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About Notgivinup

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    Youngstown ohio

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  1. I havent been on here for well over a year or so. I just wanted to stop back in to tell you guys that while I had POTS your support was invaluable to me. I've been symptom free for a very long time. I wanted to give some of you hope that it can get better, even go away. I had POTS for three solid years. I don't ever consider myself cured, as I know it can come back at anytime.The medications that seemed to turn the tide for me were 90mg. cymbalta AND klonapin. Almost as soon as I upped my dose of cymbalta I felt better. I can do about 98 percent of the things I used to do. Heat still gets to m
  2. Thanks so much for your post. Yes, this sounds just like what I have been experiencing, including the muscle tightness and shoulder knots at the end of the day. I was also really thirsty and very dry mouth. The idea of becoming addicted really scares me, because there are some serious addiction issues in my family. How long did you take it before you tried to stop? Did you have to wean off it slowly? Now that you have been off it, do you ever crave it? Thanks again for your post. It's really making me wonder if it's worth trying to continue it.... especially since it didn't really clear my th
  3. My experience with adderall. Same as you. Energy, speedy brain, going from one thing to another. No less brain fog, but felt better in general. Doc put me on 10mg. extended relief twice a day. Good points, got me out of bed. Had more energy although was too scatter brained to really get things done. The bad stuff, muscle tightness eventually leading to big shoulder knots. I believe all stimulants are dehydrating. I couldn't drink enough to counteract the diuretic effect. Also, for me, I was instantly "addicted" to the dopamine high. When it finally wore off at the end of the night, I would
  4. As some of you may have read, I've been in a remission of sorts. Last night my son said he was itchy all over. I found some little red bumps. Looked them up on google images, and they look like pox to me. I was wondering what implications this might have for me. IF I catch it, will it throw me into a POTs hole? I did have CP as a kid my mom said. Wondering what if anything I should do.
  5. Lissy, I believe it's only been 2-3 months? I'd have to look back when I last posted because it was the day after that things got better. It doesn't sound like a long time, however 2 or 3 months of EVERYDAY feeling good feels like forever. When you are soooo sick for so long, (3 yrs.)and you start doing things again, you just can't believe you get another day, then another one. It's like OMG, things that were impossibly hard to do seem so simple now. Peace and Love Edited to add oops, this was suppose to go under Lissys post!
  6. Hi guys, I haven't been on in a while. Last time here was when I wrote to tell about my horrid appt. with a new neuro. Since that day, oddly enough, I began to improve. He told me to see my shrink. I left crying and disappointed once again. I KNOW this wasn't all in my head, but I saw my psychiatrist anyway because I was due for my 3 month med. check (the very next day). We decided to increase my cymbalta to 90mg. I started feeling better immediately. I feel pretty normal most days.The only thing that I feel isn't quite back to normal is my cognitive abilities. I do still have to watch heat,
  7. Updating. Still feeling good. My period hit two days ago and I'm a tad bit lightheaded, but ok. Still have to be VERY mindful of the heat. On the hottest days I stay in, or it will affect me. Otherwise I'm a million times better. Still drinking two or 3 large glasses of milk a day. And eating pop tarts, lots of them. I'm on 90mg cymbalta, 2 klonapin,1 morning, and 1 before bed, and zyrtec, 2 a day. That's all. Yesterday I woke up, got out of bed and started doing stuff around the house. I totally forgot I was sick! I even forgot to take my meds. Of course as soon as I remembered I took them.
  8. I don't know, but I wrote in another post that I've been drinking tons of milk and feeling better/good. Milk has a high iodine content. I never knew that, and have no clue of the connection, if any. I just tried to find where I read about the iodine content in milk. The page had a chart. I can't find it anywhere, perhaps I was mistaken, or read it wrong.
  9. I have two bricks under mine. Can't say if it's made a difference. It IS uncomfortable, but I've gotten use to it now. I'm just keeping it that way in case it's doing something. It's suppose to increase blood volume, how I can't really understand.
  10. Todd, seriously please if you try the chocolate milk let us know if it even makes a tiny difference. Milk DOES have complete protein lots of vitamin D (which we all need), calcium and IODINE. I have no idea how iodine fits into this equation but it has lots of it. I think it has something to do with thyroid hormones.
  11. I totally agree with you on the naturapathic doctor. He's not really helped me at all except for finding me a good quality magnesium supplement. The worst part is I signed a year contract with him. I have to see him once a month and it's $50.00 a month! Uggggg. I signed up a few months ago when I was desperate for help, and so fed up with conventional doctors. Desperate people will do desperate things. My brain fog was so bad that day too, I just remember not being able to think clear and he told me it would be so much cheaper this way. I wish there was a way I could get out of it. Honestly we
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