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About Rachel

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  1. "I have learned to kiss the wave that throws me against the Rock of Ages." Charles Haddon Spurgeon

  2. It has been a wonderful 7 years! Thank you, DINET community, for all you have done for me! It has been a pleasure volunteering here. I will now be devoting much more time to rest. I will miss all of you and will be sure to check in now and then! Meanwhile, you can find mere here on facebook: https://www.facebook.com/CranberryTeaTime

  3. Hi Midatlantic, I'm glad the video was helpful for you. I hope it is helpful for your doctors too! You mentioned that you wish you lived near Dr. Svetlana Blitshteyn. In case you weren't aware, she does offer phone consultations. I'm not sure if this would work with your insurance or not, but I wanted to let you know in case it would be of benefit to you. I hope that you will be able to find the help and treatment that you need! Rachel
  4. "Therefore we do not lose heart, though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all." 2 Corinthians 4:16-17

  5. My fatigue and muscle weakness continue to progress, and I continue to struggle with migraines. I am scaling back on my already substantially limited activity level. I am seeking to live well with dysautonomia and focusing on being a wife and a mother to the best of my ability. I won't be doing much volunteer work for DINET, but you will still find me online, whether on the DINET facebook page, the forum, or on my blog. You are always welcome to visit me in these places!

    1. Rachel


      I have enjoyed my time serving as DINET president, and I am thankful for the various ways I have been able to volunteer for DINET over the years. It has been challenging, rewarding, and fun. Thank you, DINET, for allowing me this opportunity!

  6. Thanks to a sweet friend, I now always have an extra spoon! :)http://www.cranberryteatime.com/2013/11/an-extra-spoon_4.html

  7. Just wanted to stop by and say that I'm thinking of you today!

  8. Happy New Year! May 2013 be your best year yet!

  9. I have a new lift chair from a friend. It has been such a help to me! http://www.cranberryteatime.com/2012/12/a-special-friend-special-gift.html

  10. Happy Thanksgiving!

  11. After 6 months I am mostly unpacked and settled into our new place. Hopefully in another 6 months the unpacking will be complete. I'm slow, but I'm getting there. :)

  12. We are moving from Georgia to Minnesota today. I will see you all when I have internet access again!

  13. Forevertired, I was first prescribed IV saline by Beverly, Dr. Grubb's nurse practitioner. I asked her if that would be something I could try. My health had gotten a lot worse, and I was bedridden 21-23 hours a day. The weakness, fatigue, and brain fog were intense. Even while lying down I was often on the verge of fainting. My gastroparesis flared up, and I could no longer drink enough fluids. It was a scary time, and my health was in a very fragile state. We were trying anything we could to help my body recover. My initial prescription from Beverly was for IV fluids once a week. My loc
  14. Oh my goodness! I have never heard of such a severe allergy to midodrine! How scary. I'm so glad you figured out what was going on. Thanks for checking in with us. I've been wondering how you were doing. I hope that you'll be able to keep in touch now that you have an iphone with a data plan. Yay! I hope that things go better without the midodrine. Have you ever tried compression hose? Maybe that would be a good way to help keep your blood from pooling without the severe allergy risk. Take care, rest well, and feel better soon! Rachel
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