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Miriam Poorman-Knox

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About Miriam Poorman-Knox

  • Rank
    Advanced Member
  • Birthday 09/28/1955

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  • Website URL
    http://miriam15221@yahoo.com
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    miriam15221

Profile Information

  • Location
    pittsburgh
  • Interests
    reading,quiltin,laughing<br />working as a chaplain,when I am able. Playing with my grandsons

Recent Profile Visitors

3,844 profile views
  1. How are you? Where are you from?

  2. I II have done alot of traveling before during and after diagnosis. I think for this salt tabs nd to let the flight crew know she will need to drink one of the large bottles of water on each segment. Its good for her to tell them they are mostly good about it. Have snacks, real food and let the flight crew know she needs to move around. So she may need to stand and stretch in the back while they are providing service. Let me know how she does. My son is in the military, special surprises are nice. Miriam
  3. Nina can you help me I have the long re-ser password to get in, I cannot find where to change t once in. Thanks Miriam
  4. It is so tough to say. The vaginal dryness could be an estrogen issue. Also SICCA which is a bit different than Sjogrens is a possiblility. There are sprays for mouth, nose, use eye drops, lip. Drug store .com has an incredible selection. It might be, just for grins worth seeing what they have. I wouldn't stop sodium. Would add more H2O. And find a good moistureizer Eucerin is great and not expensive. Suckking on sugar free candy or loli pops, Helps me. Miriam
  5. Those morons should have premeditated you with antihyst and steroids fit 36 hrs. NEVER let them do this again. I have had this happen and I don't always get the best test, but collectively we have a healthy respect for this. Miriam
  6. Welcome. The thing about going to may is they are there for your PCP to call. Mine has. Also I have mastocytisis and a bit of sjogrens which is common. My rip keep everything hydrated eyes, mouth moisturize skin. As an exercise tip keep cardiovascular. For now cut free weights and do the machines. At this point you need to just keep toned and card active. When you aren't as unsteady increase a bit. Be mindful of your level of exercise. M
  7. Welcome. The thing about going to may is they are there for your PCP to call. Mine has. Also I have mastocytisis and a bit of sjogrens which is common. My rip keep everything hydrated eyes, mouth moisturize skin. As an exercise tip keep cardiovascular. For now cut free weights and do the machines. At this point you need to just keep toned and card active. When you aren't as unsteady increase a bit. Be mindful of your level of exercise. M
  8. I think of it this way we should be eating 6x a day: grazing I liken it to. That should help hypoglycemia. As for GI most of us have some sort of intestinal issues. So that's part of the. Syndrome. We have. Not all doctors and diagnosis's are all there same say same appointment time. Now eat something. I still have cookie dough I mixed for Christmas I might bake a few cookies later. Take care M
  9. Tea I am so angry!!! I don't remember where you are, but this is surely an abuse of power. I have worked in hospitals as a chaplain. I have also had the experience to be misdiagnosed as psych. Blessings miriam
  10. ever heard of baby sitter, child care provider????? I had f My spelling *****
  11. For what it's worth, participating in this extreme exercise is just asking to have setbacks. I understand dys. Can go into remission , yet is not technically cured. Doing the recumbent bike and toning and stretching is the most appropriate. I think. I would however ask card how he wants you to check HR either PRE or counting pulse Inthink Pe. Good luck. Miriam
  12. Hi, I would want to know how much protein you are consistently taking in. Sage words from my OCP is that I attribute things to dys. And may lose the other issue. Good luck. Miriam
  13. I must first say I am sorry. For years I would read posts from and speak with folks who were treated as mental health patients instead of a patient with a medical problem. I thought I got it. I had a rectal bleed on Oct 6, I took myself, my laptop, (I have internet access to my medical records) and went to a hospital across the street. My potasium was 2.1 my blood counts were close to "transfusion level" I had MRI and they scheduled End/Col They weren't keeping the IV hydration where it needed to be, and I told them. Showed them on my record. They called and spoke to my husband an
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