seeing the same neurologist I'm seeing? I have had a few MRI's, and as you already know, I have lesions too, several. She referred me to that MS Dr. I told you about a while back, but he didn't think I had MS at this time was his words. I didn't like him. He asked me the same questions over and over again, like an interrigation. He made me feel like I was making it up or something. All I know is I have muscle weakness, and maybe thats a symptom of POTS, and I feel like I am being electrocuted sometimes, maybe thats another POTS symptom too. I haven't had an MRI for a while or seen the neurologist in a while. I need to make an appointment with her. MCO quit taking anthem bluecross blue shield so I had to cancel my appoinment with her. I have different insurance now, I need to make an appoinment with her. One week I had a headache everyday for 7 days, an motrin 800 and an ultram 50 mg wouldn't even take the pain away.

Good news about your kidneys, but what the heck is IGA levels? I had an appointment with Dr. Grubb today. I met some very nice girls. One from here, lalalisa (pretty girl), one was a child (she goes to the dynakids website), she thinks she got her POTS from a chinese restaurant , one from Maine (originally from Russia), and I can't remember the other one's name. I thought I got my POTS from a PPT hair treatment. It's a protein treatment by Redken. I had these done before, but what was different about this time is my scalp felt like it was on fire. I should have said something, and told her to rinse it off as soon as I felt this, but I let it stay on 10 minutes. She rinsed it out, combed my hair, and I went home with my hair wet like I usually do. After my hair dried I noticed my hair was dry, which I thought was weird cause it usually makes my hair soft and healthy, and that same night I got a severe headache, I thought maybe that stuff leaked into my brain, whatever she put on my head, by the next morning I was in the ER, extremely sick, and diagnosed with POTS soon after. Since then I have asked her if a PPT should burn your scalp, and she said no. She said they don't even do them any more casue they discontinued them, but she did say they had some old stuff in the back. Maybe they put protein in my hair that was outdated. Maybe something grew in the stuff, or maybe I am just being paranoid. But like that child, I blamed it on the last thing I remember before I got really sick.

How ironic we both had an appointment with Dr. Grubb today. I have never met anyone from dinet before. Your a very pretty girl. It was nice meeting you, and the others. It helps talking with people who have the same thing. I told him my insurance no longer covers Lexapro, the only SSRI that helps lessen my POTS symptoms. I told him my Family Dr. did a prior authorization and Buckeye refused. He is going to do a prior authorization too. I hope Buckeye approves the Lexapro. I have tried several other SSRI's, and they make me ill. I told him about being out of breath sometimes, he says that can happen when your blood pressure drops. I told him I get this burning in my back, arms, and legs sometimes. I asked him what it was and if he could find out what causes it. He said something about nerve signals failing to fire, something like that, and no tests to find out what causes it. He told me to up my Topamax, that it would help with the burning. I was on 75 mg. twice a day, but I weaned myself down to 25 mg. twice a day, I got kidney stones while taking this medication and I think it was caused from the topamax, he said how about taking 50 mg twice a day. I guess I can do that. So, did you's end up driving home that night? It was very nice meeting you.

A couple of years ago I just had burning in my feet, now it's in my arms and back. I have been feeling it in my back all day, and it's uncomfortable for me. I was taking topamax 3, 25 mg. pills twice a day, preventitive for migraines, I think this drug can be used for peripheral neuropathy, anyway, I cut back to 1 pill twice a day, so instead of taking 150 mgs. a day I take 50 mgs. a day. I didn't notice the burning when take 150 mgs. a day unless I had some sort of nervous system attack. Is there testing that can be done to see what causes this uncomfortable burning, and is there medication out there to reduce the symptoms. And no, Lyrica didn't work.

If I remember right Grubb told me NCS is a symptom of POTS.

I just stopped the celexa today, and started the lexapro back today. I am never switching ssri's again, I get so sick everytime I do. I had a very bad spell this morning, blood pressure and heart rate went up, had this burning sensation in the top half of my body, I felt really weird. I went to my Moms house during this episode. I'm home now, but I haven't done anything all day. Very nauseated.

I took Wellbutrin, and felt sick to my stomach everyday. I have tried it all. Lexapro is the only one that does not cause side effects for me, except weight gain.

Singing gets me light headed.

ajw4055, i take ultram 50 mg with an ibuprofen 800 when i have a migraine, sometimes neither works

Thats what it's doing to me dsdmom. I haven't eaten all day but a cup of applesauce.

I know this has probably been asked before. I was just switched from Lexapro to celexa, and I am not feeling well at all. The side effects are scary. I don't feel right. I am sick to my stomach. I have this burning sensation in my upper body. I have diarrhea. My bp is from 102/55 to 140/97 and my pulse is from 65 to 97. I just took an extra beta blocker a minute ago. I went to the Dr. This morning, and told her Celexa isn't working out for me. She's going to call US Script and tell them my diagnosis, and why I need Lexapro, and see if she can't get a prior authorization. Until then, she gave me samples. Has anyone else expienced these weird symptoms on celexa?