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ethansmom

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About ethansmom

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    Advanced Member
  • Birthday 11/21/1981

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  • Gender
    Female
  • Location
    Florida
  • Interests
    Photography, E-Bay, yoga, scrapbooking, and of course spending time with my children, family, and friends!!

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  1. Right now I am pregnant so everything is higher- sitting HR is about 90, standing can go anywhere from 100-130 (depending on activity). THis is WITH the BB. Non-pregnant its more like 65-75 sitting and no more than 100 standing. I feel like it's well controlled, but since getting pregnant it's been wacky and I'm way more POTS-Y.
  2. I've had problems with vertigo for about 3 years now- I used to wake up with it every now and then, and suddenly one day I wokle up with severe vertigo and it never went away. I have found things that trigger it, and things that help- but I definitely think it's related to the imbalances in the central nervous system. Maybe something on my trigger or help list will help you too...otherwise, it's just another great POTS mystery. Things that make vertigo WORSE: 1) Eating foods I'm allergic to (too much wheat, dairy, or even sugar can trigger an episode) 2) Being dehydrated 3) Going too long
  3. I am pretty intolerant to sun as well. Heat bothers me, especially for prolonged periods of time, but being in the sun too long can wipe me out for days. I feel that it's because I get extremely dehydrated VERY quickly and therefore it takes a long time for me to replenish and rest up to recover, even if I feel like I'm drinking tons of fluids. I can tan easily, but I choose to stay in the shade over tanning, so I am semi-pale these days
  4. My guess would be that they are contraindicated for those with hypotension (low blood pressure), because that's the main function of BB's is to lower your BP. I alswo happen to have normal blood pressure so I have tolerated a BB for many years with no problems- in fact, it is my lifesaver because it keeps my HR normal and prevents palpitations and episodes of SVT. However, I did have to try several before I found one that worked for me, which is Sectral. Some of the others gave me major bradycardia, dizziness, and headaches.
  5. My husband has been with me since high school, when we were active, vibrant, crazy, young, and wild. So when I got sick in college, he knew it was for real, but at the time we had a HARD time dealing with it because we were so young and immature. He is not the most compassionate person, but he is a positive thinker, so he was always telling me not to be so negative, etc etc...and it almost destroyed our relationship. Fortunately, we pressed on through the hard stuff and "grew up" together. He has seen me in various states of health- from bedridden and wanting to die, to perfectly normal, a
  6. I had the same thing happen to me when I first started taking midodrine, and I was breastfeeding at the time so I thought that had something to do with the pain- but hearing your stories makes me realize it must've been the meds in general. However, it was only temporary and passed quickly. I am sure it was due to the vasoconstriction.
  7. I think hormones are a HUGE part of it for most of us- I recently realized this when I went from being 80% of my normal self for the last 7 years, then I got pregnant and BOOM I was down for the count within weeks and stayed that way until things have leveled out recently. That sudden shift in hormones really got me down- and at 7 months pregnant, I'm still only about 50% of my normal self, which I'll take over being 5%. Hoping after baby things will go back to normal and not the other way around. I also wanted to mention that for me, I found out after having a POTS diagnosis for 4 years, th
  8. I think hormones are a HUGE part of it for most of us- I recently realized this when I went from being 80% of my normal self for the last 7 years, then I got pregnant and BOOM I was down for the count within weeks and stayed that way until things have leveled out recently. That sudden shift in hormones really got me down- and at 7 months pregnant, I'm still only about 50% of my normal self, which I'll take over being 5%. Hoping after baby things will go back to normal and not the other way around. I also wanted to mention that for me, I found out after having a POTS diagnosis for 4 years, th
  9. I have had POTS through two pregnancies and am 30 weeks along with #3. I've had natural, unmedicated births with both and am planning the same with this baby, although this pregnancy has been WAY more symptomatic than the others. I am a bit nervous but trying to remain positive and remind myself that my body knows instinctively how to protect me and the baby, and that everything will most likely be fine. I did fine during both labor and deliveries, and fine postpartum other than some minor lightheaded spells which I think is pretty normal even if you don't have POTS. I have always felt per
  10. I am 30 weeks pregnant and have been in a POTS flare since about 5 weeks along. I hadn't had severe symptoms at all in about 7 years (since before my first pregnancy) so I am sort of re-learning how to cope. Weeks 5 through 15 were awful, I was completely bedridden and horribly nauseated, dehydrated, etc...and around week 20 I began to slowly feel halfway human again, which I am so grateful for. However, my body feels very weak and deconditioned due to spending the better part of 7 months on the couch and unable to exercise or eat or sleep properly. The last month or two I've been mostly ke
  11. I took Florinef and Sectral with my first pregnancy and everything was fine...second pregnancy just took Sectral, and same with this pregnancy. I have researched them all and found that the benefits greatly outweigh the risks for me. Sectral is a pretty safe BB for pregnancy, I think it's a category B.
  12. I am 30 weeks pregnant and experiencing the exact same thing! This is my 3rd pregancy with POTS, and I have experienced this with the other 2 as well- although this time around, my POTS symptoms are quite severe and so I think I'm noticing the changes more- the strange feeling in my chest, slightly increased heart rate, and flushed face- each time I have a Braxton-Hicks contraction. I'm very nervous about the "real" contractions this time, as I have chosen to have natural, out-of-hospital births (there have not been any previous complications from the POTS) but if I remember correctly, I did
  13. Congratulations! She is absolutely beautiful! I am expecting my first baby girl in May after two boys, so looking at your photos makes my heart sing =) How are you doing post-partum? How was your birth?
  14. A GIRL!! I've been waiting my entire life to have a daughter, and the ultrasound last Monday revealed that indeed that is meant to be =) I have two wonderful boys, so this will complete our little family perfectly! This also explains a lot of the POTS difficulties that I've had with this pregnancy- I'm sure that the baby being a different gender explains many of the new and different symptoms I'm having! Things are better now that the first trimester is over, but I'm nowhere near my normal self health-wise. I wonder how many of you other mommies out there had more difficult pregnancies wit
  15. I am not a fainter, but I if I did pass out I would definitely go to the hospital the first time (because it's NOT normal for me). However, I tend to avoid the medical community like the plague, except when necessary, so at this point I have to say I would only visit the ER if I had an emergency injury or a heart arrythmia, as I do occasionally get SVT.
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