Billie Gene

The hearing being so sensitive I never had before but surroundings yes but it’s more profound. I never got my hearing checked. The funny thing is I’m on Midodrine and Propranolol for the last eight years to control the symptoms of POTS. Well, they changed the Propranolol to Bystolic, Which is working great but all of my senses have stoped, which I’m trying to get use to because I didn’t mind having the surrounding or hearing sensitivity because it was spot on. If that makes sense. I could met someone just by looking at them I knew they were no good or a great person because I felt it. Very strong. I could just read people. I New if someone was around my house or vehicles you know. Well, don’t have the senses now. My POTS symptoms are under control for now though, which is great. Thanks for your feedback😉

I knew I couldn’t be the only one to have sensory overload! I have Dysautonomia/Pots and it has been a very difficult road. However, I have several sensory issues and I’m hoping someone else is experiencing the same. I noticed that a lot of people on here are experiencing the hearing sensitivity, which I experience and I will explain. Loud noises due sometimes trigger my pots. First I have to say, I’m a night owel and I was laying in bed. It was about 1:30 close to 2:00am and I heard heavy foot steps very slow walking in my back yard. Now mind you that my husband was snoring, my TV was on, our windows were closed, and our window AC unit was on, which of course was loud. It was like this person was walking next to my ear. I could hear every movement he made and was able to since were he was in my yard. It was so loud in my ear. We have a shed in our back yard and I heard him opening the shed doors. Anyway, I told my husband what I heard and he stated “how did you hear that” I explained it to him and he just looked at me because the windows were closed, window unit on and TV on he felt there was no way I could here someone in the back yard. Anyway, this was happening for a good 2 months and yes I never checked because the person wasn’t trying to come in my house and nothing was ever touch in the shed. I woke my husband up a couple of times but he never heard the footsteps but did check around the house. Come to find out my husband was keeping an eye out every morning when it came to the shed doors. He noticed the when the shed doors were shut and I heard the person in the back yard. The next morning my husband noticed the shed doors wide open. My husband finally stated he believed me but shocked that I could hear it due to our room being upstairs, TV being on, the window unit being on, and all the windows closed. Plus, our back yard is all sand but yep. I heard this person as if he was walking right next to be. Well, my sons room was downstairs and he had his window open a little. His bed is right by the window. Well, there is all rock in the front yard and my son heard hard slow foot steps up to his window and they stopped. My son jumped out of bed ran to get us and my husband then look all outside around the house and didn’t see no one. It was the same time that I always heard the footsteps outback. He never came back around and I did inform the neighbors of someone coming around the home. If the person would have come back I definitely would of called the police after approaching my sons window. Here is another example! I went to Target at 9:00am in the morning or maybe it was 9:30am. Anyway, I grabbed what I need and I was walking behind a couple of people and I hear a noise. I turned and looked were the noise was coming from and this guy was laying on the ground bleeding from the head and his body was jerking as if he was having a seizure. I then yelled someone call 911. Of course everyone looked at me like I had to heads. So I took out my phone and call 911 as I was talking to the guy even though I don’t think he could here me. I even yelled for the pharmacist to come help. I couldn’t believe no one heard or even didn’t see this guy. Plus. This happened right in the pharmacy department. Anyway, to make a long story short people were asking me over and over again “ how did you hear this guy” and I just told them I heard him loud as day why didn’t you guys hear him but they stated they didn’t hear him. So I don’t know people just kept staring at me. I had to leave but when I left the paramedics arrived, so he was in good hands. Not only do I have the noise sensory but there is another sensory, which is hard to explain. When I go out I’m very alert to my surroundings. I know when someone is negative or positive like there energy. I will walk out of a place knowing what I am feeling in the environment is not good. Seriously, it is crazy! I can feel when someone is around my house and we’re they are around my house before my dog does. Does anyone have this? Thanks!

Welcome, chest pains and pressure are very common with POTS. I use to get them all the time and painful to. However, I get them every now and then but they are very bothersome. I’m on Midodrine and Bystolic and these meds have been a miracle when it comes to controlling my POTS symptoms. Good Luck!

I knew I couldn’t be the only one to have sensory overload! I have Dysautonomia/Pots and it has been a very difficult road. However, I have several sensory issues and I’m hoping someone else is experiencing the same. I noticed that a lot of people on here are experiencing the hearing sensitivity, which I experience as well but I also experience it differently in a good way I will explain. Example: First I have to say, I’m a night owel and I was laying in bed. It was about 1:30 close to 2:00am and I heard heavy foot steps very slow walking in my back yard. Now mind you that my husband was snoring, my TV was on, our windows were closed, and our window AC unit was on, which of course was loud. It was like this person was walking next to my ear. I could hear every movement he made and was able to since were he was in my yard. It was so loud in my ear. We have a shed in our back yard and I heard someone opening the shed doors. Anyway, I told my husband what I heard and he stated “how did you hear that” I explained it to him and he just looked at me because the windows were closed, window unit on and TV on he felt there was no way I could here someone in the back yard. Anyway, this was happening for a good 2 months and yes I never checked because the person wasn’t trying to come in my house and nothing was ever touch in the shed. I woke my husband up a couple of times but he never heard the footsteps but did check around the house. Come to find out my husband was keeping an eye out every morning when it came to the shed doors. He noticed the when the shed doors were shut and I heard the person in the back yard. The next morning my husband noticed the shed doors wide open. My husband finally stated he believed me but shocked that I could hear it due to our room being upstairs, TV being on, the window unit being on, and all the windows closed. Plus, our back yard is all sand but yep. I heard this person as if he was walking right next to me. Well, my sons room was downstairs and he had his window open a little. His bed is right by the window. Well, there is all rock in the front yard and my son heard hard slow foot steps up to his window and they stopped. My son jumped out of bed ran to get us and my husband then look all outside around the house and didn’t see no one. It was the same time that I always heard the footsteps outback. The person never came back around and I did inform the neighbors of someone coming around the home. If the person would have come back I definitely would of called the police after approaching my sons window. Here is another example! I went to Target at 9:00am in the morning or maybe it was 9:30am. Anyway, I grabbed what I needed and I was walking behind a couple of people and I hear a noise. I turned and looked were the noise was coming from and this guy was laying on the ground bleeding from the head and his body was jerking as if he was having a seizure. I then yelled someone call 911. Of course everyone looked at me like I had to heads. So I took out my phone and call 911 as I was talking to the guy even though I don’t think he could here me. I even yelled for the pharmacist to come help. I couldn’t believe no one heard or even didn’t see this guy. Plus, This happened right in the pharmacy department. Anyway, to make a long story short people were asking me over and over again “ how did you hear this guy” and I just told them I heard him loud as day why didn’t you guys hear him but they stated they didn’t hear him. So I don’t know people just kept staring at me. I had to leave but when I left the paramedics arrived, so he was in good hands. Not only do I have the noise sensory but there is another sensory, which is hard to explain. When I go out I’m very alert to my surroundings. I know when someone is negative or positive like there energy. I will walk out of a place knowing what I am feeling in the environment is not good. Seriously, it is crazy! I can feel when someone is around the outside of my house and we’re they are around my house before my dog does. Does anyone have this?

Hello Everyone: I been been diagnosed with Potts for about 6 years now. I’m on Midodrine and propranolol, which have worked miracles but recently at 5:00am I woke feeling strange. Then I noticed my feet sweating. I sad up got dizzy, I then felt hot and I knew I was going to have an episode. As I sat there my heart started racing along with dizzy, dry mouth, sweetly feet and palm of my hands. I tried like I always do fight not to faint, which it’s getting so hard. After the episode I noticed our heat was blowing full blast but I never had heat intolerant before. My husband did turn the heat off but it was too late I kept getting the episodes but thank god they weren’t as strong. After the episodes, I was in bed for four days so week, fatigued, dry month, naused, heart pain, shortness of breath, foggy when thinking, and feeling like I was going to have more episode. Since, that episode I’m slowly getting back to myself. I have realized that I could be worsening because I never had a problem with heat and I love my summers outside, which now I’m worried because I’m not sure how my symptoms are going to react when summer hits. At night I’m up threw the night sometimes not feeling good feet sweeting just the bottom of my feet, dry mouth and others just waking up out of the blue and I have always been a sound sleeper. I wanted to ask though there are times that when I wake up not feel good that I feel like I’m not breathing like I know I am but I feel like I’m breathing too slow or not feeling like I’m breathing. Has anyone felt that with there symptoms? I usually feel like I’m not breathing after I had a bad episode or episodes and I’m so dehydrated, weak, and fatigued but I been waking up feeling that way and I feel like calling 911 because I know it not right to feel that way but I haven’t yet. Can anyone relate? If so what did you do to help ease the not breathing sensation. After the last episode as feel it seems like no matter how much water I drink my mouth is so dry like when you have an episode. Any ideas to stop it? Also since the last episode my body temperature has been out of control hot sweaty throughout the day to wear today I felt an episode starting. I mean what happens if I’m at a store. I can’t go striping of my clothes to prevent an episode. Now to top it all off I found out the other day that I could be going into pre-menopause which really worries me because I have pots. It just seems like those two would not mix well. Plus, so out of breath. 😬😬😬 Any ideas?????