Miriam Poorman-Knox
-
Posts
615 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Resources
Physicians
Member Stories
Information Resources
Links
Everything posted by Miriam Poorman-Knox
-
I go to Mayo Monday for I guess 4 days. I don't know what to expect, can you help. I see Dr. Low. I am flying from Pittsburgh. Flying is not so good to me anymore.
-
To Excercise or not to excercise.....
Miriam Poorman-Knox replied to lalalisa's topic in Dysautonomia Discussion
Hi-I"m Miriam and this is something I do Know about!!!YEA!!! First do leg exercised in bed, Leg lifts crunches etc. Then add some cxardio and weightd. Cross training is the key to potts. MAKE SURE that after you finish you go to the floor and stretch for about 10 minutes, as this is the time your BP will drop. 30 minutes is all you need. Make sure the cool down-even id you don't feek you've done much is done. This will help in muscle tone. Peace Miriam -
Are you receiving I.V.'s at home? I started that in the summer and it has made a world of difference. Home Health delivers and can start them if needed. I see Dr. Low next week. What do you get the epo shot for? Thats new for me. Give me a week and I can come up with someone in your area who knows about POTS. Peace Miriam
-
ARDS is Acute Respiratory Distress Syndrome- not related to POTS. I was in ICU on life support for 3 weeks. Didn't even know I was sick. It takes a year to recover
-
My dear first you must give this pompous doctor the information regarding pots from the dysautonomia foundation, I di have a symposium of the last comference.Your goal is to educatr educate educate!!!!!Are you from Wi? If so I know of a fine pcp Miriam
-
Hi, I'm Miriam Boundaries are very important and it sounds as though you are pretty good at that. Perhaps its time for your parents to move into a retirement community where they have there own apt and someone to clean, meals etc...That way you can see them when you are well, and know they are cared for otherwise. I just went through this situation myself. Its hard yet there aren't many other choices keeping sacred your husdband and his needs and concern for you.email me anytime
-
My doc. told me, and it works to keep to no more than 100gms of carbs a day. Some people have problems with dairy. To make up, she recommends increasing protein. Your next question makes sense. Alot of pots people's BP is higher sitting straight up than lying or reclining. This week actually my neurologist said that the BP mumbers we are concerned with are lyinf and standing.
-
This is one of yhe main factors in pots!!!! Make sure this is checked out thouroughly. My first sigh of pots was 25 years afo, after I had my son,,,I had hashimotos ans sub acute throiditis,and most people need a higher dose to feel better--talk to a endocrinologist who understands pots
-
POTS with negative TTT?
Miriam Poorman-Knox replied to persephone's topic in Dysautonomia Discussion
PLEASE<PLEASE don't allow yourself to think that you have this"in your head" you had a positive ttt !!!!!!! As with all SYNDROMES they vary from time to time. Keep up with your doc, keep a journal. And realize that this is a syndrome awhole bunch of different things combined. Sometimes one factor will bw more prominent,or two and it changes just when you think you 've figured it out!!! -
First never leave hpme without water!!!! When you feel like your goin to kiss the floor, rise on rour toes contract your calfs,quads abdomen and stretch your upper bodu---no hands over head and take deep breath. We often can panic in situations where there are alot of people, also take off extra clothing as soon as you enter the mall, so you won't overheat!!
-
My doctor told me that if I take a sodium tablet and a meteroporal before going out, and drink some water too, I'll be OK. I have done this a few times and been fine. That is until I got ARDS. Now I really have no desire, Miriam15221@yahoo.com