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summer

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About summer

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  1. I haven't had any testing for Raynaud's either. My doc just diagnosed me based on symptoms. My fingers sometimes turn white and get very numb. After that they turn blue, and then get red and hot. I almost always feel cold too. I am on a beta blocker which is probably making it worse. We did try an alpha-beta blocker, which helped the Raynaud's but did nothing for my POTS symptoms. I'm really not sure why getting into the tub causes vasoconstriction and that purple-blue color, but I have no trouble believing it is related to Raynaud's somehow. It kind of scared me at first, but now I just acce
  2. Hi Kayjay! Yes, it does happen when I am cold. Sometimes I feel like getting in the tub is the only way I can get warm. Putting on sweaters, getting under blankets etc. does not help. I do have Raynaud's, as Crow has mentioned. It's pretty freaky looking when it happens! I guess it's vasoconstriction. After I get warmed up I'm very red. Then I get out of the tub and I feel faint, and exhausted. We just can't win! Do you have Raynaud's? Summer
  3. Yes, mine too, but not just my hands. My feet and legs up to the top of my knees turn dark purplish-blue as well. I almost posted this same question a couple of months ago.
  4. Hi Linda Joy, I had a bad reaction to a SNRI, so will not be trying another one any time soon. I know I hear others say that trying a few different ones is a good idea until you find one that is right for you. I'm sure that is true for most. I have not yet gotten up the courage to try another one, and I'm not sure I ever will. Summer
  5. I agree, Melissa. When I restarted a BB after having adjusted to Florinef, I had increased fatigue as well. I titrated slowly up to my dose. After a couple of weeks, I felt better on it than off it, and I know now that it's an important part of my treatment. I am taking Nadolol.
  6. Hi Richard, I also believe I have hyperadrenergic POTS. Before eventually seeing an ANS specialist, my GP started me on metoprolol because of my tachycardia. I was unaware at the time that my BP was also dropping when I stood. The beta blocker did drop it more, and I was unable to continue it. Then he tried clonidine. It also dropped my BP. Since being properly diagnosed, I was started on a combination of Florinef and a beta blocker. That was the key (along with lots of fluid and salt). I could not take the BB without the Florinef to keep my BP up. The combination has really helped. Summer
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