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About valliali

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  1. Hi, just read your post about tachycardia and and really identified. the post was from some time ago have you found an answer and are you any better. i have run into a period of random tachycardia, irregular hr and adrenaline surges. i felt very alone until i read your post

  2. Hi all, My improvement over the last year has been drastic. I became sick over three years ago, following living in rural Africa for eight months. Before leaving for Africa, I was in top-notch health, and my friends frequently commented on how I was never sick. I ran at least three miles a day in sometimes 115 degree weather, no problems. I returned from Africa and was living in Pennsylvania for a couple of months. About a month, or a little less after returning, I was suddenly crippled with extreme panic attacks, major facial flushing, swollen lymph nodes and racing heart. Literally one day I
  3. Sorry to bring this back up! But I am not sure how to search the forums, I hope it's okay if I repost a topic that I know has been discussed before.. I know that alcohol consumption makes some feel better, others worse, but I am wondering how many of us get a much more rapid heart beat a few sips into a beer or wine? I read a lot that rapid heart rates are not uncommon hours after drinking due to dehydration, but mine occur very shortly after drinking. The rapid heart rate is much worse upon standing, which is not normally a symptom of mine. Any theories as to what causes the sudden heart rate
  4. I am in the EXACT same boat. Just last week I was prescribed a CCB for the first time, and I haven't taken it yet. I am very nervous. I am on propranolol which helps at lowering the heart rate, and also stopping the overall "revved" up feeling I would otherwise have constantly, but unfortunately, the propranolol doesn't do enough for my inappropriate sinus tachycardia. And I can't take more because of the massive fatigue it causes. I am wondering if anyone has problems with facial flushing on a CCB? When I first got sick, sudden flushing of my face was the first and worst symptom. It went on h
  5. Hi all, I know the weather topic is very popular now, especially because the weather is quite crappy for a lot of people with POTS right now. As I've explained on here before, I am severely affected by weather; I had to move from the east coast to the west coast just so I could live a little, and boy, what a difference! The east coast summer had me completely bed-ridden with the most intense pressure in my head, with whooshing in head, neck and ears, very rapid heart rates, breathing problems, dizziness, and panic. I am visiting my family next week and the weather looks horrible. It's suppose
  6. Hi, I have abdominal pressure. At the top of my abdomen, where I imagine my diaphragm is. It makes breathing difficult. Comes and goes for me. I can go months without out, then out of the blue, I"ll be plagued with the pressure and chest tightness. I have found nothing that helps me.
  7. For those of you who do well on Afrin, do you have very easily stimulated adrenaline-like responses? I have serious problems with my ears when I fly, but am too scared to try Afrin because even half of a cup of 99.5% decaf coffee sets me off with high heart rate, tremors and anxiety. I use Omnaris right now which helps a lot. But I still have a lot of problems when flying, and I have another flight coming up in two weeks that I am very nervous about.
  8. Sorry if I missed this, but which of your catecholamines were low?
  9. I moved to No. California for my health as well. Sooooo much better out here. I am from the east coast, and actually would love to return to be nearer to family, but here in CA, I can work, go to school and go for hikes year-round; in the east coast for the five months of humidity and especially stormy weather, I was bed bound. The difference for me, personally, in my level of functioning is extremely drastic from climate to climate. I will be returning to the east this June for the first time in two years and am very very nervous about having a relapse. I am doing very well and the weather th
  10. Beliver, how would you describe your pressure headaches?
  11. I am currently on an independent health insurance plan through Blue Shield in my state. Fortunately, I signed up for the health insurance plan right after returning from Africa, and before I got sick, so I had no pre-existing conditions. I am young, so I pay a low monthly cost and have a very good PPO insurance in return. I want to move to another state in order to be closer to an ill parent. I would be eligible to transfer my Blue Shield of CA to the other state, however, instead of paying the $150 per month that I pay now, I would be paying around $600-700. This is unaffordable for me. I cou
  12. HAha, so true, Simmy! The truth is I always do better at high altitudes. Last year, I was having a bad flare and took a trip to Utah. I almost cancelled my trip because I was feeling so sick, but my boyfriend was really excited, so I was prepared for a huge amount of discomfort. As soon as we ascended to a higher elevation, I felt almost total relief. By the next day, I was doing great. I do believe it's because it's super dry and I do very well in dry dry dry. I also don't have issues in dry heat. Give me a 120 degree day here in CA over an 85 degree humid day on the east. But it's very stran
  13. I live in CA, but moved to Maryland last September. The climate was so horrible for me, I had to move back to CA. I found that I was much much more POTSY on humid, rainy/cloudy days, but even worse was the intense head pressure. The whooshing pounding all day long in my head. I didn't feel like this on just the humid days - only when a storm was coming in - so I naturally attributed it to low pressure. However, I do just fine when storms come in here in CA, and also, ironically, I do GREAT at high altitudes. In fact, I just returned from a trip to New Mexico at 7,000 feet where I felt great, a
  14. I am going to try to Mucinex, but not Afrin. I think it would just mess with my mind too much, even though if it didn't have any adverse side effects. I am concerned now because the Omnaris I have been using is causing a lot of ear pain, which I've never really had. I'm concerned that the ear pain will be very significant on the flight. Does anyone using Omnaris have ear pain? It's listed as one of the most common side effects.
  15. Hi guys, I posted about this a couple of weeks ago, but I am flying out tomorrow night and very nervous about my ears. I have been taking Omnaris for about two weeks, and at first, I really thought it was going to solve all my problems. I feel the effects almost immediately after use, and it really clears things up for me. I wasn't planning to take anything else, and thought that this would be enough to help me. However, here in CA, the pollen is beginning to circulate, and my nose is getting stuffier again and my ears are more clogged. Something I noticed was that my ears are starting to hurt
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