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Miriam Poorman-Knox

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Everything posted by Miriam Poorman-Knox

  1. Miriam Poorman-Knox
    Finally a crumb for you. My guess is that you will feel better with the continuous flow of oxygen!!!!!!!!! So you know at UW in Seattle there are people who know about pots really. Iwas amazed when I got admitted, even the pharmacist came by and I asked a question and he knew!!!! Dr. Otto is the cardio. Good luck Miriam
  2. Miriam Poorman-Knox
    A thought. Do you have a pcp to direct stuff? My pcp is my "GATEKEEPER" I ask her to be sure that a new med is ok. That is so important. Miriam
  3. Miriam Poorman-Knox
    Yes it follows a nerve from your spine and follows that route. Thats why the lydocane parches work. It is so painful allow yourself to rest and take care of you. Miriam
  4. Miriam Poorman-Knox
    Have had 3x in last 2 years. Ask your doc for lydocane patches......They can be cut to go where you need them. They are awesome. See id you can get a box. They work for other things too. Shingles is caused by the chicken pox virus which is dormant. The problem is if you come into contact with someone who has not had them, or pregnant women. Good luck Miriam
  5. Miriam Poorman-Knox
    I have had very good experience getting an appt w/ Dr. Low. My doc sends my records and I usually get in within 4-6 weeks. You can also just show up in the ER there wad a thread about that before. Miriam
  6. Miriam Poorman-Knox
    What do you call the person who graduates at the bottom of their medical school class????Doctor
  7. Miriam Poorman-Knox
    I would call your carrier and tell them. They will document it and the gate personnell can access this. Also ask in advance for the wheel chair, everything tou take on mut be in a clear plastic garbage bag. Medications are ok. Good Luck. Miriam
  8. Miriam Poorman-Knox
    Jan, Isn't it amazing what we can do when push comes to shove!!!!!! You journey together shows that pots and even cancer can empower us to fight and be warriors. I send blessings and prayers. If you need anything contact me. Miriam
  9. Miriam Poorman-Knox
    Melissa, Remember to get your moneys worth, use that button liberally. Sorry about the infection I know when I had mine It was a worry. Remember we are all here caring for you. Miriam
  10. Miriam Poorman-Knox
    Mine were burning. My docs did 3 biopsies and mast cell disorder was the result. Miriam
  11. Miriam Poorman-Knox
    I would ask for a 24hr urine collection. Dr. Low has me do it 3-4x a year. This measures the amount expelled and it is alot I think. The other thing is does your urine have any color to it? Miriam
  12. Miriam Poorman-Knox
    If you are getting chest pains when sitting, I wopould take pulse and BP and call dr. My mantra is "THIS IS WHO I AM NOW' I was able to work hard and do alot earlier in my life and for that I am grateful. Now I really have set mental barriers and think about what I can and can't do. I also recommend a therapist to help you get to the point of acceptance, it can be a healing path(mentally). YOU did NOT do this to yourself. Take care Miriam
  13. Miriam Poorman-Knox
    I forgot to mention that there are "cooling vests" and other pieces. Firemen and construction workers, anyone who works outside you can get them at alot of sporting goods stores or on the net. Miriam
  14. Miriam Poorman-Knox
    my husband went and bought a small room size A/C .It sits on the floor and a hose goes out the window. He is rires of freezing. Our Bed room has only 1 outlet and our bed covers it. So I am off to the bedroom. This thing pulls the h2o out of the air and into a container that must be emptied.. Glad he didn't put it in the garage!!!!!!!!!!!! Miriam
  15. Miriam Poorman-Knox
    This is perfectly normal. We need to stretch sitting for about 5-10 minutes so that our blood flow gets back to normal. It doesn't seem like alot, but it works. Miriam
  16. Miriam Poorman-Knox
    I bought a "pillow cooler". It goes under your pillow case and helps cool. Since we lose heat from head this is great. Miriam
  17. Miriam Poorman-Knox
    I think its very important to have a sleep study. You go , mine outpatient centre overnight. They wire you for everythin. Then they can see what your brain is doing. I thought with my first one that I slept well. When I went back to have the second, to get my c-pap, they said I didn't have any REM sleep and it took 3 hours to go to the first stage of sleep or whatever. It's not bad get your own room TV . Good luck Miriam Don't you come to pitsburg for stuff? There are a couple places that will get you in in a week or 2.
  18. Miriam Poorman-Knox
    What about talking to the person treating you for the teeth problems and they will give it. Otherwise each physician has to prescribe according to their own bias. Some of my husbands colleagues think he prescribes too many controlled substances. He says da n it they are in pain. I would talk to the director of the clinic//????? Miriam
  19. Miriam Poorman-Knox
    I DID have a major positive for mast cells.....Just give me a tree !!!!! My dermatologist is the one that has kept me sane. Maybe oatmeal baths will help. Good luck, make sure you have an epi pen just in case. Miriam
  20. Miriam Poorman-Knox
    I had problems that Ineeded hydration weekly. My Doc just gave me a script for saline IV's I take it with my IV supplies and use it when necessary at ER. The heat may have really made you more dehydrated its a hard call. It is important to see if there are any cardiac problems. I would ask if your QT or?QSRT wave is and talk to them about it. Luck Miriam
  21. Miriam Poorman-Knox
    Have her call me!!!!!!! I have had months that I could not get out of bed. Miriam
  22. Miriam Poorman-Knox
    My son is in his 4th year medical stuies, in seattle. He does alot at Madigan. FYI to thos pacific folks UW DOES have staff that are very knowledgeable about POTS, DYSAUTO. DR. OTTO cardiology, was great.
  23. Miriam Poorman-Knox
    I do too, I still blame it on the dog!!!!!!!!!!!!!!!Miriam
  24. Miriam Poorman-Knox
    I will want 3XL...........3 M and 2 S I want to give them for my Doctors. Miriam
  25. Miriam Poorman-Knox
    I think very seriously that you need a sleep study !!!!!!!!!!!!!!!! I won't go into details but this if it is sleep apnea and you get a c-pap machine will make you feeling better. Miriam
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