icesktr189

Oh with the Claritin, do you take the Claritin D kind or just the normal? Also is it a 12 hour or a 24 hour? I just want to make sure i get the right kind

thank you! i heard that flonose (beacuse its a steroid nasal spray) can pull magnesium from you.. do you supplement everyday?

What kind of medication for allergies do you take and what are your side effects you experience if any? I have flonase in my drawer, but I heard you can get some bad tachycardia and anxiety from it, both which I cannot tolerate right now. Thank you! Much appreciated

I definitely have too much adrenaline, but usually there is a reason why. I have the epstein barr virus diagnosis like 3 or 4 months ago (i dont know if its still active) POTS is much worse and allergies are pretty bad too. I am on allergy meds and they are helping but its not enough

I dont think i snore.. well at least my fiance has never said anything about it haha. However, I do have very swollen sinuses that could cause a decrease in oxygen. Did you have a sleep study to confirm this?

I cant sit up and im sleeping like crazy. I am also so dizzy and lightheaded that I cant walk around. I feel like i cannot focus my vision and everything looks dim. Also my anxiety levels are through the roof. I have had about 4 panic attacks today, but sometimes i dont feel any anxiety. Does this sound like normal POTS, or something else? I am at my wits end right now. I am getting over 10 hours of sleep a night and feeling like i have not slept at all.

I am not a nurse (just in nursing school) and just applied for disability. Hopefully someone will apply so i can know what to expect! I have already got a lawyer to help out.

I need my wisdom teeth out bad. I have an appointment next week to talk about removing them with the oral surgeon. I have been under general once for tonsils/adenoids removed, but my POTS was much better and more stable at the time. Right now I am a POTS/ Epstein Barr Virus mess. I have not been under twilight ever and that would worry me, but I dont know how i would do with general again. I am almost at the point of letting them do local, but the bottom two need to be cut out and i dont think i would make it through with out some sort of anxiety attack. Help! really need some advise!

Lissy- I feel you pain? Did you say that you had epstein barr virus? When it activated again (they think i have had previous infections), everything under the sun came on me. I have severe allergies i have never had before, diagnosis of chronic fatigue syndrome, reoccurring sinus infections.. i feel like the human target for anything sickly that comes near me! you need to make sure you REST, REST, REST! overdoing it even in the slightest will set me far back. It sounds like an immune system problem. I am going to start taking LDN next week again.

My doctors FINALLY diagnosed me with Chronic Fatigue Syndrome. I have know for awhile that i might have it though. It seems like i have more CFS than POTS at the moment. Does having POTS automatically make you have CFS or are they completely separate? i am happy that i have answers now ( The epstein barr virus is causing the chronic fatigue) but at the same time i am worried that now i know whats wrong, i will never get better. Can you recover from CFS? Sorry if things dont make sense, today is a really bad day for me

Hi! Yeah i wont take it.. He said if i did he would give me a holter monitor, but i dont feel comfortable even with that. I will get a second opinion, i just liked the fact that he was the only doctor that would agree to hydration therapy. Everyone else is so freaked out by PICC lines lol But thanks! :]

Hi! i agree, it needs to be done very slow. That was the problem for me because they didnt know it was POTS. i started at a normal dose and felt like i was dying. I was also very low on serotonin to start with. Just make sure you have a benzo on hand, and dont give up! The first couple weeks for me were intense, but i promise it was sooooo worth it. I really wish i could go on one right now. I know it would fix me.. I do have paxil sitting in my drawer, just havent taken it yet

I have been on .1 florinef but i went in and my cardiologist said i could move it to two. Tried that and it work okay, so went back in again and now he said to take it 3 times a day.. Seems like much to me. Anyone taking this much florinef a day? What side effects have you experienced? thanks :]

that sounds like my allergy symptoms. I would go to an ENT just to get it checked out and maybe they can do something for ya.

PLEASE LISTEN!!! when i first came down with POTS i had the EXACT symptoms. I could not longer work, drive, or go to school because I felt like i would jump out of my skin at all times. I had about 5 panic attacks a day and horrible anxiety where i no longer felt real. Seriously what cured that was an SSRI. I loved my lexapro! I cant lie the beginning was very hard, but if you have a benzo on hand, you will be fine. I REALLY urge you to try an SSRI. It changed my life before where i could work, go to movies and not worry about anxiety or anything. Just give it a couple weeks.. ( i had extreme surges when i first started taking them. Give it a chance even if you feel terrible in the beginning) After a month i was a completely new person. After 8 months i got off it and did great until i got pregnant and now everything is down hill again. I should take my own advise, but im a stay at home mom, and cant be in bed the first week :/ or else i would have tried this by now

I totally know what you mean about the good excitement. I feel like im becoming a recluse because i never want to go on road trips or anything from the adrenaline surges. Firewatcher- I am definitely going to talk to my ENT because they are making me feel like i have to make a decision between the two. Obviously it will be the beta blocker beacuse i cant take the heart rate issues right now. Unfortunately they do nothing for the "anxiety" feelings. I just worry about going to my doctor and having him tell me i have anxiety issues again. I just know i dont because one minute im perfectly fine and the next im a total wreck. arizona girl - Can you pm me the name of the cardiologist you are seeing? I would love to go to someone who has experience with autoimmune problems since it runs in my family. We have tons of Crohns disease, ulcertive colitis and many other autoimmune problems. I am looking into taking LDN because it has been really helping my mother with her Crohns. She is no longer on medications to treat it, and Mayo said that she is about 90 percent better. Small fiber damage would make sense because my symptoms started with the adrenaline surges. They are actually my main symptoms, more so than low blood pressure. Did the doctor tell you if you got that under control, that your POTS symptoms might disappear? I know that would make it secondary POTS, and that is what i am hoping i have because i dont have the "traditional" kind I used to take Klonopin but I swore off that because of the heck it put me through trying to get off it. I reached tolerance and had to be admitted to the hospital because it was so bad. I was only on it for a year and a half taking it once a night. I am just too afraid of going through that again. But it did help greatly with my syptoms :[ I really wish i could take it again. So you do deep breathing every couple hours and it really helps? I will try that.. i notice because my allergies are bad right now that i am not getting enough oxygen through my nose. My biggest fear is that i will have to use my epi pen! i think i would rather risk the allergic reaction LOL.. kidding but i cant imagine getting a huge shot of epinephrine.. ugh does not sound fun with how i feel right now.

see last time Lexapro was a miracle for me. They didnt think i had anxiety, but way too little seritonin and the anti depressant helped with my POTS. I dont have that option now because the first month is horrible for me and i have to watch my daughter everyday. I am going to go to an endocrinologist but i already know they will tell me my adrenaline levels are way to high again. I want to know the reason because my blood pressure is good.. it just doesnt make sense why this is happening again :/

What would be the cause of WAY too much free standing adrenaline in your system at all times? When i am driving, if someone honks or startles me, my adrenaline sky rockets, i get out of breathe, very dizzy, can feel the ice cold feeling all through my body. I am always on the verge of a panic attack, but i dont have anxiety. I cant take beta blockers because i am doing allergy shots right now and they would disqualify me. Any suggestions? This is a horrible feeling. One minute im okay then if i get the least bit startled, its a huge adrenaline attack.

They have not given supplements, just an anti herpes medication that is not really helping. I am eating very healthy and getting plenty of rest but i feel like i catch anything that comes near me.

They do the mono spot test in the office. I had the EBV blood test positive and then after that they did the mono spot test when i have symptoms. The virus should go dormant after awhile in a normal person, but with chronic EVB it will be positive when you are run down. They also told me that you will not always have mono with EVB. For some reason my immune system is out of wack :/ i know the fatigue is horrible. I am having the fevers and sore throats again too

I had the Epstein Barr Virus diagnosis a couple months ago, and now i keep getting chronic bouts of Mono. I cant seem to get over this virus! I still have the severe sinus problem (tons of tissue swelling) and may just get sinus surgery. My anxiety/depression has also returned. I did great for about 4 months after pregnancy, and all these problems came up. I am almost bed bound now and can no longer drive. I was great last year. I worked and took online classes. I dont know why all this is happening now. Anyone have any ideas? I cant fight off infections/viruses at all, and im not around anyone sick. :/

has anyone tried patanase? its a nasal spray for allergies. I read it can cause drowsiness.. any reports on dizziness and how it affects POTS? thanks!

im going through the same thing right now.. my sinuses and ears have been messed up this past year to the point my vision is affected. They are very dry and i get pain all through my face and ears. Also have fluid in the ears. Been on tons of antibiotics that help when im taking them, but not after. I have done tons of research and keep coming back to the same problem: candida overload. Yes many will argue it does not exist, but i do believe if your immune system is compromised and you are on tons of antibiotics after another, then you can have it. This might not be your case, but i have almost every symptom listed for it. (there are tons) I am going in this week to get tested for candida (the stool is the best way) i really hope you feel better, and i know how horrible it is to go through all this and be so frustrated that no one can help you. One day you will find your answer, it just takes time. but dont give up!

So I mentioned i was positive for Epstien barr virus. Also horrible problems with sinuses for almost a year (very dry,tons of pain). Right now i dont know if i have very bad POTS or EBV is acting up. I feel extremely dizzy, cant eat, headaches, nausea, feeling hot/cold, diarrhea, the whole nine yards. oh and fevers Does anyone know much about EBV? Whats the difference between that and mono? I have tried to search it but still dont understand. How long will i feel this bad? i know no one can really say, but will it go into remission? I feel like i can barely stand right now. Are sinus problems normal with EBV? Sorry for the post, i just feel terrible and have really bad depression/anxiety from all this. Thank you for reading

yes i was 18 and a complete idiot and took ecstasy multiple times. i feel it turned on my POTS.