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icesktr189

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Everything posted by icesktr189

  1. being lightheaded is very common with POTS. i dont think i have gone one day in 3 years without some sign of this symptom. i get it when my bp is low or when i am about to pass out. You would naturally have it if you over did it. Laying down and drinking more fluids usually helps but sometimes you jsut have to ride it out.. its a pain in the behind! haha
  2. after two years from my POTS crashed i was 70 percent improved with only taking an SSRI. But this pregnancy has set me back a lot.. i think its going to take time for me to get back to my orignal POTS.
  3. i have had a cavity filled with a numbing shot and did fine... didnt feel dizzy or anything afterwards
  4. no my OB and cardiologist took me off all my meds. said they were not safe or worth the risk. I have passed out a couple times, but my baby is okay. You could try an SSRI? those are safer during pregnancy than the other two. also salt tablets and compression hoes help a bit too.. good luck! my first two trimesters were pretty good.. third has been pretty rough though
  5. i FINALLY lost my mucus plug.. hoping to go directly into labor but ob said it could even be two weeks! ugh at least i have somewhat of a deadline LOL. just really nervous about afterwards. i mean having to deal with being a new mom and then POTS on top of it its just a lot to handle! and of course i have secondary anxiety disorder so kinda worried about postpartum depression.. but who knows! just cant wait to meet my little one!
  6. oh i totally know what you mean with the plasma screen tvs. my mom just bought one and I hate it. i feel like i cant focus my eyes and i get light headed when i watch it. oh and dont let me gets started on when my fiance convinced me to go see "a Christmas carol" in 3D! felt like i was dying after wards!
  7. oh i would LOVE a movie theatre that let us lie down! haha. sad part is that i was watching this movie at home while laying down! i usually stick to romantic/boring ones that dont get me to have those surges but its so frustrating see all these movies i have from when i was "normal" that i cant watch
  8. i just got done watching law abiding citizen and now my POTS is horrible. i was feeling good before the movie but the adreneline from watching it makes me feel way worse. so now i cant even watch a movie! haha. i gave up scary/adrenaline movies which i used to love anyone else with this problem?? i noticed i have this feeling for hours after i watch one of those types of movies
  9. i liked lexapro.. sorry never took paxil. just make sure you go on it VERY slowly. i didnt know i had POTS when i started my SSRI and immediately took the full dose. The side effects were very bad for the first month and then they disappeared and i almost felt back to my normal self again. I went from being bed bound for months with extreme anxiety and adrenaline surges to being able to see movies again and have a part time job. seriously give it a shot.. it can really help you
  10. aw im sorry i really know how you feel. My situation is a little different because my mom has every illness known to man.. so my POTS does not compare with her lol. She constantly tries to overshadow me in everything. Like when i went to my gastro she talked about herself for 20 mins. Or when we go to my OB. She talks about her pregnancies. Its really annoying but i love her so i just put up with it. But gosh help me if i talk to her about my POTS. She acts like its just a minor annoyance in my life, almost like i exaggerate everything. so frustrating! you cant force your family to have compassion, but you also dont have to put up with it.. just keep your head up high and know you have tons of people out there who truly understand your daily struggles.
  11. thank you maggee! ill definitely look into this.. anyway to help relieve this would be amazing i have heard a lot of people say antibiotics are horrible, but honestly i feel best when i take them. i think because it takes the pressure off my inner ear i feel better.. what symptoms do you get when you take them? with the can see straight.. when i got POTS my vision got very messed up.. but its not my actual prescription vision.. just waxes and wanes when my POTS does
  12. thanks i hope you feel better too! itsnt it awful dealing with sinus infections? i mean they are bad enough when your a normal person, but with POTS its like living in a nightmare. do you notice you get very dizzy and cant see straight? this has been really bad for me
  13. I found out I had a sinus infection a couple days ago.. started some antibiotics. I was very hopefully because 2 days ago i felt great for the first time in a month. But yesterday i woke up with a sore throat and now I have a horrible head cold again! During this pregnancy i have been non stop sick and 3 sinus infections already. I barely leave my house, so i have no clue where all this is coming from. I am so frustrated because so much needs to get done and of course my POTS is horrible because of constantly being sick. I take vitamin c and get plenty of rest but nothing helps. Im starting to feel like i will never get better. Sorry for the sob story but its sooooo frustrating when i thought for one day I finally would be better and then that gets taken away! ughh
  14. thanks for the replies! turns out i dont have pre eclampsia thank gosh! haha it was a sinus infection.. weird thing was that i didnt have the pain or pressure just "floating" feeling with horrible dizziness and i couldn't focus my eyes at all. the amoxicillin is helping and now i feel like my head is decompressing lol. just kind of worried because this pregnancy i have had so much sinus problems and i really hope when i give birth they go away
  15. HI! thanks for all your replies! i have my oB appointment tomorrow thank gosh! but i was wondering.. i have had sinus problems.. lately they have been worse.. could that make me A LOT more dizzy than normal??
  16. my blood pressure has been at 120/80 which is really good for me, BUT i have severe dizziness and can barely see straight. Is this normal? i thought if my bp was good i would feel much better but i feel horrible. Also have severe brain fog. Oh btw i am now 36 weeks pregnant.
  17. Basically i had strep since i was 9 on and off. When they removed my tonsils/adenoids they found they were very full of the infection even though i had no symptoms at the time. They told me i was a carrier because if someone in my family had strep, I probably did the weeks prior to. Also if I became run down, I would immediately get strep. Since coming down with POTS 3 years ago, the strep attacks increase so i just had the tonsils removed. I have not had one problem since
  18. I am a "strep carrier" and when I have a flare-up (not strep throat) I get that way. Once I start taking an antibiotic to kick it in the butt, I don't have the night breathing problems anymore. Also, I find that when I have problems breathing any time of day or night, I am usually retaining a lot of fluid... rings are tight, shoes are tight, face puffy, etc. I was a strep carrier too until they removed my adenoids and tonsils. my cardiologist seems to think that having tons of reoccurring strep problems led to my POTS.
  19. i have really noticed folic acid helps with my energy levels. i take the recommended 800 mg per day and b complex.
  20. YAZ and Yasmin are know to cause panic disorders in many women. I took YAZ and ended up with daily panic attacks. at that point when i started i did not have POTS. But i also dont believe it caused POTS because i started it at least 2 years prior. But i was still taking it when i had POTS and it worsened my symptoms so i stopped it.
  21. i do get this but i am also 9 months pregnant so that could be it too.. but i have gotten this symptoms way before i was so maybe not LOL. the only thing that works for me is to prop up a bunch of pillows and lay on my side.
  22. i am sorry you didnt get too much out of it but ill keep you in my prayers. im pretty sure i have hyper POTS too but my cardiologist has not done too much testing for it because he feels like it would not be beneficial. He likes to throw drugs at me and then sees how i react. hopefully when i see my neurologist he will do some additional testing for it because i really would like to know if i do
  23. aw im really sorry to hear that! i was hopeful because my mom just got some for her Crohns.. hopefully it helps her atleast
  24. i have an open spine on the inside of my back.. i was diagnosed with it when i was a lot younger.. they pretty much told me that because it was on the inside that i need to not worry about it. i wonder if my POTS could be because of this. i am also pretty sure i have a genetic form because my grandma had all the POTS symptoms when she was alive so im not sure if it is or nots
  25. i get this all the time now. its my worst symptom, especially because when i have that feeling, i also have extreme adrenaline surges. this probably is just another symptom of your body telling you that you need to lie down. i usually get this while im eating and feel like i cannot breathe.
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