Miriam Poorman-Knox

I had to go to the first hearing stage with attorney. Had lots of records including therapists. Was approved within 10 days for POTS and received a check within 30 days. All I can sa is collect records, collect records, and in my case have a good therapist. Miriam

The most important thing I forgot to add is my sleep apnea is a cause

I had problems with vision,,blurry greying out etc. Went to opthamologist and had pictures taken of my optic nerve and optic disc. Turns out I have a significant amount of swelling--which could lead to a stroke. He said the high blood pressure that can happen with forinef, being overweight contributes. He put me on lavix and eye drops which give me every bit as much of side effects as pills. And I must see him in 2 weeks, unless my vision changes sooner. I saw a neuro-opthamologist, just happenned to be the one they put me with. He compared pictures from all previous times. He let me look at the pictures, so I would understand. Actually scare the **** out of me. Miriam

[size=3]I too would make the journey. Miriam

Darlin this sounds like the peripheral "AutonomIC STORM"...... It would be a good idea to touch base with your pcp. Sorry you are "stormin' miriam

Diane, I spent 2 weeks there. It depends upon tests that you need to prepare for, and how many other specialists they weave you in with. Miriam

]Have you considered that you might be having a migrane event? I always am careful when this is so bad, after missing a TIA in my eye. Miriam

Thinking of you and your family. The doctors willgive you sodium to help your BP. keep in touch. This is a major event for you. We re here. Miriam

What happenned to your Bagpipes???? How difficult is it to fix? My husband is a piper also. PM me. As for pleading guilty, does Australia give you Work privledges, to drive to and from work? Take Care Miriam

FYI I lived in Vanessa's neck of the woods for four years. They startes stripping veins, because of my increases blood flow!!!!!!!!!!!!!!!!!!! She is by no means exagerating about the availability of care. The thing is the health care agencies there seemed to have genuinly competent folk working there. I might try that, even if your daughter chooses to move. Miriam Nittany Lions Roar

Yes I have. I always have lots of Hydroxyzine, Allegra, Benadryl just in case. The one major point of concern is if you are having your breathing affected, thats a go directly to somewhere PCP maybe...... Thats how my mastocytosis started. Let me know how it Works out Miriam ROAR LIONS ROAR

If I were you, I would call Cleveland and talk to the healthcare providers you saw there. And I would keep calling them. I had a couple problems after going to Mayo and the MAyo dr. actually called my Doc here!!!! You MAY need to adjust you work schedule temporarily, but unless thats what the Cleveland people say I would try to hold out. As for Vanessas comment about therapy. If anyone is thinking about it. Get someone who you are comfortable with. The report from my therapist whom I have seen for 2 years is what won my case!!!! The judge held it up and said "If I could get more repotrs like this it would make my job much easier" I was approved in 10 days and got a check within 30 days. So I would plan for that possibility also. Blessings.......Miriam

Sounds very much like the infamous MASTOCYTOSiS look on the definition site, the explanation is the best. I have this every where and all the time. Must take almost as much antihyistamies as salt!!!!!!!!!!!!!!!!!! Miriam

Jan, I wored at a major cancer hospital as a chaplain. I can say there are miracles. Unexplained remissions. Time granted. I think that checking other sites for their treatment , and talking about it with your doc helps. Please take time to be together. Talk always. Sometimes you (we) must become warriors. As we defend and protect ours it gives us a sense of power. While the method the doc used to give you the news was blunt, you are aware, its better to know all possibilities. I pray for you daily. Please pm me if there is anything I can do or if you need anything Miriam

Vanessa, Forgot to add this on pm. Please call and get the sleep study done ASAP. It not only tells what happens while sleeping but during the day problems that are there. Miriam

Where do you live? Miriam

Vanessa, I see you are from Alamagordo, I lived in Las Cruces for 4 years. I do know and have access to qualified doctors from Roswell to Lost Causes. These are Family Docs that I trust. PM me if you wish. I know its slim pickins there. Also have friends in Albeq, at UNM. Miriam

Hello, Don't have much more to add everyone has been so helpful. This is her issue. You say "I want her..." She needs to figure out what she needs to have. I think it would be a disservice to her and the other students to simply not require her to fulfil the same requirements for the class. While from the outside they may seem superfulous, the professor may have very good reasons. When I was in Seminary I had a car accident and had a head injury, had problems with memory etc.... I had testing. My doctor wrote a letter stating that I should get the progessors notes, take exams with notes and in a quiet room. Your daughter may have different accomodations that would work for her. And I definately hope that you talk with her and ask her to make some decisions about her needs and have her write a letter and send to all professors and office of disability. That way she is in charge. Alternately I would tell her where you feel you would need to step in and contact the school. That way ther is clarity where you both stand. Good luck... Miriam

I've been getting B-12 shots for almost 10 years. My liver enzymes were off. When I went to Mayo in Jan. we discussed this, levels were still off, but have a "fatty liver". So, I get a rather large injection every momth. The dog gets his heartworm pill and I get B-12...!!!!!!!!!!!!!! I keep telling my husband not to mix them up. Magnesium is a different and complicated one I know that with certain medications increasing magnesium helps. Miriam

Just saw my previous post!!!!!!!!!!!!!!!!!!!!!!!!what a yahoo. Its not sexpulm... just Pulmonary Doc..... Miriam

Welcome Sorry this is a "pots hole" for you. I would suggest that you sepulmonologist (lung) Dr. ASAP. They can have someone come to your home and put a "pulse Oxomet" on you finger, and it will register you O2 levels. Long story, this has helped me immensely. Blessings... Miriam e a

Be brave buckaroo................Think of the balding lawyer as a little little man in a speedo!!!!!!!!!!!!!!!!!!Miriam

Girl go see if you can get some speeding tickets with your wheels!!!!!!!!!!!!!!!!!!!!!!!!! I am happy for you. Just KNOWING that you have the option o leave your home is a big emotional issue..............Hugs Miriam

Actually if your doctor sends your records and a letter to Dr. Low personally, you will get seen much sooner. I was offerred an appointment 6weeks from time he received records. My ins. however couldn't get it together for another 4 mos. Also regarding follow up. I received business cards from all Docs seen. My PCP has them all and reguarly discussed issues with her. Good Luck. Miriam

Dtill thinkin that the best thing may be to sit down with the hemmoroid with an advocate and go over para by par and find out why he felt he needed it written that way. Be "professional" even if he wasn't. And ask what he suggests(with the support person of course). Before I was first diagnosed I passed out in a hospital parking lot for 3 hrs before someone finding me, and another 3 inside. My note said that I went to see my mom and was so stressed that my family members showed up(not) that this was why I passed out and became dehydrated. I wrote and asked that this be re-written and the hospital said it wasn't their "work product". The doctor totally ignored my attempts to contact him. So I understand the frustration. Still think we shouldn't give away any power you had. Thinkin about you, and wishin I was ready for a "Road Trip"!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Miriam