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Everything posted by icesktr189

  1. I wish I could pin this for the amount of time I have written it lol but I've found it is extremely common when starting an SSRI to feel terrible for the first month. I have dealt with this myself and talked to tons of people about it. I had CRAZY symptoms, but they all went away after awhile. Unless you are having an allergic reaction, you might want to keep trying it.
  2. I am so sorry. Just know it was NOT because of you! People like that would have cheated anyways. I know its hard, but just realize that its for the best because you dont want to waste a second more with someone like that
  3. I think it really depends on what kind of POTS you have. I have had a period where mine wasnt too bad, so I had virtually no anxiety. Now I have constant adrenaline problems and my sympathetic nervous system is always activated, so anxiety is always there.I have been in therapy for a couple years now and its helped a bit, but I am really started to realize this a physical problem more so than a mental for me.
  4. I got lucky and had my hearing on the 10th of January and my decision came in the mail on the 18th! Sometimes it can go very fast
  5. Yes it is very expensive! It costs 300 per hour :/ If it helps, it will be totally worth it though
  6. I just did my first session! The actual hypno part went very well, but I did have symptoms after because I wasnt smart enough to realize that i should lay down while doing it, instead of sitting upright in a chair for an hour :/ Next time i will for sure lay down on the couch they have lol. I just makes you feel very relaxed. I remember every word he said and could have got myself out of the trance if I wanted to very easily. It does not feel like a drugged state of mind, just a total body relaxation that is great IF you are laying down lol
  7. I am sorry :/ I am 23 and have a 3 year old that I can barely keep up with. Its very hard. I am putting her in pre school on Tuesday, so hopefully that will help a bit. I take midodrine right now. It honestly only helps a bit. It worked a lot better in the beginning, and just kinda burnt out. However, there are a lot of other meds to try!
  8. i did read that hypnotherapy can lower your bp and hr because your body and muscles relax. Maybe that is what caused the symptoms?
  9. Also i have had this really annoying floater in my right eye for over a year now. It will not go away and it drives me crazy because I can constantly see it. I also have blind spots too.
  10. I had optic neuritis. They were really worried about MS for awhile. Mine are because mine dont work together. Dr. Goodman actually found it when he put his light in front of my eyes, and instead of constricting, they dilated . They are also VERY slow with dilation and constriction, so if I go from a dark room to light, it takes forever for them to catch up. Movie theaters are BAD. When I get out of one, they are so dilated that everything seems very off and I actually walk into walls. I refuse to get them dilated when I saw the neuro opthamologist.
  11. Lieze- Where they even able to hypnotize you? Usually you have to be very relaxed and they cannot do it unless you want to be. I am worried about being too anxious for them to hypnotize me. Joann- I am meeting with the guy tomorrow and Ill post and update! I am really hoping this works because its basically my last hope. My phobia has just gotten so out of control, that i am unwililng to try any new med at this point. I was noticing how I wont even take an antibiotic when i need one because I am so afraid of the side effects. All this is def. stems from my POTS because I have never had this issue before I became sick. Cognitive therapy helps a bit, but when you have an out of control phobia, if feel like you just need more.
  12. Does anyone notice a pattern where each generation gets it worse than the previous? My grandma had fainting spells, but lived a very normal life otherwise. My mom has always had autoimmune health problems, but didnt come down fully with POTS until she was 50. Even with all her problems (crohns, ulcertive colitis, POTS,ect) she is still able to work, drive, and life a fairly normal life. I came down with it at 18 and my life just ***** lol. I just wanted to see if anyone else has the same thing?
  13. Oh no I wish I wouldnt have read that! lol I hate feeling like that :/ I really hope i can go through with it!
  14. I have a big medication phobia from POTS (go figure with all my crazy medication problems). I have been in therapy for over 3 years, but I just cant kick that med phobia. I have made an appt for a consult for hypnotherapy from a guy that is well known and actually knows his stuff. I am really hoping it helps. I know it wont be a miracle cure, but if he can get me to the point where I can swallow a pill without shear panic, then I will be VERY happy! Has anyone tried this before?
  15. SSRIs re regulate your nervous system. I am not sure how (maybe some one else knows on here). Like Momtogiuliana said, there is that adjustment period that will go away.
  16. Congrats!!! Mine took exactly two years too!
  17. Good luck! I received my fully favorable only 8 days after my hearing! Thankfully the judge and VE didn't ask me any questions because I was a hot mess in there lol. But I def think you got it! Good luck and please keep us updated
  18. If you do a search for SSRIs on dinet, specifically Lexapro, I have written a TON about it. It is very, very common to experience pretty severe side effects for the first month. For most POTS patients, those side effects subside completely by the month mark. Just take a benzo to get you through the rough part. Unless you are having symptoms of allergic reaction (itching, welts, ect) stick to it! Those symptoms go away completely and it was one of the best drugs I have ever taken for my POTS.
  19. yes my mom was diagnosed with it 2 years ago. My grandma also had fainting spells.
  20. For me, the only reason I am not a smoker now is because I don't want my daughter around it. If I didn't have a child, I would for sure be a smoker. I would gladly give up some years on my life if it meant I had a better quality of life. I cannot imagine having to live the rest of my life feeling like I do right now.
  21. Smoking was a miracle cure for me. Nothing other than an SSRI helped my POTS, but I would go as far as to say that smoking made me about 90 percent better. I did have to smoke a lot though (1 every couple hours). My POTS went nuts when I quit, and I have been terrible since. I don't advocate it, but for some of us, it works wonders. Because it is a vasoconstrictor and raised my bp, my heart didn't work as hard, so I didn't get tachycardia.
  22. Just remember that most lawyers wont take your case until your reconsideration is denied. The problem with them taking it before that is there might not be enough back pay funds to pay their fee.With SSI, there is no retroactive benefits rewarded. SSI back pay starts the date you apply. SSDI retro active benefits starts 5 months after your date of onset is established. There is so much info involved with this process, and it took me 2 full years to really grasp it. There is a website called ssdfacts.com that is great for people apply for disability benefits. There are even people who were once disability examiners that frequent it.
  23. Mine was abrupt (came on in January of 2008) and i thought since I was young, it would go away. However it hasnt and I think it has to do with the fact that mine is genetic somehow. ( My mom has POTS too). It really depends on what caused it to begin with.
  24. Also, I heard that doctors are not allowed to prescribe it anymore?
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