icesktr189

i have always had a problem with hair falling out.. whole family would complain about it.. thank gosh i have thick hair.. i was on klonopin for a year but never noticed anymore than usual.. i definently know that when i was on birth control (yaz) it made it fall out like crazy..

i havent been on in awhile partly because i feel horrible and just moved so no internet! well i am 12 weeks pregnant and last tuesday i was at work and got extremely dizzy ( lost my side vision, room spinning) then i went to the hopstial because my entire left side went numb. I mean jaw teeth hands feet everything.. the thing was my pulse and bp were perfectly fine at the time. The symptoms faded and i was sent home with no treatement. is this normal of POTS? ever since then i feel horrible.. weak dizzy everything. Is it true that pregnancy drops your BP? i dont know if i can handle this anymore. i am scared and dont know whats going on. I feel those symptoms werent normal POTS. When i was in the hospital the EKG showed ventrical abnormalities but when it showed that i was having my heart palpitations.. should I be worried??

thank you so much for your replies! it gives me a ray of hope that i might feel decent during the pregnancy! So what I have seen the most difficult for POTS and our bodies is the birth and postpardum? What do the doctors usually do different during the births than normal people giving birth? My OB recomended a C section but i know that has a lot more down/healing time. I told him i wanted to try the vaginal delivery and he said that was okay as long as my blood pressure could stay in a normal range. Earthmother i totally know how you felt! Im barely along and already feel like the first trimester will never end! Gatoraide and water are not doing their job like they used to so im pretty bummed about that!

thank you! i dont think i have felt this tired/out of energy since i had my POTS crash last year. My brain fog is horrible though. Dizziness is an all day thing now. i am just praying that the second trimester will be a bit better than now!

My POTS these past couple months have been pretty good. Actually the best i have felt since i was diagnosed last year. But i just found out a week ago that i am 6 weeks pregnant. Now i feel absolutely terrible! I am beyond dizzy, my anxiety has gone through the rough, and i sleep around 14 hours a day. Not to mention the other normal pregnancy symptoms such as morning sickness. Day by day it just keeps getting worse and my cardiologist has taken me off of all my meds exept my salt pills. Ironically my blood pressure has been pretty stable, but my body is definently not handling the new hormones well. I guess i just want some stories of people who have been through pregnancy with POTS. i hear the second triemester is better, however my OB told me that your blood pressure tends to drop more so i dont see myself feeling any better. Also the prenatals i take make me SOOOOO DIZZY. Literally a half an hour after i take them i can hardly stand. i stopped them for a couple days and feel so much better but i cant quit them forever.. i wonder if anybody else has had this reaction? i just feel so scared that my POTS is going to be completely horrible for the next 8 months.

Well i have not been on in awhile because my mom has been in and out of the hospital because she was just diagnosed with Crohns (she also has colitis). My question is what are the normal GI problems most of you experience? I have always had D constantly, but now its turning into stabbing pains and also had some blood in my stool im pretty sure its not going to be a good outcome and i have an appointment with a gastro to do a colonosope. i am really hoping that i do not have either, but its really genetic and my uncle has both of those problems too. IBS pills do nothing for me, and now its getting to the point where i go running to the bathroom about 8 to 10 times per day. Im so frustrated.... i guess i am just asking if this sounds normal to any of you?

oohh ill be there!!

haha now i said that watch ill start gaining weight lol i have the worst luck ever

Oh sleep is like breathing for me haha. i do it all the time! I probably take around 4 naps a day. But i limit them to an hour each. By 6 at night im exhasted but for some reason i have insomnia LOL. I just sleep whenever my body tells me or i end up paying for it later!

I completely stopped my period for a year. I felt so much better but i was on YAZ and went through a crazy depression. Ever since being off i have a weight lifted off my shoulders feeling. But now im breaking out and have crazy periods and my POTS has been pretty bad lately. So he gave me Ortho Tri Cylcen.. but that has pretty high hormones.. im wondering if i should take it because the estrogen levels seen pretty high?

I drink TONS i mean TONS of gatorade and bad days. I am on midodrine and metroprol.. but the gatorade makes me feel a lot better. Hope you feel better soon

See my problem is that i had symptoms for as long as i can remember ( around 8 or 9). My mom also has dysautonomia just not half as bad. Mine just went ten fold as soon as i hit 19ish. I have no clue what caused it however. I have never been tested for lyme

See im kinda different.. im 5''11 and 121 pounds.. My POTS crash sent me down to 111 pounds but that was over a year ago.. I am on Lexapro and Birthcontrol and still cant gain weight, but however i always have a stomach because im always bloated..

This is one of my biggest fears that i will keep getting worse and worse.. but you have to accept that you have limited control and i see that you believe in God and realize its all in his hands. That helps me out a lot by knowing someone of higher power than me has control The main part that gives me hope is that when i first got POTS i was bed bound for 5 months. Now i have a part time job and can still see my friends when i feel up to it. Just take it one day at a time. I know I cant look into what i will be like in 2 years because it scares me. No matter how bad you get at least you are still alive i hope you get better and try to think positive! *hugs*

so im seeing a trend where LONG flights do damage but mine is really short. AZ to CA.. i am hoping it does not mess with me too badly but i know that ill be out for the rest of the day.. I do have klonopin and have not taken that in months because i hate feeling drugged up and tired but do you think i should take it? i am really worried im going to get on the plane and freak out and usually when i do i can walk or distract myself but i will be on a plane so there wont be any hope for that. I am also flying alone and that scares me too

See thats the thing i get horrible anxiety and my adrenaline levels have been tested and they are extremely high. I am the type where i have to keep my cell phone on silent or else i will have a heart attack every time it rings. I also have been to the hospital to see my mom a lot lately and just taking the elevator messes me up. I wish driving was an option but its not so flying is the only way. Even when I was in a car for 5 hours (i didnt drive) i was messed up for 2 days.. ughh soo frustrating ) Thank you guys for the replies i am definently going to try some of that out.. anything that helps!

Do you have to get a referal for that? Because i have a feeling if i go in to my doc that he will just tell me that they checked out fine and not give me one They also dont believe me because i am skinny 5''11 and 121 pounds. But i do have some other symptoms

See i get worried because colidice (sorry if i spelt that wrong) runs in my family. Both my mother and my uncle have had their colons removed and their digestive tracts re routed. I have tried IBS pills and they do not do a thing for me.. I have chronic D and usually go to the bathroom every couple hours. Sorry if TMI!

i have a totally different reaction. Mornings seem a lot easier for me.. its when around 3 pm hits that i totally crash. Pretty much until 8 or 9 at night i feel like poop. I do all day but that time is the worst for me.

In about a month i have to fly to california (LA) from Phoenix, Arizona. Since i have gotten POTS i have never traveled. How did most of you do when you flew? I am not just worried about my symptoms but i get crazy anxiety when I have to leave the places i feel the most safe at.. I think i have anxiety disorder secondary to POTS. I am worried that when i get on the plan i will get all tachy and freak out. Also my mom has always been there to help me when my symptoms get back and i will be flying alone. Just the other day i had to drive 2 cities away from me and i get anxiety because i dont know how to react in a certain situation if my POTs gets bad. I pretty much have safe zones where i feel most comfortable. I also worry that i am miles off the ground and away from any hospital.. I guess im just afraid even though its only a 2 hour trip at max

i have had symptoms of PCOS and recently just got blood tests and an ultra sound. All they did was send me a letter stating that everything was found normal... should i go get a second opinion?

i know how you feel! they are the worst because you cant seem to control them like you can with your bp. I did the whole even monitor thing and had it on for a month... it was so annoying calling it in every three episodes (and i called it in a lot) and then after the month my cardiologist looked at my work for like a whole minute. It was like wow.. i put all this time and effort you can at least pretend to look at it for longer! LOL. if they dont let up then call in your cardio good luck!

It really depends on your judgment. I know when and when i cannot drive. I wanted a handicapped parking permit but im too afraid to go in and get one because i am afraid my insurance or MVD will find out.. just use your judgment and if you feel you should not be driving then dont. i know it ***** because driving gives you a lot of freedom but at the same time you dont want to risk that.. ya know? i never drive if i have really bad brain fog. I have been on the road and realized that i was thinking that i should not be driving and called my mom to come pick me up. I also never drive if there is heavy traffic.. good luck!

see i am bendy but so is my mom. but she has the vascular one.. i dont know how it works but she has had her colon, gallbladder and ovaries removed. all of her organs seem to be giving out.. now its her bladder she is having trouble with and they think she has crohns. so i am confused but if i do have the vascular kind atleast i would know what cause my POTS . i hope you get the answers you want! and thanks tons

i feel for your daughter ill pray for her! good luck and i hope she gets better soon *hugs*